3 day remission...

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Regular Member

Date Joined Nov 2008
Total Posts : 157
   Posted 11/12/2008 1:07 PM (GMT -6)   
So I have had this "Fibromyalgia, CFS, Lyme" thing for 6 years. I am on disability for it and lead a semi sheltered life because of it. For 6 years it has been progressively getting worse. I now have heart problems and bad tremors, I am only 26. I thought I would post an experience I had a few months back. The day after I started ambian I went into 100% remission, POOF!! It's hard to imagine but I just woke up one morning and there was no pain, there was no fatigue, there was nothing. This was not simply just having a good day this was POOF GONE! Nothing changed in my life except for the use of ambian. I felt so good that at 7 in the morning I went out for a walk!! No pain meds even!! Normally I am in bed until late afternoon. This lasted 3 days, after 3 days I was back to my miserable self with pain, twitching, fatigue exc. sad Just like a light switch.

Anyone else had a similar experience?

Veteran Member

Date Joined Apr 2008
Total Posts : 605
   Posted 11/12/2008 1:55 PM (GMT -6)   
HI Sick,
Ya that happened to me when I started Lyrica.  The morning after I had started it I woke up early with tons of energy and most of my pain was gone.  The only pain that remained was from a torn hip joint.  This lasted for about 5 days and then slowly the pain returned along with the fatigue.  I still had the worst of leg and foot pain gone though so I continued on the Lyrica.  I noticed that with each time I upped the Lyrica dose that I had awesome pain relief for about 5 days,not like the 1st time but still pretty good and now that I am topped out on what my insurance will pay on the Lyrica things are back to whats normal for me.  I take 600 mg of Lyrica a day but my doctor said I could go as high as 900 mg but my insurance wont pay for over 600 and I cant afford to buy the extra and the drup company wont help because I already am on a high dose with it paid for.  Ya I thought at 1st that the Lyrica was some sort of miracle drug but it is still a good drug for me at least.  My leg and foot pain had got so bad that I couldnt stand it anymore and at least that pain is gone.  There have been a few nights that I started getting some of the coldness and tingling that was the start of that pain and it terrified me to think it was coming back but then it left as fast as it came.
Mom of one gramma to 4 lover to One
Fibromyalgia,IBS,Stroke x2,endometriosis,Diabetes type 2,neuropathic pain,nerve damage due to tailbone removel,nerve damage due to fractured back,deppresion,high blood pressure,severe nausea,atrophy,chronic pain,nerve damage due to botched bladder surgery,torn hip joint,hypoglycymic
Norco(double strength vicodin) 80 to 100 mg @ day
Ms Contin(morphine) 45 mg @ day,Lyrica 600mg @ day

Forum Moderator

Date Joined Apr 2005
Total Posts : 17057
   Posted 11/12/2008 2:18 PM (GMT -6)   
Hi, SickInCt, and welcome to the fibromyalgia forum!  No, I haven't had that experience.  I can't remember not being in pain.  But, I have gone on and had a good and fulfilling life with fibro!
Staying in bed like you do can be helping to make you so miserable.  You need to keep moving with fibromyalgia.  You need to do light exercises like walking or swimming.  If you sit or lay too much you will be stiff as a board and your pain will be worse.  Please start getting up and moving.  I know it will hurt, but the more  you do it the less it will hurt and the less pain you will have.
You need to learn how to pace yourself.  You can't do things in the same timeframe that you used to but you still can get things done.  I'm working on steam cleaning my carpeting.  I did the family room on Monday, the dining room and living room today, and I will do the master bedroom tomorrow.  If I tried to do it all in one day I would be down for at least a week.  But, by pacing myself, I'm fine.  I actually just came back from a 3/4 mile walk and I've already done my steam cleaning for the day.  The exercise gets the blood flowing in those muscles and it does make you feel better.  I'm not saying join a gym.  I know I couldn't do that but I can walk and take care of my home if I pace myself.
I use ibuprofen and Tylenol for pain and I started using malic acid/magnesium for pain and fatigue and it really has helped me.  It doesn't help everyone but it isn't that expensive and it might help you. 
Check out the Fibro 101 thread...the second thread on the forum.  There is a link all about the malic acid in there.  Read it and see what you think.  There are also links to other good info.  One link is for great stretching exercises.  These really do help and they are done sitting down.  This could help get you started on the road to walking and enjoying your life.
Read back posts and don't hesitate to ask questions.  We are here to help you.  I'm so glad you joined in and I hope to hear more from you soon.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Regular Member

Date Joined Nov 2008
Total Posts : 157
   Posted 11/12/2008 6:40 PM (GMT -6)   
thanks for all the replys. I have exhausted myself doing medical research for the past few years on my condition. I almost feel like im going to medical school online. IF/When I get better I want to be a Dr to help all the people that are suffering find some relief. Sticking to standard protocol is not always the right thing as many of us know. Alternative treatments can work just as well or better then standard medicine. I have found Rifle to be very helpful in bringing on a good herx reaction. After I recover I generally feel better. I have done 2 treatments of Rife, the first I got VERY sick the second not as bad but I still had a reaction and im looking forward to a third. They identified spirochete bacteria in my red blood cells under a microscope, I was there to see hundreds of them swiming out of my cells. I hope I nuke every last one of them with the Rife!!!

Veteran Member

Date Joined Jun 2008
Total Posts : 1279
   Posted 11/12/2008 11:04 PM (GMT -6)   

Hi SickInCt and Welcome-

Was interesting to read about the pain going away after starting the Ambien and than it coming back. When I watch my granddog, I have to take antihistamines the whole time he is here because I'm allergic to him. I have noticed that my pain decreases when taking them. I would love to take the pills all the time but they get me too sleepy.



Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
Zoloft, Tylenol 4000 mg., Darvocet  

Veteran Member

Date Joined Jun 2006
Total Posts : 1156
   Posted 11/12/2008 11:23 PM (GMT -6)   
Darn, I felt the same way about Lyrica. those first five days were great. It is not so pain relieving now though. Sigh.

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