I'm so mad right now. I've been having some problems that wound me up in the ER the other night. (Terrible pain in my left lower side) I thought it was kidney stones, (had them before when I was 8 mos pregnant) but it wasn't and all tests showed nothing. My follow up was today with my general Dr who thinks it could be the onset of Shingles.
So my husband was telling my sister about it (he saw her in the store) and they were both saying that I have a low tolerence of pain!!!!
How the heck do they know or understand what my tolerance is with Fibromyalgia. I told him that they were both un-educated in Fibromyalgia and that it really bothers me when my family makes assumptions based on what they think about me. I know they love me but it just burns me up when I hear things like that or "Its all in your head". I love my family but then they wonder why I keep to myself....
Anyone else have to deal with this??
I really feel frustrated for you. This is a touchy subject for me, because my family has mixed reactions, but the truth is who could understand or truely believe what we experience if they haven't themself. I have to say I am with Sherrine about not bothering to get into it with people that can't understand, but on the other hand, it does hurt when family suggests that either they don't believe you or your over exagerating. That makes me angry. It's the lack of respect that Fibro has. When someone is diagnosed with MS, people believe, feel sorry, lend a hand, etc. It's just not ok and I'm sorry for all of us that have trouble fighting the stigma on top of doctors, meds, work and family.
I take my husband to all of my appointments. For one I don't remember things well, two he remembers things that I want to talk about, but mostly to help him understand how real it is. It has helped him a lot.
Never regret something that made you smile!