Double Post: Fibro Fog/Muscle Relaxer

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Leeriesan
Regular Member


Date Joined Oct 2008
Total Posts : 90
   Posted 11/2/2008 8:50 PM (GMT -7)   
Okay so for the first half of my post...

about a week ago I was having a really bad couple of days. I had a presentation to give in class - I couldn't give it because I could barely stand up - I ended up sitting outside of the classroom down the hallway crying for the entire class period because I was in so much pain (luckily my professor is amazing and I'm giving the presentation this Tuesday - and my partner is my boyfriend so its not like he's upset about it). Tom (boyfriend) would slip out of class and check on my throughout the class and at one point I was kind of dizzy and things started to get kind of hazy. Tom sat down next to me - I was bent over looking at the floor so all I could see was his shoes - but I knew it was him - it had to be him - but I didn't know. This is going to be hard to explain but I'm going to try. He sat down and put his arm around me - first off he's the only guy in the entire department let alone the class - it had to be Tom. And he's the only guy that would do that with me. But anyway he sat down and it was like I had no idea who was there. It felt like a stranger. I got really scared and frightened (I hate to be touched at all by people I'm not comfortable around or don't know) and I started to get even more upset. I was really confused and it felt like it took forever to look up and at his face. I looked at him and it was as if I didn't even recognize him. I knew I did - somewhere in my head something knew him but it was like I couldn't place him. I'm not sure if I'm describing this right. It happened about a week ago - I didn't want to post this when he could read it - I didn't tell him - I thought it might upset him to know. Anyway - my point is - could this somehow be related to the fibro fog? I was in a lot of pain - I'm guessing that was a factor - I don't know - has anyone experienced anything this disorienting before? It didn't last too long - only a couple of minutes and then it faded and I let him hug me.

Part 2 -
So I went back to my doctor that I'm starting to like less and less - I had like five things to talk to her about - I even had a list - she was in the office with me for a maximum of ...maybe five minutes tops? Anyway she put me on ANOTHER medication - but this time I'm not so pissed off about it. I mean - I was furious at first. I've seen her twice and she's put me on three new meds. Ridiculous in my opinion. Meds aren't always the answer - especially when she doesn't even listen to me. Stop ranting...okay. focus - haha. So - she put me on Amrix - a muscle relaxer - I told her about how I've been waking up in the middle of the night in a lot of pain - chest pain back pain - lots of leg pain all the time - and...well its helped. The only problem is...I was tired before. Now I'm exhausted. I mean, I said I was exhausted before. I don't know what is past exhausted. I was watching a movie this afternoon - passed out - literally just kinda tipped over and fell asleep haha. Classes are even harder now, but the pain is less - that's the important thing right? But its harder to concentrate - I can't even remember my classes sometimes now - I take notes but sometimes they barely make sense. I feel like I'm having to pick between school or my health and I feel like I want to shout out that it isn't fair and some invisible person will hover over me and put their hands on their hips and say "now child life isn't fair."

SO maybe there is a part 3 - this doctor. I told her that my feet have started doing this tingly thing - like when your foot falls asleep then starts to get feeling back - pins and needles feeling. my feet started doing that a couple weeks ago - then my fingers and once or twice my lips did it. I tell my doc and she says something about nerve damage or something being wrong with nerves....says its weird....then says it might have something to do with the fact that i'm a sign language major and i use my hands a lot.

*blank stare*
i'm sorry ma'am I don't sign with my feet.

anyway that was the end of that. i don't think i like her. i'm also very particular but i don't think that's a bad thing when it comes to my health. i've gone to enough doctors - i think the problem is that i'm not taken seriously. i'm 21 - but i know my body - i know whats normal i know what isn't and this weird (yes doc i know its weird you don't have to tell me) tingly sensation isn't good i don't think and i don't think you should mention nerve damage to anyone and then just brush it off and leave the room okay visit over!!!

alright. this post is really long. I'm done. Have a great week everybody!
~~Asthma, Reactive Airway Disease, Allergies (to nature), Fibromyalgia, Kidney Reflux Disease, Chronic Migraines (docs currently working on those), Generalized Anxiety Disorder, Depression, Restless Leg Syndrome, and a few others that remain undiagnosed because I don't feel like being on anymore medication than I am already on. ~~

~~ I'm 21 and trying to be optimistic~~


T~
Regular Member


Date Joined Nov 2007
Total Posts : 130
   Posted 11/2/2008 9:37 PM (GMT -7)   

I feel for you SO MUCH!  I have been feeling angry and sorry for myself and my family for having to deal with this, but I'm 40.  I feel too young to have so many health issues.  I can't imagine school with Fibro.  When I think of people as young as you suffering as you do... it really breaks my heart. 

To your first topic... I have what I call brain farts, however, I have never experiened what you did with you boyfriend (sounds like a wonderful guy).  I have to pretend I remember things at work or look up things again and again.  My teens get down right mad at me for forgetting entire conversations or yesterday, but I have heard of people having sort of out of body experiences and I did have that around my diagnosis.  I recall forgetting how to get to work or going through red lights and stoping at green lights.  I believe it was because of tremendous stress and I too suffer from generalized anxiety.  I understand that that disorder alone can cause things like we are describing. 

