Physical therapy made me worse too. Like the previous post, they thought I had bursitis all over. The therapist did some sort of massage on my ankle and within a few hours it felt like it was broke...it hurt really bad. The pain went away eventually. I went back to PT the next day and she told me it was sprained - weird. It wasn't - it was fibromyalgia moving around, but I didn't know that at the time.
Also, I once got a massage in 2005. about an hour after the massage, my hip starting giving out while climbing stairs. It still does this.
In both instances, the person massaging did not know that I had Fibromyalgia. There is probably a specific way to massage a FM patient. I'm just scared to try again. I would think that a good therapist, trained to treat FM patients, would probably help you - just make sure they are trained for fibromyalgia.
PT was a great help to me. She gave me exercises to strengthen my back and shoulder muscles (all my pain was there) and she used this heat/pulsating muscle machine that I LOVED. I felt great for a few months, but now my back pain/burning is back. I just got out of the hospital yesterday for GRED. I thought it was my heart...very stressful night in the hospital. My fibro was acting up as well. AFter speaking to the DR on the floor and the nurse, I've decided to see a Rhumey. I think this is the best move at this point.
I agree that you need to find a massage professional that knows how to work on a person w/fibro. A deep tissue massage will tear you up for weeks!Good luck and I hope you feel better.
Hi Julie and Welcome-
I see a Physical Therapist that is trained to treat fibro patients and yours sounds alot like mine. She has had me use the treadmill, cross trainer, taught me gentle yoga exercises, some pilates, deep breathing and myofascial release massage. I feel that PT has helped, but I did feel worse before I felt better. I almost stopped going numerous times! She has also loosened up my neck and upper shoulders.
I have noticed that there may be a delayed reaction after PT- where you might not feel any extra pain for a day or two afterwards.
Let us know how it is going- GamJill