Has Physical Therapy helped/hurt anyone? What is your experience?

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Julie1014
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Date Joined Oct 2005
Total Posts : 1245
   Posted 11/7/2008 4:02 AM (GMT -7)   
My Rheumatologist ordered Physical Therapy, and I start on Monday.  I was wondering what to expect.  Did it help you or make you worse?  Do you have any suggestions?  I know all PT's have different ways of treating..... Any recommendations that I could offer my PT would be greatly appreciated. :-)   Blessings, Julie
Diagnosed with Crohn's March 2006, Fibromyalgia November 2008
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 12 mg, Miralax as needed, Prevacid 30mg, Vit B12, Slow-FE (Iron), Hydrocortisone enemas as needed
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


jhawkfan
Regular Member


Date Joined Oct 2008
Total Posts : 86
   Posted 11/7/2008 7:59 PM (GMT -7)   
Physical therapy made me worse, but I had not been diagnosed yet with Fibromyalgia, so they were treating me for tennis elbows. I was using weights and they were trying to strengthen my arms! Just make sure they know you have Fibro and they will adjust your therapy accordingly. They have all kind of heat and massage that will be helpful. As much as we would like to not move sometimes, it is good to learn some streching and "safe"excercises. I walk and take yoga which has helped alot. Good luck to you! Sheri

Oregon Mom
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Date Joined Nov 2008
Total Posts : 13
   Posted 11/8/2008 12:29 AM (GMT -7)   

Physical therapy made me worse too.  Like the previous post, they thought I had bursitis all over.  The therapist did some sort of massage on my ankle and within a few hours it felt like it was broke...it hurt really bad.  The pain went away eventually.  I went back to PT the next day and she told me it was sprained - weird.  It wasn't - it was fibromyalgia moving around, but I didn't know that at the time. 

Also, I once got a massage in 2005.  about an hour after the massage, my hip starting giving out while climbing stairs.  It still does this.

In both instances, the person massaging did not know that I had Fibromyalgia.  There is probably a specific way to massage a FM patient.  I'm just scared to try again.  I would think that a good therapist, trained to treat FM patients, would probably help you - just make sure they are trained for fibromyalgia.


Medical Conditions:
Type 1 Diabetes - diagnosed 1982
Fibromyalgia - diagnosed 2006
IBS-Endometriosis
 
 


Julie1014
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Date Joined Oct 2005
Total Posts : 1245
   Posted 11/8/2008 4:08 AM (GMT -7)   
Thank you so much for the suggestions. Blessings, Julie:-)
Diagnosed with Crohn's March 2006, Fibromyalgia November 2008
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 12 mg, Miralax as needed, Prevacid 30mg, Vit B12, Slow-FE (Iron), Hydrocortisone enemas as needed
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


P-Fit
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Date Joined Jun 2008
Total Posts : 419
   Posted 11/9/2008 7:37 PM (GMT -7)   

PT was a great help to me. She gave me exercises to strengthen my back and shoulder muscles (all my pain was there) and she used this heat/pulsating muscle machine that I LOVED. I felt great for a few months, but now my back pain/burning is back. I just got out of the hospital yesterday for GRED. I thought it was my heart...very stressful night in the hospital. My fibro was acting up as well. AFter speaking to the DR on the floor and the nurse, I've decided to see a Rhumey. I think this is the best move at this point.

I agree that you need to find a massage professional that knows how to work on a person w/fibro. A deep tissue massage will tear you up for weeks!Good luck and I hope you feel better.



