A Letter From Fibromyalgia

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 10/21/2008 9:24 AM (GMT -7)   
This was posted several months ago.  Since we have so many newbies I thought it would be good to post this again.  It may help with explaining this illness to friends and family.
 
Sherrine
 
A LETTER FROM FIBROMYALGIA

Dear Miserable Human Being,

Hi, my name is Fibromyalgia, and I'm an invisible chronic illness. I am now ‘velcroed’ to you for life. Others around you can't see me or hear me, but YOUR body feels me. I can attack you anywhere and anyway I please. I can cause severe pain, or if I am in a good mood, I can just cause you to ache all over.

Remember when you and Energy ran around together and had fun? I took Energy from you and gave you Exhaustion. Just try to have fun now! I also took Good Sleep from you and in its place gave you Fibro Fog (a.k.a.)Brain Fog. I can make you tremble internally or make you feel cold or hot when everyone else feels normal. Oh yeah, I can make you feel anxious or depressed, too. If you have something planned, or are looking forward to a great day, I can take that away too. You didn't ask for me. I chose you for various reasons: that virus you had that you never quite recovered from, or that car accident, or childbirth, the death of a loved one, or maybe it was those years of abuse and trauma. Well, anyway, I'm here to stay! I hear you're going to see a doctor who can get rid of me. I'm ‘ROFL’ (rolling on the floor laughing)! Just try! You will have to go to many, many doctors until you find one who can help you effectively. In fact, you'll see many doctors who tell you ‘it’s all in your head’ (or some version of that). If you do find a doctor willing to treat this ‘non-disease’, you will be put on pain pills, sleeping pills, and energy pills. You will be told you are suffering from anxiety or depression, given a TENS unit, told if you just sleep and exercise properly, I will go away. You'll be told to think positively, poked, prodded, and most of all, you will not be taken seriously when you cry to the doctor how debilitating life is for you every single day!

Your family, friends, and coworkers will all listen to you until they just get tired of hearing about how I make you feel, and that I'm a debilitating disease. Some of them will say things like "Oh, you're just having a bad day", or "Well, remember, you cant expect to do the things you used to do 20 years ago," not hearing that you said "20 DAYS ago"! Some will just start talking behind your back, while you slowly feel that you are losing your dignity, trying to make them understand, especially when you are in the middle of a conversation with a ‘normal’ person, and can't remember what you were going to say next!

In closing, you've probably figured out that the ONLY place you will get any real support and understanding in dealing with me is with Other People With Fibromyalgia! They are the only ones that will understand your complaints of unrelenting pain, insomnia, fibro fog, the inability to perform the everyday tasks that ‘normal people’ take for granted.

Remember, I'm stuck to you like Velcro – and I expect we'll be together for the rest of your life.

Have a nice day!! (ROFL),

Fibromyalgia
 
Author Unknown

Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


MEG25801
Regular Member


Date Joined Jun 2008
Total Posts : 204
   Posted 10/21/2008 2:03 PM (GMT -7)   

Sherrine

Thank you...I really liked that and being one of them newbies LOL it will help to give to people and let them read it.

Thanks again

Missy


Diagnosed with Panic Disorder(16 yrs ago)-GERD(12 years ago)-GAD(16 yrs ago)-IBS(12 years ago)-DDD(6 years ago)-Arthritis(since teenager)-Controled HBP(2 years ago)-Diagnosed with fibromyalgia 9-29-08.
Meds: Cardizem CD~Prilosec~Klonopin(prn)~Daily Vitamin~Tylenol~Lyrica


Mazfire
Veteran Member


Date Joined Oct 2008
Total Posts : 1683
   Posted 10/21/2008 3:58 PM (GMT -7)   
so well said. great. smilewinkgrin
 
 
'He heals the broken hearted and binds up their wounds.' (Psalm 147:3)
 
Chronic Fatigue, Fibromyalgia, TMJ disorder, Endometriosis, Polycystic Ovaries, Chronic ear/nose/throat infections, Panic Disorder, Reactive Arthritis, Agoraphobia, Migraines,  acid reflux, Anaemia, Sinusitis, Chronically perforated eardrums, Pinched Nerves, IBS, Tachycardia, Allergies, Insomnia, Glandular Fever, Bursitis, encapsulitis, Seasonal Mood  Disorder, Mild OCD.
 
 


Green Grove
Veteran Member


Date Joined Oct 2008
Total Posts : 2424
   Posted 10/21/2008 5:24 PM (GMT -7)   
Good one. . . sad but true :)
Dream as if you'll live forever. . . Live as if you will die today. . .
James Dean
 


Meggie
Regular Member


Date Joined Jul 2008
Total Posts : 408
   Posted 10/21/2008 5:31 PM (GMT -7)   
That letter was hard to read, it made me want to cry cry .
Meggie

Carnissa
Regular Member


Date Joined Jun 2008
Total Posts : 289
   Posted 10/21/2008 6:47 PM (GMT -7)   
meggie me to.....
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 03, 2016 6:49 AM (GMT -7)
There are a total of 2,732,021 posts in 300,982 threads.
View Active Threads


Who's Online
This forum has 151148 registered members. Please welcome our newest member, Bui.
252 Guest(s), 5 Registered Member(s) are currently online.  Details
81GyGuy, 0311, Ruey, Traveler, maioeiage


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer