chronic pain every day

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

khalin
New Member


Date Joined Oct 2008
Total Posts : 5
   Posted 10/28/2008 6:42 AM (GMT -7)   
cry  hi everyone new to forum, i have fibro symptos for eight years now . It started with cheast pain so bad i thought i was having a heart attack .I want to many hospitals , doctors and specialists. I was finally told this year that i have fibromyalgia, this year my symptoms have got much worse the pain in my joints is so bad i just spend most of my time crying in pain. The pain in my wrists feel like i sprained them ,the pain in my feet and toes is so bad. Also i suffer from really cold feet the go blue with the cold,i have tried every pain killer which do not help. My specialist has put me on Lyrica ,he told me it could take six months to a year to see any results. He also said i have to excerise which is so hard because i am in so much pain, can anyone tell me about the back pain. It is so chronic i am losing my mind ,the pain is in my lower back and in my spine i cannot sleep as i have to keep turning all the time and the pain goes down my legs. Please if anyone has any advise or could help me in any way please please let me know,thank you.

momofmany
Regular Member


Date Joined Apr 2008
Total Posts : 58
   Posted 10/28/2008 6:51 AM (GMT -7)   
My niece has many of these same symptoms and they are testing her for Raynauds.  I guess the cold feet and cold hands is what tipped the doc off.  I don't know much else about it, but it might be worth checking in to


khalin
New Member


Date Joined Oct 2008
Total Posts : 5
   Posted 10/28/2008 7:21 AM (GMT -7)   
Thank you for your reply i will ask my doc , I am living in Ireland so it is great to hear any advice from people going through the same things i am so please please write again . Khalin.

Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 10/28/2008 7:40 AM (GMT -7)   
Hi Khalin and welcome. Have you had any test done on your back to make sure there is nothing else going on but fibro??? We can't always blame fibro for all our pain. I have osteoarthritis that is worse than the fibro pain. The pain is not really in the joints with fibro but the muscles, tendons and ligaments which makes it feel like it is the joints. I've started having wrist pain which I had never had before. They say fibro does not progress but it sure has for me.
 
Read the fibro 101 thread, second on first page, it contains a lot of helpful info. Read and ask questions and we are here for you.
 
Moist heat of any kind is good for fibro. Some use malic acid/magnesium combo and have good luck with it. I use a TENS unit when the pain is really bad to interrupt the pain signals to the brain.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 10/28/2008 8:04 AM (GMT -7)   
Hi Khalin,
 
I can so relate to your symptoms!  I get the cold blue fingers and toes too.  It is Raynauds Phenomenon. Google that one... I also have lupus. The Raynauds is caused by both diseases.  Extra care in keeping them warm is important.
 
I also have the lower back and spine, and neck issues.  It's hideous.  I also have a horrible time sleeping. I wake up every time I need to roll over because the pain is so bad.  I don't sleep very well because I'm awake so much. I wish I had some ideas for you Khalin. I'm losing my mind over all the pain too.... I think you and I can relate very well!  I am using a memory foam mattress cover which helps the lower back issues. Gives more support in that area.  They're inexpensive to buy. Mine is about 3 inches thick.
 
I find that prolonged sitting makes everything so much worse.  So I get up and move around for a few minutes every hour.  Be careful with the exercise.  If all you can handle is a mild 5 minute routine, that's good.  Anything is better than nothing.  But doing too much will flare things up.  Listen to your body. If it's saying STOP!, then stop.  I can only do 5 minutes on my exercise bike these days.  But it's better than nothing!
 
Are you taking anything for pain?  I'm not and it sucks.... I'm seeing my doctor this afternoon to talk about it. Can't live like this anymore....I wish you well, and I hope we can talk more.
 
Ginny
 
 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, Zoloft, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Green Grove
Veteran Member


Date Joined Oct 2008
Total Posts : 2424
   Posted 10/28/2008 10:09 AM (GMT -7)   
Welcome Khalin. . . I'm new on here also, and everyone has been really nice and helpful. . . I wish you the best of luck for your pain to subside :)
Sam
Dream as if you'll live forever. . . Live as if you will die today. . .
James Dean
 


RedDiane
Veteran Member


Date Joined Jun 2007
Total Posts : 906
   Posted 10/28/2008 12:15 PM (GMT -7)   
Khalin, Welcome! I may have some good news for you. I started on Lyrica about a year ago. It helped me sleep better right away. That has been the biggest help, but I think it has also lessened some of my pain. At least when the weather is warmer. Cold weather is really hard on my joints--my hands and my knees mostly. I don't have Raynauds, but the cold does cause pain. Good luck. Diane
Fibromyalgia since 1984, Sjogren's, Hashimoto's Thyroiditis, Auto-immune eczema, GERD, osteoarthritis, IBS, RLS, sleep apnea


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 10/28/2008 12:28 PM (GMT -7)   
Hi, Khalin, and welcome!  I'm so sorry that you are having so much pain.  I think I'd be checked for Raynaud's also.  I really don't know anything about that illnesses but maybe they have some medications that could help you.
 
I see that Marlee directed you to the Fibro 101 thread.  There is a lot of info in that and also in back posts.  Learn all you can because that will help you cope with the pain.
 
Moist heat is great.  Hot showers or baths feel wonderful on all those muscles and joints.  Also rice bags are great.  There is a product called Bed Buddy here in the States and it's sold at Walgreens.  If you can't find one there, try Googling Bed Buddy and see if you can order one on line.  They are filled with beans, I think, and you put it in the microwave and heat it and it gives off moist heat.  You also can take a tube sock, fill it 2/3's full of raw long grain white rice (not the instant kind) and tie a knot on the end.  There you have a mini rice bag that can be microwaved!
 
On the Fibro 101 thread there is a link to great stretching exercises.  There are done sitting down and they really do help.  You do need to keep moving.  Walking is a good exercise for fibro patients.  As you move the pain should lessen because you are stretching the muscles so they aren't stiffening up on you. 
 
Also in the fibro 101 thread is a link all about malic acid/magnesium supplements.  I started these last December and they have helped me a lot with pain and fatigue.  They don't work for everyone but many members have had good success with them.  Read about them and see what you think. 
 
I'm glad you joined us.  We have a good group of people that have wonderful ideas to help you live a full and enjoyable life with fibromyalgia.  I hope to hear more from you soon!
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 10/28/2008 2:59 PM (GMT -7)   
Pain sucks... Try doing what Sherrine has suggested...

Sometimes, it helps... sometimes, it doesn't... :(... Wish we could just magically take our pains away...
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


khalin
New Member


Date Joined Oct 2008
Total Posts : 5
   Posted 10/29/2008 5:41 AM (GMT -7)   
Thank you everyone for your replys it makes me feel so much better when i hear from you.My family are great but it is so hard for them to really understand what i am going through . I have five children ranging in age from fourteen years to four years , I try my best not to show them that I am in pain. So thank you again . KHALIN

Sue2z
Regular Member


Date Joined Jul 2008
Total Posts : 368
   Posted 10/29/2008 10:35 PM (GMT -7)   
Ask for a muscle relaxant im sure it will make a difference,   sue2z :-) :-) :-)
Fibromyalgia, ulcerative colonitus, arthritus, bi-polar
norspan patch, valium, prothiedon, lyrica

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 02, 2016 9:54 PM (GMT -7)
There are a total of 2,731,952 posts in 300,977 threads.
View Active Threads


Who's Online
This forum has 151137 registered members. Please welcome our newest member, Country girl2.
255 Guest(s), 4 Registered Member(s) are currently online.  Details
DBwithUC, NewspaperLover, Fairwind, GustavoWoltmann


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer