Fibromyalgia and Xanax.

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Shawn1
New Member


Date Joined Oct 2008
Total Posts : 3
   Posted 10/22/2008 8:15 PM (GMT -6)   
I finally found out in Jan 07 that I had Fibro.I tried the Vicodin darvocet just about everything else including anti depressents,nothing helped.All I ever got was a screwed up head and sick.
In May,me and my now ex split up and I went through hell.We have 2 kids and I fought like mad to get them,which I was done.But during that time,the doctor put me on Xanax and Zoloft.I was taking Darvocet at the time and after I started taking the Xanax,I didn't and still refuse to take the zoloft all ADs make me sick,the muscle pain started to ease up alot.I was sleeping much better then I have in the past 2 years.It is now Oct and I am now only taking the Xanax and Ibuprofen and get around better then I ever did when I was taking the Vicodin,Oxycodone or Darvocet and muscle relaxers.
  I have talked to a few people who have Fibro and are taking Xanax as well and they have noticed the same thing I have,that it helps relieve the symptoms better then anything they have tried before.My only problem is,the doctor doesn't want to believe me.Has anyone else here had an experience with Xanax and it helping with FMS?I'm not saying this is a fix all,I still have pain,but it is not near as bad as it was before.

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 10/23/2008 12:04 AM (GMT -6)   
Hi Shawn and welcome to our fibro family!

Many members have tried and are still taking Xanax with good results. Others have tried it and didn't like it. Just as people's reactions to prescriptions differs, so fibro differs from person to person. It would be easy if one 'pill' would work for everyone, but as you noted it doesn't work for every person with fibro.

It's a shame your doctor is giving you problems with prescribing Xanax for you. I'm going to assume you're younger than I...but then some rocks are younger than I am...lol... and often doctors hesitate prescribing anything long term that's addicting when patients are younger. It's a huge responsibility for the doc to decide when they know these meds are addicting. If you are still having pain issues and your doc isn't willing to help with prescriptions meds you may want to ask about referring you to a pain specialist. It's their job to work with you for some quality of life. They aren't as restricted in prescribing meds are doctors are in some states. It's a shame a few have screwed things up for those of us who truly need pain relief on a regular basis.

BTW, I took Zoloft for quite a while with great results. But as with all AD meds they tend not to work after a while and I had to change. I do wish you the best and feel free to email me if you want to chat. My email address is under the envelope below my name <---.

Chutzie
Co-Mod Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, collapsed disk, dermatitis herpetiformus, osteo arthritis in spine and other locations.
***************

The only difference between genius and stupidity is that genius has it's limits. Albert Einstein: (1879-1955)


Shawn1
New Member


Date Joined Oct 2008
Total Posts : 3
   Posted 10/23/2008 5:37 AM (GMT -6)   
I am in my early 30s.He gives me some hell about it but like I told him.I don't want to be on vicodin or strong pain meds and that the xanax does much better for me.
I think he should know I can control myself and not get addicted to meds.I stopped on my own taking the vicodin,Oxy and darvocet.I made that choice and when I told him he looked back on my records and was a bit surprised I done it on my own.I was taking alot of vicodin.
He prescibes me .5mg of Xanax,90 a month and I just use them when I absolutly have to during the day,at night,I take it to sleep.If I don't have it,I don't sleep.I have had sleep issues for the last few years.I sleep but wake up feeling as though I never went to bed.The xanax has really helped in that area.Raising 2 kids,I have to be alert,not so tired,I should not be driving.Every once in awhile,I'll not take it at night,just to see if I can sleep and it always turns out to be a disaster the next day.
The problem with doctors giving out meds that help but are addictive is because of those who abused them and would be taking the meds to get stoned.My doctor flat out told me that.It is a shame it has to be that way and hopefuly he doesn't cut me off for that reason.I do everything I can to show I am not gtting addicted,even waiting a few days after the 30 day supply is suppose to run out to go back and get refills.

Mazfire
Veteran Member


Date Joined Oct 2008
Total Posts : 1683
   Posted 10/23/2008 5:46 AM (GMT -6)   
hi shawn1
 
im on xanax for panic disorder, not for my fibromyalgia, (which i have as well) however i do strongly believe it assists with muscular pain- it gives me relief on many levels. the big drawback is its so addictive- im on a high daily dose (4mgs) and have been for the last 6 years. i hope you can find something to give you the relief you need.
Maz XX
 
 
'He heals the broken hearted and binds up their wounds.' (Psalm 147:3)
 
Chronic Fatigue, Fibromyalgia, TMJ disorder, Endometriosis, Polycystic Ovaries, Chronic ear/nose/throat infections, Panic Disorder, Reactive Arthritis, Agoraphobia, Migraines,  acid reflux, Anaemia, Sinusitis, Chronically perforated eardrums, Pinched Nerves, IBS, Tachycardia, Allergies, Insomnia, Glandular Fever, Bursitis, encapsulitis, Seasonal Mood  Disorder, Mild OCD.
 