Dee-38yrs old 
Diagnosed with UC in 2004-PTSD/Panic Disorder/Depression in 2007 & Fibromyalgia 2008
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 Fioricet-Migraines
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Statgeek
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Date Joined Jul 2008
Total Posts : 1495
   Posted 11/10/2008 7:24 PM (GMT -7)   
Yes, sometimes. The traction unit made me want to puke. Lying on a foam cylander (sp?) thingy hurt too. So if they have you do something that hurts, don't do it. They don't want to make you worse, but will not know unless you tell them.
Good luck,
Sue

libertykitty
Regular Member


Date Joined Oct 2008
Total Posts : 111
   Posted 11/10/2008 9:40 PM (GMT -7)   
My PT was great. I had to stop going after seeing him 3 times a week for 6 weeks because he is down by my college in Maryland and I'm home in New Jersey for the semester. He had me doing very mild exercises meant to build up core strength, flexibility, and endurance. When I left he gave me printouts about all the exercises he had taught me, and told me how to keep doing them on my own. I haven't noticed a difference in my fibro, but I am stronger and more able to carry/lift things. I am less likely to get a flare from doing hard work, but my usual daily aches are no different.

-Sandi
Diagnosed with arachnoid cysts February 2002, fibromyalgia February 2008.
No meds right now, just Vitamin D supplements and ibuprofen for headaches.

Traveling to the Cleveland Clinic November 19th!!! Maybe this will finally be a good neurologist!


Julie1014
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Date Joined Oct 2005
Total Posts : 1245
   Posted 11/11/2008 4:06 AM (GMT -7)   
Thank you for all of the feedback! I had my PT evaluation yesterday. I start the actual therapy tomorrow. I will go 3 times a week. Her plan is gentle stretching exercises, along with using their treadmill, bike, and arm bike. She said exercise is the best thing for Fibro. It should be interesting, considering I'm walking around like I'm 90 years old, lol! She said we will go very slow and only to my tolerance. I will let you know how things go..... Blessings, Julie:-)
Diagnosed with Crohn's March 2006, Fibromyalgia November 2008
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 12 mg, Miralax as needed, Prevacid 30mg, Vit B12, Slow-FE (Iron), Hydrocortisone enemas as needed
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


solar powered
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Date Joined Nov 2007
Total Posts : 538
   Posted 11/11/2008 8:28 AM (GMT -7)   
Hi Julie. I wanted to wish you good luck with PT. I also wanted to remind you that the strange thing about healing is that is often times hurts, maybe even worse, before it gets better. I guess what I'm trying to say is to give it time but be completely honest with the therapist about your levels of pain so they can adjust things as needed. Right now I'm working with a chiro who is a rehab specialist- I think of him as a PT on steroids (because his education, experience, etc is so much more). Anyway there have been many times when the treatment hurt like a bugger but I hung in there and have seen much improvement since I started with him in June. Well worth the temporary extra pain. Lisa

curlyq83
New Member


Date Joined Oct 2008
Total Posts : 5
   Posted 11/12/2008 7:37 AM (GMT -7)   
Hi! I'm 25 years old and in PT right now. I have fibro and a spinal protrusion in my back, so my PT is helping me to build my core muscles. I was unsure about it at first, but it seems to be working. They put 10 minutes on heat on my back, then about 10 minutes of light massage and then gentle exercises. I'm supposed to go for 4-6 weeks, and I've done about 3 1/2. Make sure to tell them if anything causes you to flare up. One exercise did that to me, so they stopped having me do it.

Good luck!

Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 11/12/2008 10:11 AM (GMT -7)   
Thank you for the well wishes! My first appointment is today at 4:00pm. I'll let you know how it goes..... Blessings, Julie:-)
Diagnosed with Crohn's March 2006, Fibromyalgia November 2008
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 12 mg, Miralax as needed, Prevacid 30mg, Vit B12, Slow-FE (Iron), Hydrocortisone enemas as needed
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


GamJill
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Date Joined Jun 2008
Total Posts : 1279
   Posted 11/12/2008 5:36 PM (GMT -7)   

Hi Julie and Welcome-

I see a Physical Therapist that is trained to treat fibro patients and yours sounds alot like mine. She has had me use the treadmill, cross trainer, taught me gentle yoga exercises, some pilates, deep breathing and myofascial release massage. I feel that PT has helped, but I did feel worse before I felt better. I almost stopped going numerous times! She has also loosened up my neck and upper shoulders. 

