Hello, sorry I haven't been around much, I have just been so tired. I slept through most of yesterday and am feeling pretty foggy today. I need to keep pushing myself to move.
I was released from therapy last week. I'm no better than I was when I started, actually worse because it has put me into a flare and just getting through the day takes all of my energy. The therapist was very understanding and wants me to consider going back to the doctor but she said that my next step most likely was surgery and I'm not open to that right now. I am considering getting a stablizer for my shoulder at night. The therapist said that it would help to keep my shoulder back and even with my neck but I noticed when I sleep on my side that my shoulder naturally falls forward and it really hurts when I get up. The therapist is going to call me this week to see how I'm doing (which I think is very thoughtful), I think I'm going to get her opinion on a stablizer. I also have done some research and found a massage therapist that works with fibro patients. She was highly recommended so as soon as I have the money I'm going to make an appointment and give that a try. I did ask my therapist about the trigger point release therapy, she gave me some information and showed me a few tools that I could use but I haven't actually tried it myself. Maybe the massage therapist will be able to show me more because I do think that would helpful to me.
As far as the densensitizing, I think it is going ok. Some days I can scrub pretty hard but other I need to be more gentle. I'm going to continue working on it, especially in my feet where it is the worst.
I really appreciate your concern and hope I will be able to check in more soon .
I guess I should explain my reason for not wanting surgery. I have had two surgeries on my left knee and I didn't respond well to the anesthetic? and my recovery was very slow. With three kids and a full time job, it just isn't feasible right now. I may reconsider this next spring, it all depends on whether or not I work over the summer. Right now my job only runs for 10 months but this past summer they extended my contract, so I'm not sure what next year will bring. I'm also not real confident in the doctors around here, I would probably need to go to Green Bay or Appleton (We take frequent trips to Wisconsin). Did you have your surgery in the U.P.? Another question, how long did it take you to recover?
The stablizer I'm hoping will allow my shoulder to heal a little while I sleep. Right now it remains pinched by the position I sleep in. I'm only looking to use it during the night and until I'm feeling better. I do plan on continuing the PT exercises, I think they will be very helpful once I reduce some of the pain and swelling.
I will let you know how things go.
It really helps talking with someone who has gone through this, I feel much better about the whole thing. I usually have a more positive attitude but this has been bringing me down for such a long time and I was really hoping that the cortisone and therapy would make a difference.
For now, one day at a time and I will deal with whatever comes along. I'm actually feeling a little better today so that is a good thing .