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Mazfire
Veteran Member


Date Joined Oct 2008
Total Posts : 1683
   Posted 11/3/2008 11:18 PM (GMT -7)   
im in so much pain today- im a high school teacher and couldnt lift my right arm to write on the board, i had the kids take notes from an overhead projector. its my arm, shoulder and neck on the right hand side, travelling down my back. im used to pain, strong pain, but i am soooo tender, its like someone beat me with a baseball bat and stretched my muscles in different directions. the strongest painkiller my docs will prescribe is panadeine forte or mersyndol forte, with 30mgs of codeine. its not enough, but when i ask for something different they treat me like a drug seeker. i cant get comfy in bed, i feel pummelled and beaten and stiff.
any suggestions are welcome
 
Maz XX
'He heals the broken hearted and binds up their wounds.' (Psalm 147:3)
Chronic Fatigue, Fibromyalgia, TMJ disorder, Endometriosis, Polycystic Ovaries, Chronic ear/nose/throat infections, Panic Disorder, Reactive Arthritis, Agoraphobia, Migraines, GERD, Anaemia, Sinusitis, Chronically perforated eardrums, Pinched Nerves, IBS, Tachycardia, Allergies, Insomnia, Trichotilomania, Glandular Fever, Bursitis, Encapsulitis, Seasonal Mood  Disorder, Mild OCD.
Meds: Zoloft 150mg. Xanax 4mg. Nexium. Celebrex. Mobic. Panadeine Forte. Digesic.
Multiple surgeries- I bear the scars of my poor physical health.
Age:28. First diagnosed at 14. Proud Aussie. XX.
 
 


Green Grove
Veteran Member


Date Joined Oct 2008
Total Posts : 2424
   Posted 11/3/2008 11:36 PM (GMT -7)   
Oh, Maz. . .

I'm so sorry you are hurting so bad:( The only suggestion I have is a hot bath, and do some relaxation/yoga type of meditation. You can search those keywords with free and will find some nice stuff to listen to or dowload. I hope you get to feeling better. It is crazy that you can not get more pain relieving meds. . . to treat an educator like a drug seeker is nuts when the doc knows what you are going through. Anyway you'll be in my prayers tonight.
Much Love, Hugs, Peace & Comfort :)
Sam
 
God Bless Each & Every One Of You :)


Mazfire
Veteran Member


Date Joined Oct 2008
Total Posts : 1683
   Posted 11/3/2008 11:46 PM (GMT -7)   

thankyou Sam, i really appreciate it. because im on Xanax which is highly addictive, doctors are hesitant to give me anything stronger which is unfair, because sometimes codeine is not enough, and i find myself taking 4-6 in one go, trying to relieve the pain.

i will use heat packs in bed tonight, but i had to get my mum to help me wash my hair cos i cant lift my arms over my head (shes a nurse, and very helpful). im 28 and i feel like an invalid. i work a 4 day week, i get wednesdays off, so at least tomorrow i can try and rest up and take care of myself. i love teaching and i dont want my students to miss out just because my body is failing me.

God bless, Maz XX


'He heals the broken hearted and binds up their wounds.' (Psalm 147:3)
Chronic Fatigue, Fibromyalgia, TMJ disorder, Endometriosis, Polycystic Ovaries, Chronic ear/nose/throat infections, Panic Disorder, Reactive Arthritis, Agoraphobia, Migraines, GERD, Anaemia, Sinusitis, Chronically perforated eardrums, Pinched Nerves, IBS, Tachycardia, Allergies, Insomnia, Trichotilomania, Glandular Fever, Bursitis, Encapsulitis, Seasonal Mood  Disorder, Mild OCD.
Meds: Zoloft 150mg. Xanax 4mg. Nexium. Celebrex. Mobic. Panadeine Forte. Digesic.
Multiple surgeries- I bear the scars of my poor physical health.
Age:28. First diagnosed at 14. Proud Aussie. XX.
 