I have noticed that there may be a delayed reaction after PT- where you might not feel any extra pain for a day or two afterwards.

Let us know how it is going- GamJill


 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
 
Zoloft, Tylenol 4000 mg., Darvocet  


Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 11/13/2008 3:59 AM (GMT -7)   
Well, my PT session went very well. I am a little sore this morning from muscles I haven't used in a long time. I'll see how I feel as the day progresses. My next appointment is Friday. She had me start with 10 minutes on a leg bike, 10 minutes on an arm bike, arm exercises with a band, wall exercises with a big ball, etc. Everything was extremely gentle and slow. So, we'll wait and see..... I do wish she would incorporate some type of massage, but she hasn't mentioned it..... Blessings, Julie:-)
Diagnosed with Crohn's March 2006, Fibromyalgia November 2008
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 12 mg, Miralax as needed, Prevacid 30mg, Vit B12, Slow-FE (Iron), Hydrocortisone enemas as needed
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 11/13/2008 8:21 AM (GMT -7)   
Julie,
As long as you have the benefits of her knowledge, start picking her brain about ways to 'self treat' when your PT sessions run out. My oldest daughter did this with her TMJ. The therapist taught her how the muscles in her face had to be massaged when it was in a flare and now she can help herself.

My other daughter is a PTA, and also has fibro. One of her favorite things is to help patients find ways to cope with muscle/bone problems when they are no longer having PT. She taught me how to make a roll out of two towels and lay on it for a passive stretch of my spinal muscles. Really helps my back and my costocondochondritis and I can do it while traveling with hotel towels! Plus, it's free! tongue
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


Marlee2
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Date Joined Aug 2007
Total Posts : 6067
   Posted 11/13/2008 10:28 AM (GMT -7)   
Where do you put the two towels Jeannie???
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
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Jeannie143
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Date Joined Apr 2004
Total Posts : 6056
   Posted 11/13/2008 12:07 PM (GMT -7)   
Marlee,
Take two bath towels and roll them verrrrry tightly from one short end so that you have a roll about the size of a French baguette. I then secure this with a few rubber bands. If you have a firm mattress and have difficulty getting up you can do this stretch at the foot of your bed. I get more relief using the living room floor. Place a pillow or two nearby for easy access after the stretch. You're going to lay down on top of the towel roll with it aligned along your spine.

First sit down with the towel roll behind you at the base of your spine. Lay down so that the towel roll is centered along your spine from your sacrum to the base of your skull. Let your head rest on the floor and gently relax into position so that your shoulder blades rest on the floor as well. You can raise your knees if it is more comfortable. While in this passive stretch you should look from the side like a Marine standing at attention with your head back and shoulders back, only lying down.

The first thirty seconds or so your muscles will protest a bit but as you relax and let gravity take over you will find it's ok. The first few times that you do this two to three minutes is about all you can handle if your muscles are tight. I can go for 10 minutes now and find it to be pure heaven! During the stretch you can cross your arms over your chest, stretch them out to the side, whatever feels best. When you have finished the stretch, gently roll to your side and put a pillow under your head for a minute or so and close your eyes. If you're on the floor gently get to your hands and knees and crawl to the couch, climb on the couch and get up.

This stretch sort of realigns your spine a bit while it gently stretches those tight little muscles along your back where the ribs attach. Makes me feel wonderful!
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 11/13/2008 12:35 PM (GMT -7)   
Jeannie, I ended my PT session with this roll technique! It was a bolster. At first I wasn't sure if I was comfortable. But, my PT told me to take nice deep breaths and relax into it. I loved it! I am going to make my own now with your suggestion. Thank you! Blessings, Julie
Diagnosed with Crohn's March 2006, Fibromyalgia November 2008
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 12 mg, Miralax as needed, Prevacid 30mg, Vit B12, Slow-FE (Iron), Hydrocortisone enemas as needed
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 

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