Age:28. First diagnosed at 14.
 
 


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 10/23/2008 9:20 AM (GMT -6)   
I am having a similar experience with valium rather than xanax. When I take the valium at bedtime, I awoke with far less pain and stiffness. For the past week or so I noticed a significant decrease in my pain, generally. I also slept straight through the night, without awakening between 3 and 5 AM unable to get back to sleep. The only problem is, the doctor is eager to wean me off of them, altogether. Why is it, just when you find something that works, and has been on the market for ages (Valium, 1963, no negative side effects) the doctors just have to try to replace it with something brand new, tested only by the company that manufactures it, who also stands to make money once it is released. Then a year or three later, it gets pulled from the market because of life threatening side effects. I don't think my doctor believes in Fibromyalgia. He is treating me for BiPolar, wants me on Topamax, which can cause kidney stones if you don't drink a gallon of water a day. Ever try drinking a gallon of water. Our water, I fear is probably somewhat toxic anyway, but due to being on disability, I sure can't afford bottled water. Help!

Tootiebug58
Regular Member


Date Joined Feb 2008
Total Posts : 378
   Posted 10/23/2008 9:35 AM (GMT -6)   
I have been taking 2 mgs of Xanax a day for nearly 15 years. I have extreme anxiety and panic disorder, and it helps tremendously with the Fibro. My dr said I shouldn't worry about becoming addicted, even though Xanax is very addictive.
Its those who dont worry about it, that want the meds for a high. I fought him years ago about taking the xanax but he said he wanted me to live as normal life as possible, and xanax was the answer. I am not afraid of getting addicted, as I never
UP my dose. I dont have any side effects from it, and am living without the tremendous fear and panic I once had.
Hope this helps
Tootie
-------------------------------------------
anxiety/panic attacks...osteoporosis....Fibro
 xanax


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 10/23/2008 9:51 AM (GMT -6)   
Hi Shawn and welcome. I have been on xanax for 10 yrs for anxiety and was on it when I got fibro. The max I take is 3 mg a day and half of that is at night to sleep. I have been on higher dose but even though I have been on it that long and have shown I'm not addicted and have been going to the same doc for 15 yrs they seem to be getting stricter in what they rx. I don't know if laws have changed or what. I use to get 6 mg a day and then I wouldn't have to have it filled as often but he stopped doing that. I know it's all in a data bank when you get xanax refilled and they know the last time you got it filled no matter what drug store you go to cause we get most of our meds through the Army and all they have to do is put my name in the computer and they know when and where I got it filled last. Do they think an addict is going to use their real name if they are trying to get drugs duh. Sadly some ruin good things for us that need it. I do think sticking with the same doc helps a lot as long as your happy with them when it comes to forming trust. Addicts go from doc to doc to try and get drugs.
 
Since I was on xanax when I got fibro I don't know how much it helps me. With the amitriptyline and xanax I don't seem to have as much pain as many.
 
Don't ask for an increase keep a diary of pain and everything like how you sleep better on nights you take xanax and maybe over time they will increase it some.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 10/23/2008 10:14 AM (GMT -6)   
Xanax helps me with whatever my problem is. I am in so much pain. I have a lot
of diagnoses but I don't really know what's wrong with me.
Maybe if I read this board I'll get some ideas. I hope. It would be good to know.
Every day. I mean every day something hurts so gosh darn bad that I don't know
if I'm going to make it through the day, night, afternoon ... whatever.

I have read a little about Fibromyalgia. I have been diagnosed with it. I have not
believed the diagnoses but I'm beginning to.

Hope to get to know you all.
MEDICAL CONDITIONS

Osteoarthritis all levels of spine right down to Coccyx,Spondilytis,Myofascial Pain
Fromyalgia,Bulging Discs,Spinal Stenosis,Scoliosis,Osteopenia,Chronic Constipation
Carpel Tunel Syndrome,.Prolapsed Bowel and Bladder, Attention Deficity Disorder,
Depression & Anxiety

Methadone for Pain, Xanax for Anxiety,


Shawn1
New Member


Date Joined Oct 2008
Total Posts : 3
   Posted 10/23/2008 7:23 PM (GMT -6)   
Pamela Neckpain said...
Xanax helps me with whatever my problem is. I am in so much pain. I have a lot
of diagnoses but I don't really know what's wrong with me.
Maybe if I read this board I'll get some ideas. I hope. It would be good to know.
Every day. I mean every day something hurts so gosh darn bad that I don't know
if I'm going to make it through the day, night, afternoon ... whatever.

I have read a little about Fibromyalgia. I have been diagnosed with it. I have not
believed the diagnoses but I'm beginning to.

Hope to get to know you all.

I Know how you feel.I didn't want to believe it at first and it took me almost a year to come to terms with it.I am glad to see I am not the only one who thinks that Xanax has helped with Fibro.