 


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 11/4/2008 5:44 AM (GMT -7)   
Have you tried the stretching exercises on Fibro 101?  When I'm in a lot of pain like that I will stretch the muscles and that seems to help me.  The last thing I would do would be not to use the affected area.  The stretching helps loosen up the tight muscles so they work better for you.  I know how difficult that is with teaching but, if you felt you were stiffening up, perhaps step out in the hall and stretch your muscles.  
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Mazfire
Veteran Member


Date Joined Oct 2008
Total Posts : 1683
   Posted 11/4/2008 3:56 PM (GMT -7)   

i cant stretch- its like my muscles are on fire. normally thats the first thing i would do, but this time, its like my shoulder, neck and upper right back are burning, like they have been wrenched out of place. my shoulder feels like its been yanked out of its socket. didnt get much sleep last night. this is easily the worst muscular pain i have experienced. i dont know what to do. ive made an appointment with my doctor, but cant get in until next monday.

its just so incredibly painful, tender when touched, feeling bruised.


'He heals the broken hearted and binds up their wounds.' (Psalm 147:3)
Chronic Fatigue, Fibromyalgia, TMJ disorder, Endometriosis, Polycystic Ovaries, Chronic ear/nose/throat infections, Panic Disorder, Reactive Arthritis, Agoraphobia, Migraines, GERD, Anaemia, Sinusitis, Chronically perforated eardrums, Pinched Nerves, IBS, Tachycardia, Allergies, Insomnia, Trichotilomania, Glandular Fever, Bursitis, Encapsulitis, Seasonal Mood  Disorder, Mild OCD.
Meds: Zoloft 150mg. Xanax 4mg. Nexium. Celebrex. Mobic. Panadeine Forte. Digesic.
Multiple surgeries- I bear the scars of my poor physical health.
Age:28. First diagnosed at 14. Proud Aussie. XX.
 
 


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 11/4/2008 4:11 PM (GMT -7)   
I see you take Celebrex.  Can you take Tylenol, too?  I take both ibuprofen and Tylenol and that keeps it under control.  Some days I'm really bad no matter what I take. 
 
Try a hot shower.  Do you have a Bed Buddy or a rice bag?  If you don't, try and get one.  Meanwhile, take a tube sock, fill if 2/3 full of long grain raw rice and tie a knot at the end.  You can microwave this and it will give off moist heat. 
 
I wish I could help you more.  We have these horrible times with fibro but it does pass.  This is not a permanent situation you are having.  I have had horrible times and then good times.  Please let us know how you are doing.  I hope you can sleep better tonight.  You are in my prayers.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Mazfire
Veteran Member


Date Joined Oct 2008
Total Posts : 1683
   Posted 11/5/2008 3:34 AM (GMT -7)   

i had a warm bath with radox muscle salts, and it didnt help. im on prescription painkillers, plus celebrex and mobic, yet the pain is incresing and spreading. i cant lift my right arm, my shoulder seems frozen in place, and the pain shoots up my neck and down my spine- i have chest pain also, and its only the right side of my body that is affected. im at my wits end. im used to pain, but not on this level. normally when i have a flare up, its a gradual thing that builds and builds to major pain. this time, however, it came on suddenly with no warning- with my arm/shoulder all i can think of is raising my arm to write on the board in my classroom. maybe doing this day in and day out is a repetitive thing?  at this stage, i cant even lift my arm above head- at all.

im on panadeine forte (codeine) and digesic. this is the strongest meds they will give me. they are not even making a dent in the pain at the moment. im using heat packs (wheat bags) and topical anti-inflamms like voltaren gel but im getting no relief, and my sleep is fractured and fragmented as i cant get comfy in bed. my body feels like it is falling apart. im on Xanax for A/P and i hoped that might relax the muscles but it hasnt helped in that area at all.

im stressing because im never healthy- but this time, the pain is immobilsing me. (ive needed crutches in the past for bad hips and knees, but what do you do when its your upper torso thats affected?)