Doctors... I am beginning to hate them.  I hate using the word hate.  I work for a wonderful foot doctor and he takes care of people in a way that I can only dream of having in a general doctor.  I was dumped by my doctor when he learned that a Rhuemy diagnosed me with Fibro, so I do understand.  Someone said they wished they were diagnosed with Lupus a recognized diagnosis... I so get that.  My mom has MS and she's treated with care and understanding (thank goodness), but I have been searching for a new Primary doctor for a year now.  I know that many of us search for a long time to find that one Doctor that shows us some compassion.  I cried when a Rheumy got what I was trying to say.  It's so hard sometimes to read posts that suggest there is life after diagnosis, because it's so hard.  Right now I have to keep trying to find a doctor and a Pshyc for my generalized enxiety.  My Rheumy said that she believes that is killing me, because it's so out of control right now.  Who has the time with your school and my nearly full time job and family to do al that we need to do to feel good.

We have no choice, but to keep trying and keep going.  I know how bad it is at times.  You did me a world of good by hearing your story, because I too suffer from that tingle thing and even my mouth and my nose flickered or tingled.  It's so strange.

I'm going on and on.  Hang in there and don't give up.  ~Tricia


Fibromyalgia (DX'd Dec 07) ~ Generlized Anxiety ~ Migraines ~ IBS ~ Asthma ~ Allergies
Cymbalta   Topamax   Claritin   Tylenol   Ibuprophen


libertykitty
Regular Member


Date Joined Oct 2008
Total Posts : 111
   Posted 11/2/2008 10:00 PM (GMT -7)   
I know how you feel about having to choose between school and health. I'm 20 and halfway through the semester I decided I couldn't handle it and have had to withdraw. But I fully intend to go back in the spring. I have a list of different doctors I want to go to while I'm home so that I will at least be able to say I tried, even if I go back in the Spring and nothing has changed.

Sometimes you do have to choose, and it was an unimaginably difficult choice for me to make. But I hope that while I am home I can accomplish what I couldn't while I was away at school - I can go to doctors, get massages or acupuncture, walk the dog, and hopefully recover some of the basic functions that have become really hard.

I wish you the best of luck in finding someone who will listen to you. I'm fighting the same battle.

-Sandi
Diagnosed with arachnoid cysts February 2002, fibromyalgia February 2008.

I think I should stop getting diagnostics done in February...


Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 11/3/2008 12:10 AM (GMT -7)   
Leeriesann, I love your sense of humor.  In spite all of that mess, you managed the *blank stare* - I'm sorry, but I don't sign with my feet.  Sometimes you wonder about people, huh?
 
Sue

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 11/3/2008 5:12 AM (GMT -7)   

Lee. the tingling could be fibromyalgia.  I get that in my hands sometimes.  I'm not sure what causes it but I think it's because our muscles, tendons, and ligaments are so taut that they can pinch nerves or it could be neurological from fibro.  I'm just guessing here.  eyes

Do you suffer from anxiety?  That, along with the bad fog could maybe have caused that incident in the hallway.  You were so upset and crying to begin with and if you threw anxiety in there that could have made you feel the way you felt.  Again, I'm guessing.  I've never had that happen to me.  But, I have been driving to a store and honestly couldn't remember how to get there.  I tried to think but it was like a blank page up there (brain)!  This went on for a minute or two and then I knew exactly where to go.  It is frightening when things like that happen.

I hope you have a much better day today.

Sherrine 


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Jokat
Regular Member


Date Joined Feb 2008
Total Posts : 278
   Posted 11/3/2008 6:34 AM (GMT -7)   
Wow. I wish everybody the best of luck....
 
Speaking as a full-time student and Full-time Area Supervisor for a company....
 
My fog was bad while on the pain relievers and other meds like Lyrica. I gave up all of those meds with the exception of once a day Cymbalta and half of a trazadone at night to help me sleep.
 
I do not think the pain is much worse or the symptoms any more wide spread; However the fog is minimal at best and I have not looked back. I truly believe that the medications we are using to "help" our FM are actually contributing quite a bit to the fog.
I would rather live with the pain and remember where I parked my car! :)
JoKat
 
Fibro is a life sentence, but not a death sentence.
Fibro since 2005


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 11/3/2008 7:55 AM (GMT -7)   
Hi Leerie-
 
That would have been scary not recognizing someone you know- I have not had that happen to me, but the "fog" can do some scary things. Last week the fog was so bad, I couldn't even process a thought in my head! Also, get a new DR.!! 5 minutes is not long enough!! Having a good Dr. makes a huge difference! 
 
I too have tingling in my feet, hands, lip and face. Try not to let it upset you. I also get numbness. I did not have any of this till I got fibro and all my tests come back normal. If you get the tingling in your feet, try to get off of them and it will go away. If I get it in my hands, I stop and just rest them also, even if it is short while.
 
