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DangerMouse
New Member


Date Joined Nov 2007
Total Posts : 11
   Posted 11/5/2008 12:57 PM (GMT -7)   
Good afternoon,
 
I was recently diagnosed (like a couple days ago) with fibromyalgia from my rheumatologist.  I have been seeing him for a couple of years ever since I was diagnosed with Crohn's Disease.  I am actually on the healing well's crohn's blogs as well.  It may sound strange, but finding out I have fibromyalgia actually came as a bit of relief to me.  I have been trying to figure out why all these symptoms were occurring and was beginning to think that none of them were related, that God just hated me and decided to curse me with every disease imaginable.  I was first diagnosed with anemia, then Crohn's, then periodic limb movement disorder (just like RLS but only at night), generalized anxiety disorder, chronic fatigue, obcessive compulsive disorder, inflammatory arthritis, light sensitivity, night sweats, chronic nightmares, possible narcolepsy, sleep apnea, some sort of REM disorder, dry eyes and mouth, a heart valve regurgitation thing, bladder incontinence,and the list goes on and on... At 27, i felt like I was 87 and was really starting to get pissed!   mad
 
My rheumatologist performed the 18 tension point test and I think I had pain in all but 2 of them!  I know that is not an absolute diganostic test, but with all my other ailments, and basically feeling bad all the time, he diagnosed me.  Is it weird to view this as a relief, that all of this pain and suffering is stemming from the same central nervous system dysfunction? 
 
Well, I dont really know what my goal is in writing other than that I want to say thank you for all your helpful and informative posts.  I have read several of the ones listed under Fibromyalgia 101, and am grateful for them.  I am also anxious to just be blessed with the ability to talk with other women who are just like me and feel like every day is a struggle.  I mean, sometimes I just feel like such a complainer!!!
 
Well, thank you for letting me vent a little.  I look forward to hearing from some of you and to continue communication in the future.
 
best,
Katie

smurf ******************************************************************

27 female

Baltimore, MD

Crohn's Disease, Fibromyalgia, Periodic Limb Movement Disorder, Generalized Anxiety Disorder, Sleep Apnea


Dx'd in May 2007 with CD.  Also have inflammatory arthritis in fingers and toes and SI joint.  1 Fissure.  Rx'd Pentasa (4g), Sulfasalazine (2g), also on Zoloft (75mg) for depression and Trazadone (200mg) as a sleep aid.  Rheumy considering putting me on Remicade in January 2008. 


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17095
   Posted 11/5/2008 1:09 PM (GMT -7)   
Hi, Katie, and welcome!  You have come to a good place to get your questions answered and also get a lot of support. We have wonderful people on this forum that have good ideas on how to live a full and enjoyable life with fibro.  The bonus is that we REALLY do care about each other!  So welcome!  We love getting new members to our fibro family.
 
I have Crohn's too and it used to be my main health concern.  Now it's the fibromyalgia.  But, I have learned how to control the pain and, sometimes, ignore it so I can live my life the way I want to.  A positive attitude and a good sense of humor, especially with the fibrofog, is very beneficial. 
 
I'm glad you found the Fibro 101 thread.  There is a lot of info on that.  Check out the link about the malic acid/magnesium supplements.  I started taking these last December and they have really helped me.  They don't work for everyone but it's worth a shot to help get some relief from pain and fatigue.  These don't take away the pain but it has lessened it for me.  Read all about them in that link and see what you think.
 
Hot showers and moist heat help with fibro, too.  Many use Bed Buddies that  you heat in the microwave that give off moist heat.  I saw some in Walgreens but I'm sure they are sold elsewhere, too.  Gentle stretching exercises found in the Fibro 101 thread are really good, too.  You need to keep moving with fibro.  If you sit or lay too long you will be stiff as a board and the pain will be worse.  Walking is a good exercise, along with water exercises if you have access to a pool.
 
Meanwhile, read back posts and ask questions.  That's what we are here for!  I'm so glad that you joined in and I hope to hear more from you soon.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Green Grove
Veteran Member


Date Joined Oct 2008
Total Posts : 2424
   Posted 11/5/2008 2:04 PM (GMT -7)   
Hi, Katie :) Nice to meet you. You will meet many nice people on this forum:)
Much Love, Hugs, Peace & Comfort :)
Sam
 
God Bless Each & Every One Of You :)


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40574
   Posted 11/5/2008 2:28 PM (GMT -7)   
Hi Katie,

I am so happy that you have come to the fibro forum. I think I would like to reinforce what Sherrine said, KEEP MOVING. If you stop, you get so stiff and a type of rigamortis (sp) will set into your muscles.

I am sure that you will find this a very informative forum. There is always somebody who can relate to you also.

Keep posting,

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


DangerMouse
New Member


Date Joined Nov 2007
Total Posts : 11
   Posted 11/13/2008 5:46 PM (GMT 0)   

Well thank you all for your encouraging remarks.  I am very blessed to know that this site exists and I can just throw questions, comments, concerns to you all and get some real, immediate feedback.  That is just wonderful.

So without any further ado, I am posting another question in today's post entitled, "Fibromyalgia and Physical Therapy".  Please look there and send any responses my way.

Best,
Katie


27 female
Baltimore, MD
Dx'd in May 2007 with Crohn's Disease.  Dx'd in Nov 2008 with Fibromyalgia.  Dx'd in Jan 2008 with Periodic Limb Movement Disorder.  Also have inflammatory arthritis in fingers and toes and SI joint.  1 Fissure.  Rx'd Pentasa (4g), Sulfasalazine (2g), also on Zoloft (75mg) for depression Mirapex for PLMD and Trazadone (200mg) as a sleep aid.  


springfling
Veteran Member


Date Joined Mar 2008
Total Posts : 519
   Posted 11/13/2008 11:09 AM (GMT -7)   

Katie,

Welcome to the forum! This is a great place & has helped me so much in the last year. I hope you enjoy your time here!

I also was relieved to finally get diagnosed. After years of pain and so many different symptoms I was beginning to think I would never find out what my problem was. So, I know how you feel.

You will find the people here to be very caring & so helpful. I've learned that I can ask anything and someone will always be along to help me out. Feel free to vent anytime! We all need to do that every once in awhile!! Hugs!


Never regret something that made you smile!

Fibromyalgia*Osteoarthritis*Sleep Apnea*Depression*Fatigue*Allergy/Sinus


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 11/13/2008 11:20 AM (GMT -7)   
Hi Katie and welcome. This is a great forum and so helpful don't know what I would do without it.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin

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