Do we have the same mother? LOL-I think it's strange that we both posted about our moms on the same day. Anyway, I so understand what you are going through. And, I totally know what you mean about sleeping on the couch. For me, it was the only way I could get halfway comfortable, and since moving back in with my parents, I'm "sleeping" in a bed that makes me feel even worse than usual. My mom doesn't understand that just because it's morning, it means that I've slept all night. Actually, I slept about 3 hours last night (and that's good for me) broken up into 30 minute naps.
"Luckily" for me, I don't have a problem taking meds, but I still don't get a lot of pain relief from them. I used to think that I was undermedicated, but now I just think I'm OVERstressed. I didn't realize how tense I always am-because I am constantly stressed out about my parents and their sarcastic remarks (just from my mom, so far). Normally, I am a very open and honest person, but my mom has me feeling all closed up. I don't know how many different ways I can tell her that I don't feel well. LOL-I knew I should have learned more Spanish when I lived in CA!
Anyway, if you need someone to talk to about this (and trust me, I could always use someone to talk to), feel free to email me. I think that our mothers should get together, too!
I am curious as to just what your disability is. Are you in a wheelchair, or have some other condition that qualifies as a disability?
There are several things you could do to be able to sleep in your own room instead of on the couch. Your mother offered to buy you a new mattress, take her up on it. If it is too hot, get a small window air conditioner for your room. Buy an ionic air cleaner to keep the room fresh. If the lights in your room are too bright, put in lower wattage bulbs.
Get off that couch and exercise. Stretch, ride a bike, take a walk, do yoga, pilates, swimming, anything to keep you moving. If you can't find a paying job at the moment, donate some time, maybe a few hrs. a week at the local hospital. You'd be surprised at how much better you will feel helping someelse and getting your mind off your own pain and troubles.
Pain can't be treated effectively with an on again, off again basis. It must be treated on a regular basis with consistency. Some Rx's do have the effect of making you drowsy, but quite often this goes away after your body adjusts to the new med. Sometimes you just have to keep trying different meds to see which ones or which combination works best for you. Not all meds work the same for everyone. If your doc wants you to try something, ask him or her for samples, doctors always have lots of samples.
I'm sorry if it sounds as if I am being harsh and not understanding what you are going through. I really do understand, I have lived with fibro for almost 55 yrs. now. If I spent most of my time lying around or sleeping, my life would have been a misery. Sometimes you just have to pull yourself up by your own bootstraps and say: "This is not going to dominate my life and dictate what I can or can't do". The right attitude can do wonders for your outlook and your stress. Remeber, if you reduce the stress, you will reduce your pain.
Since you seem to be mostly home bound, how about working from home. There are a lot of professionals out there who hire people to work from home on their own computers to do work for them, like typing reports, letters, speechs, whatever. Usually they messenger over the work and then send someone to pick it up when you are done. You seem to be a very good typinst and you could set your own hours.
BTW, fibro is not among the official listed conditions that qualify for disability. That doesn't mean it is impossible to collect SSDI benefits, but it is difficult.