Let us know how you are doing. GamJill
 
 
 
 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
 
Zoloft, Tylenol 4000 mg., Darvocet  


Leeriesan
Regular Member


Date Joined Oct 2008
Total Posts : 90
   Posted 11/3/2008 8:52 AM (GMT -7)   
Thanks everybody for your responses - Sherrine - yes, I do have generalized anxiety disorder and I was pretty anxious right then.

As for doctors, I think what's really hard about this is that I had a doctor - the doc that diagnosed me - that truly cared. She would sit and talk with me for as long as I wanted. I would be in her office for an hour if I wanted. She was so nice and wonderful and helpful. She was also furious with the stories I had of doctors in the past. I had started to blame myself for some of the things that had happened and the five years it took to diagnose me and she stopped me and said "no. don't even think about it. This is our job - not yours. It is our responsibility to recognize your pain" and so on - it upset her how doctors treat people with our disease. Then my mom moved to delaware and our insurance changed. It was better for me in a way because I didn't have to drive 6 hours to see a doctor which is what I had to do to see her - but sometimes I didn't mind - she was wonderful. I cried like a baby when she told me she thought I had fibro. But anyway - sometimes I think its harder because I had that wonderful doc and had to leave her and now have to go through it all over again now in a new place where I know none of the doctors and do it by myself without my mother's help.

Thanks for your responses.
~~Asthma, Reactive Airway Disease, Allergies (to nature), Fibromyalgia, Kidney Reflux Disease, Chronic Migraines (docs currently working on those), Generalized Anxiety Disorder, Depression, Restless Leg Syndrome, and a few others that remain undiagnosed because I don't feel like being on anymore medication than I am already on. ~~

~~ I'm 21 and trying to be optimistic~~


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 11/3/2008 9:04 AM (GMT -7)   
Leeriesan, I wish it wasn't so far for you to drive to the rheumy I found in Pekin. The two visits I have had with him has been great. I have told my GP that I will not deal with these docs that have a set amount of time to spend with a patient so don't send me to any.
 
Anxiety can have some strange symptoms and I'm sure you were having a lot of it in the hall. It would have been nice to have had a doc to listen to you about it.
 
I have chosen to take as little meds as possible for the fibro. I'm on more anti-depressants than anything but I was on them for anxiety before fibro. I do think the amitriptyline helps with the pain.
 
I do think nerves get trapped in the knots in our muscles that cause strange feelings like the tingling.
 
I hope things gets better for you soon, it has to be so hard trying to go to school and dealing with all of this.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


jhawkfan
Regular Member


Date Joined Oct 2008
Total Posts : 86
   Posted 11/3/2008 1:46 PM (GMT -7)   
I am always amazed and saddened by the treatment we get ny doctors. Leeriesan, I am 46 and have had the "fog" and the tingling in my roes and fingers. I went to 4 different doctors because I KNEW what I was being told was wrong. I was told that I had a disk that needed surgery in my neck, carpal tunnel and psyc problems just to name a few! I finally changed to a teaching hospital and went to a neuro surgeon that was highly spoken of by a doctor I DID respect. Because of the "fog", it took me a while, but I took wrote everything that has happened to me in the last 7-8 years leading up to my finale diagnoses by him. I had to use my calendar for alot of it which I write everything down on because my memory is not so good anymore. He is the one that put it all together.Restless Leg Syndrome,Spine problems,Chest pain,cravings for carbs,tonsillectomy,appendectomy ect... He put me in touch with the most amazing doctor named Michael McNett that specializes in Fibro at the Fibromyalgia treament centers of America here in Illinois. He put me on a no yeast diet along with Cymbalta and I have not only lost 50 pounds, but I do not live with the constant pain and "fog" anymore. I still have bad days when it is cold or it rains, but not like before. It is tolerable. I was at a very dark place before this and I never saw myself getting any better, so I just wanted you and eveyone else to know that there IS hope for us. We need to keep talking to each other and sharing what works and what doesn't. I get so angry when I hear about doctors that don't have a clue or treat you as if you are nuts. It is hard enough to deal with this disease without being called crazy. There are doctors that know about this disease. Alot of Fibro patients have Yeast overgrowth problems which attacks your whole body. If anyone else wants to know about this diet and the cooksbook my doctor gave me, let me know. I am also taking Nystain powder 3x per day for the yeast and supplements that helps this too. Take care, all of you and hang in there Leeriesan, I am glad you have a nice boyfriend. It helps to have someone that is there for you. We will always be there for you too!

sandelee
Regular Member


Date Joined Jun 2007
Total Posts : 56
   Posted 11/4/2008 11:22 PM (GMT -7)   
I read your post, jhawkfan & wanted to ask if a yeast overgrowth problem is detected by a blood test? Also, would you mind giving the name of the book you mentioned? Thank you.....~sande~

Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 11/5/2008 7:11 AM (GMT -7)   
I have wondered how they test for yeast overgrowth too Sande. I use to get a lot of yeast infections when I was younger.
 
Jhawk, what part of Illinois is this doc located???
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin

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