 

Goodnite, and God bless,

Maz XX


'He heals the broken hearted and binds up their wounds.' (Psalm 147:3)
Chronic Fatigue, Fibromyalgia, TMJ disorder, Endometriosis, Polycystic Ovaries, Chronic ear/nose/throat infections, Panic Disorder, Reactive Arthritis, Agoraphobia, Migraines, GERD, Anaemia, Sinusitis, Chronically perforated eardrums, Pinched Nerves, IBS, Tachycardia, Allergies, Insomnia, Trichotilomania, Glandular Fever, Bursitis, Encapsulitis, Seasonal Mood  Disorder, Mild OCD.
Meds: Zoloft 150mg. Xanax 4mg. Nexium. Celebrex. Mobic. Panadeine Forte. Digesic.
Multiple surgeries- I bear the scars of my poor physical health.
Age:28. First diagnosed at 14. Proud Aussie. XX.
 
 


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 11/5/2008 5:22 AM (GMT -7)   
Maz, I have shoulder and neck pain and also costochondritis and those are painful but not like what you are describing.  Did you twist wrong, lift something really heavy, etc.?  This almost sounds like a back injury to me.  I'm not a doctor but to have something like this come on suddenly and be THAT painful makes me wonder.  Maybe a muscle relaxer would help you.
 
I think I'd try calling the doctor again and see if there were some cancellations so you can get in earlier than Monday.  If all else fails, there is the emergency room.  I know I have to be on death's bed before I head there but the pain you are describing sounds excrutiating.
 
I have had lower back pain due to scoliosis and it is a horrible pain like that and it feels different than the fibromyalgia pain.  I could barely walk and had to sleep sitting up in a chair for over a year because, if I laid down, I couldn't get back up!  The nerves were being pinched and the pain was horrible.  I was put on Robaxin (a muscle relaxer) and it helped me a lot so perhaps that's all that you need.
 
I'm still praying for you and I hope you get some answers and some relief soon!
 
Sherrine 
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Mazfire
Veteran Member


Date Joined Oct 2008
Total Posts : 1683
   Posted 11/5/2008 5:54 PM (GMT -7)   
your prayers have worked- i woke up with a significant decrease in my pain. its still there, but its manageable at this stage. thankyou for your support-although my back/neck/shoulder is burning it has genuinely decreased.
thanks! XX
'He heals the broken hearted and binds up their wounds.' (Psalm 147:3)
Chronic Fatigue, Fibromyalgia, TMJ disorder, Endometriosis, Polycystic Ovaries, Chronic ear/nose/throat infections, Panic Disorder, Reactive Arthritis, Agoraphobia, Migraines, GERD, Anaemia, Sinusitis, Chronically perforated eardrums, Pinched Nerves, IBS, Tachycardia, Allergies, Insomnia, Trichotilomania, Glandular Fever, Bursitis, Encapsulitis, Seasonal Mood  Disorder, Mild OCD.
Meds: Zoloft 150mg. Xanax 4mg. Nexium. Celebrex. Mobic. Panadeine Forte. Digesic.
Multiple surgeries- I bear the scars of my poor physical health.
Age:28. First diagnosed at 14. Proud Aussie. XX.
 
 


Mazfire
Veteran Member


Date Joined Oct 2008
Total Posts : 1683
   Posted 11/5/2008 10:30 PM (GMT -7)   
and now its back... *sigh* shakehead
'He heals the broken hearted and binds up their wounds.' (Psalm 147:3)
Chronic Fatigue, Fibromyalgia, TMJ disorder, Endometriosis, Polycystic Ovaries, Chronic ear/nose/throat infections, Panic Disorder, Reactive Arthritis, Agoraphobia, Migraines, GERD, Anaemia, Sinusitis, Chronically perforated eardrums, Pinched Nerves, IBS, Tachycardia, Allergies, Insomnia, Trichotilomania, Glandular Fever, Bursitis, Encapsulitis, Seasonal Mood  Disorder, Mild OCD.
Meds: Zoloft 150mg. Xanax 4mg. Nexium. Celebrex. Mobic. Panadeine Forte. Digesic.
Multiple surgeries- I bear the scars of my poor physical health.
Age:28. First diagnosed at 14. Proud Aussie. XX.
 
 

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