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 33667
   Posted 10/23/2008 10:00 PM (GMT -6)   
I too believe that the xanax helps us to relax and that helps with tense muscles which tend to get tense when we are in pain, furthermore causing more pain. So I think it really helps that bad pain cycle.

Just my 2 cents worth.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


fmsuauthor
New Member


Date Joined Apr 2008
Total Posts : 3
   Posted 10/30/2008 6:59 PM (GMT -6)   
Yes, Xanax is great, but don't take it for sleep. I used to take it at bedtime and sleep like a baby, even though my psychiatrist warned me not to do that. I thought it was great because I had no hangover the next morning. But what happens is that eventually it doesn't put you to sleep any more and you get a condition called rebound insomnia. If you thought you couldn't sleep before, this is 1,000 times worse! It took me almost 2 weeks to be able to sleep without it again - and during those 2 weeks I only slept an hour or two at night and not at all during the day. So, take it during the day if you need it, but be careful if you take it at night. nono

gp4e777
New Member


Date Joined Jun 2012
Total Posts : 3
   Posted 6/13/2012 2:13 PM (GMT -6)   
smhair

I just woke up and began googling fibromyalgia and xanax....I got out of bed carefully as I always do. Stood up to shuffle my way to the restroom as I always do because it hurts to walk...I had no pain! I began to bend around move my ankles and knees and back and my left shoulder that hurts soo much...NOTHING!!

I'm shocked!!! The night before I couldn't sleep as usual. I sleep maybe 2 hrs at a time and I got to bed at about 4am and wake up at 1am feeling exhausted...I have fibromyalgia and my journey has been a horrible one for about 2 yrs....

I'm in shock right now. I took 1mg of xanax last night just because I was feeling very anxious and overwhelmed and I couldn't sleep....

These are all the meds I've tried that DO NOT WORK for me. Amitryptyline for sleep, Trazadone for sleep, Ambien for sleep, Hydrocodone, Ultram, and Celebrex.

So I cant sleep and I'm always in pain. I've been on med leave from my job for 4 months without pay. I am loosing my house because of all my medical problems. Bills got the best of me...

So I got to bed last night taking xanax. Wake up REFRESHED AND with NO PAIN!?!!?!?!?!? Whattttt???? Are you SERIOUS?

I called my dr and of course they have to call me back. I have to tell them about this. It worked!? Oh my gosh! I'm in shock and am afraid to jinx this but after seeing this forum I'm a little convinced....This works? This really works?

(shocked) I have so many mixed emotions right now....I'm afraid to be happy that I feel so good right now...I feel like ME again.

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 33667
   Posted 6/13/2012 6:03 PM (GMT -6)   
Hi gp4e777,

I am very happy for you. Xanax is in the benzo family. It fights anxiety and relaxes you. I take it too. Though I still have pain. I am right now starting to wean off of it because I have been on it for so many years. But I am so happy that it worked for you. It probably gave you a better sleep. Keep us posted on how you are doing. And welcome to the forum.

By the way, if you get a chance, we have a thread called "fibro 101". It is the second thread on the forum. It is very interesting and I think you would enjoy reading some things on it. I hope that the xanax continues to work for you. Take care, keep posting. IF you are interested, please do start a thread of your own. This one is from 2008 and is very old. You will get more responses that way.

Hugs, Karen
Moderator-Depression and fibromyalgia


fibromyalgia, Chronic fatigue, depression, allergies

sawa
Regular Member


Date Joined Jan 2011
Total Posts : 275
   Posted 6/13/2012 10:24 PM (GMT -6)   
I also take xanax at bedtime and I sleep very well with it. You know I haven't paid attention to my pain level on the nights I take it so I will be sure to do that. I switch off some nights its xanax, some nights its melatonin and some nights its flexeril. I can sleep with all three and occasionally a benadryl helps me sleep. I only use one pill of those choices per night. If I don't take anything, then I am up all night long tossing and turning so I must take something for sleep.
There is nothing you can't do if you set your mind to it.

Diagnosis: Fibromyalgia, migraines, Degenerative Disk Disease, Spinal Stenosis, chronic sinus problems, anxiety, mortons neuroma

Kaely
Veteran Member


Date Joined May 2012
Total Posts : 619
   Posted 6/13/2012 10:50 PM (GMT -6)   
I've found that narcotic painkillers don't do much for my Fibro pain. Gabapentin is doing wonders for it. Flexeril is a godsend for me. My doctor previously has prescribed Flexeril and Valium (not at the same time) and both have worked really wonderfully for me. Right now I'm on Gabapentin and Flexeril and 90% of my Fibro pain is gone.
Chronic pain, Depression, Fibromyalgia, Tennis Elbow (both arms), Arthritis (knees and fingers), Diabetes. Ruptured disk L-4, Severe degenerative damage L5-S1, ACDF C6-C7
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