I know I'm not alone on this.

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probull3t
Regular Member


Date Joined Sep 2008
Total Posts : 38
   Posted 10/29/2008 8:14 PM (GMT -7)   
FM seems to be getting worse again this time of the year and it's making my day to day life seemingly unbelievable. This is last year... all over again. My sleeping habits have changed rapidly and I'm getting migraines every single day, which never go away. I know a lot of you on here feel the same way as me. I'm just wondering.. for those of you that feel like you have something to live up to i guess... what do you do? I suddenly had to stop going to school (college) and I'm not feeling very optimistic about getting back. For those of you who aren't able to live "the normal life", what do you do? Are there fulfilling part-time jobs that you can do? Ugh..
Running out of ideas


Sera Smiles
Veteran Member


Date Joined Nov 2006
Total Posts : 671
   Posted 10/29/2008 8:46 PM (GMT -7)   
Kythe- I don't know what we can say that is going to make an impact on you. This is a forum that strives to lead its members to empower themselves. Of course you are not alone. Everyone here makes statements daily that try and explain what this disorder does to their lives. I would like to encourage you to prioritize your needs and be open to solutions to those needs.
 


Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 10/29/2008 9:11 PM (GMT -7)   
I was blessed enough to start a home-based wedding cake business 20 years ago [when I had kids at home to help me] and this has been my salvation. I can stop and rest when necessary, take only as much business as I want to do, and I can pretty much set my own hours and work schedule. I also started up an annual bridal show 15 years ago and that supplements my income in the lean winter months of fewer weddings. I started in my home with the idea that I would eventually open a storefront bakery but with the way fibro has held me back this is where I stayed. Actually, it's been ideal for me because my bedroom is right next to the bakery so I can nap when I need to and still be present to answer the phone.

Anyone who can do something from home is at a definite advantage with fibro. I wish there were lots of "cottage industries" out there for us.
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


Sue2z
Regular Member


Date Joined Jul 2008
Total Posts : 368
   Posted 10/29/2008 10:41 PM (GMT -7)   
Talk to your doc and try get sleep pills if you need them and tell him about the headaches.  Good luck   sue2z

Fibromyalgia, ulcerative colonitus, arthritus, bi-polar
norspan patch, valium, prothiedon, lyrica


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 10/30/2008 4:36 AM (GMT -7)   
You could get your college degree on line.  You could do this at your own pace. and choose a career that you could work from home.  Data processing comes to mind. Also, web design could probably be done at home.
 
You need to try to look at the positive things in your life.  If you look only at what you can't do, it's like a self-fulfilling prophecy.  God has given you a good brain and you can figure ways around this lousy illness.  Get what you need to help prevent the headaches if you can.  It's good to take whatever helps you BEFORE you end up in a lot of pain...not after the pain has arrived big time.  This helps you control the pain so you can function.
 
Read back posts and you will find a lot of other ideas.  If you look forward to the future with some anticipation I think you will find something that works perfectly for you!
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


SassyIsMyKitty
Regular Member


Date Joined May 2008
Total Posts : 223
   Posted 10/30/2008 5:47 AM (GMT -7)   

I think everyone here can relate to how you are feeling. I know that the change in weather is murder to me, and since I had to cut back on my sleep meds, I know what it is like to not get much sleep. It is hard, and it does impact your everyday life.

I am currently looking into Ashworth College. I want to get a degree in writing children's books. The great thing about online colleges that are accredited is that you can work at your own pace. You don't have to worry about deadlines, or going out to sit in an uncomfortable classroom.

There are a lot of ways to work at home, and if you feel fulfilled when you are in school trying to better yourself, I would definately look into online colleges. Ashworth has a lot of interesting degrees. A lot of them, I am sure, you could find a job with to work at home. I would love to find a job that I could do from home.

I wish you the best of luck.

*soft hugs*


~MDD, Fibromyalgia, OCD, Anxiety Disorders, IBS, TMJ, Arthritis~
 
May your heart be filled with love and joy.
May your mind be clear and true.
May your smiles be many,
And may your tears be few. 
May God wrap you in His arms
Especially when you're feeling blue.


kelly71
Veteran Member


Date Joined Jun 2008
Total Posts : 726
   Posted 10/30/2008 6:37 AM (GMT -7)   

I certainly understand what it's like to have to put your life on hold because of fibro.  I picked up and moved back home from CA to SC.  And, living with your parents at 36 (37 next month) is not only humiliating, it can be disheartening at times. sad  

Anyway, I was so spoiled by the SoCal weather.  My fibro is screaming at the cold, and the cold is screaming back louder.  LOL-I thought I was painful before!  I know how hard it is to stay positive.  One of the things that helps me is to talk to other people that really know what you are going through.  You can always come here to vent (you'll see me doing that a lot wink ).  I've found some true friends here and on another board.  I hope you feel comfortable enough to talk about anything (well, you can always talk to me about anything, this is a "let's keep it PG" board). tongue   I have a problem censoring myself at times, cause I'm such a "say anything" and open kind of person.

I hope you know that you do have a lot of people on your side. yeah


FINALLY dxd on 06/13/08
Vicodin, Neurontin, Ibuprofen for pain-which doesn't help, BTW
Zoloft & methadone (NOT for pain) for sanity-which doesn't help, BTW
Klonopin for anxiety (Guess what?  Doesn't help!)
Chantix to try to quit smoking (started 08/20/08)
 
"I'll take the Chivas instead"
-Kelly Clarkson


SassyIsMyKitty
Regular Member


Date Joined May 2008
Total Posts : 223
   Posted 11/1/2008 6:27 AM (GMT -7)   
Kelly,
I have found some people on here who are truly nice, and I have made a friend here. We e-mail back and forth, and it is nice to have people to talk to who understand where I am coming from. I live in IN, and the cold weather is screaming at me, and make my body scream in protest. I hate the cold because it hurts me so much. Before, it was just my arthritis in my knees, but now it is that and the fibro, and it makes my whole body hurt. I understand about the cold. It sucks. LOL

~MDD, Fibromyalgia, OCD, Anxiety Disorders, IBS, TMJ, Arthritis~
 
May your heart be filled with love and joy.
May your mind be clear and true.
May your smiles be many,
And may your tears be few. 
May God wrap you in His arms
Especially when you're feeling blue.


