Hi, SickInCt, and welcome to the fibromyalgia forum! No, I haven't had that experience. I can't remember not being in pain. But, I have gone on and had a good and fulfilling life with fibro!
Staying in bed like you do can be helping to make you so miserable. You need to keep moving with fibromyalgia. You need to do light exercises like walking or swimming. If you sit or lay too much you will be stiff as a board and your pain will be worse. Please start getting up and moving. I know it will hurt, but the more you do it the less it will hurt and the less pain you will have.
You need to learn how to pace yourself. You can't do things in the same timeframe that you used to but you still can get things done. I'm working on steam cleaning my carpeting. I did the family room on Monday, the dining room and living room today, and I will do the master bedroom tomorrow. If I tried to do it all in one day I would be down for at least a week. But, by pacing myself, I'm fine. I actually just came back from a 3/4 mile walk and I've already done my steam cleaning for the day. The exercise gets the blood flowing in those muscles and it does make you feel better. I'm not saying join a gym. I know I couldn't do that but I can walk and take care of my home if I pace myself.
I use ibuprofen and Tylenol for pain and I started using malic acid/magnesium for pain and fatigue and it really has helped me. It doesn't help everyone but it isn't that expensive and it might help you.
Check out the Fibro 101 thread...the second thread on the forum. There is a link all about the malic acid in there. Read it and see what you think. There are also links to other good info. One link is for great stretching exercises. These really do help and they are done sitting down. This could help get you started on the road to walking and enjoying your life.
Read back posts and don't hesitate to ask questions. We are here to help you. I'm so glad you joined in and I hope to hear more from you soon.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7