Kythe
Regular Member


Date Joined Jun 2008
Total Posts : 261
   Posted 11/1/2008 8:53 AM (GMT -7)   
Um Sera, just wanted to point out that you addressed me in your post but I hadn't even posted on this topic.

Anyway pro, I can certainly relate to how you are feeling. I had a very hard time with college. I was never able to keep up a full course load even though I did as many classes as possible online. I also took time off here and there. It took me 5 years to get what should've been a 2 year degree. Not to mention the degree I got is pretty useless it was just General Studies Associates Degree because it was the only thing I could really do that would let me be flexible and take classes that I could handle.

I don't know what to tell you about the job thing. I've been looking for a job for over a year now and I haven't had any luck. There just aren't many part time jobs available in my area and the few times I've actually gotten interviews I was always beaten out by someone that actually had job experience. Many people have suggested working at home to me and I have been looking into that a lot but honestly haven't been able to find anything available that is legitimate which baffles me because people keep telling me there are lots of opportunities for things like that. I wish I knew what I'm doing wrong with my job searches.

Well here's hoping things get better for both of us in the future.
~Kythe
____________


Allergies, Asthma, Anxiety, Depression, IBS, PCOS, Fibromyalgia


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 11/1/2008 9:00 AM (GMT -7)   
Kythe, why not try to interview with several employment agencies.  They would test you to see your skills and they find the work for you.  The people that would hire you are the ones that pay for the employment agency so it might be worth a shot for you.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Kythe
Regular Member


Date Joined Jun 2008
Total Posts : 261
   Posted 11/1/2008 9:17 AM (GMT -7)   
Been there, done that. LOL

Over the past year I signed up with 7 different agencies. I tested high on all the typing and microsoft office tests they gave me. Unfortunately none of them were able to do anything for me. Something about how none of their clients wanted to hire anyone for part time work or they only wanted people with more job experience.

Currently I'm trying to work with this one agency that specializes in helping disabled people get rehabilitated and find work. They are extremely slow. I initially contacted them in July and because they took so long to even send me an application and even longer to process it once I mailed it back, I didn't get an appointment until the middle of September. They told me they where going to pay for diagnostic testing(psychological, career aptitude, ect) and that I just had to wait for an authorization form to come in the mail and then I could make an appointment to get it all done. After a few weeks of waiting I called up my case worker to find out what was going on. She told me that she was still working on my paperwork and getting me into the system. I can't remember exactly how long ago that was that I called(fibro fog), but if that form isn't in today's mail, I'm calling them again on Monday.
~Kythe
____________


Allergies, Asthma, Anxiety, Depression, IBS, PCOS, Fibromyalgia


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 11/1/2008 9:27 AM (GMT -7)   
Sounds like you are doing everything you can do.  The right job will come along eventually.  The waiting is difficult but you have no control over that.  Just keep trying and, when you least expect it, the perfect job for you will come.  Best of luck in the search.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Kythe
Regular Member


Date Joined Jun 2008
Total Posts : 261
   Posted 11/1/2008 9:35 AM (GMT -7)   
Yeah the waiting is difficult, it's really bad for the morale. I'm not giving up, but somehow I think that I might have to wait until the job market improves before anything comes along. Thanks for the well wishes.
~Kythe
____________


Allergies, Asthma, Anxiety, Depression, IBS, PCOS, Fibromyalgia


stitching star
Regular Member


Date Joined Oct 2008
Total Posts : 38
   Posted 11/1/2008 10:34 AM (GMT -7)   
pro- I am sorry that fibro is interfering in your college classes. It is really hard when that happens. Look into online classes, and into the office at the college for people with disabilities. They may be able to make accomodations for you so that you can continue with your education.

It IS hard to stay positive, and to keep moving. but both are important. I found that seeing a therapist was helpful at times when I just couldn't find anything positive. It also helped me deal with the changes that this disease has made in my life. NOT saying you are crazy, or depressed, or that it is all in your head. It is a REAL disease, and causes REAL problems. I just mean that sometimes we need some help dealing with all of it. Or at least I do.

Hugs.
Susie
SAHM, kids are the light of my life
dh of 17 yrs, my sweetie
ds 16yo, great kid, Sr. in high school
dd 13yo, my reward, homeschooled
ds 8yo, amazing kid, great magician
 
2 furbabies - Gracie and Capn Morgan, both cats
1 featherbaby - cockatiel - Goldi the Evil
 
I have always imagined paradise will be some type of library.
     -Jorges Luis Borges
        


Leeriesan
Regular Member


Date Joined Oct 2008
Total Posts : 90
   Posted 11/1/2008 3:37 PM (GMT -7)   
I am currently in college and just went to our disabilities office - they are in the process of filling out forms for me to excuse my absences due to fibro so it won't hurt my grades. At least its something. :-) Ya never know how they can help.
~~Asthma, Reactive Airway Disease, Allergies (to nature), Fibromyalgia, Kidney Reflux Disease, Chronic Migraines (docs currently working on those), Generalized Anxiety Disorder, Depression, Restless Leg Syndrome, and a few others that remain undiagnosed because I don't feel like being on anymore medication than I am already on. ~~

~~ I'm 21 and trying to be optimistic~~

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