Fibromyalgia and Physical Therapy

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

DangerMouse
New Member


Date Joined Nov 2007
Total Posts : 11
   Posted 11/13/2008 10:50 AM (GMT -7)   
Hello everyone,
 
I just had a couple questions regarding your experience with physical therapy (PT) and fibromyalgia.  I was at the oral surgeon the other day who specializes in TMJ disorders, which I now have of course.  He was commenting to me as to how my muscles are so incredibly tight, I mean, he was almost speechless.  He suggested that I get PT massages and myofacial release one to two times a week for 5 to 7 weeks.  I was wondering if anyone out there has ever sought PT for relief from fibromyalgia and/or associated TMJ disorders.  If so, would you mind shedding some light on the subject?
 
Thanks!
 
 
27 female
Baltimore, MD
Dx'd in May 2007 with Crohn's Disease.  Dx'd in Nov 2008 with Fibromyalgia.  Dx'd in Jan 2008 with Periodic Limb Movement Disorder.  Also have inflammatory arthritis in fingers and toes and SI joint.  1 Fissure.  Rx'd Pentasa (4g), Sulfasalazine (2g), also on Zoloft (75mg) for depression Mirapex for PLMD and Trazadone (200mg) as a sleep aid.  


Tootiebug58
Regular Member


Date Joined Feb 2008
Total Posts : 378
   Posted 11/13/2008 11:35 AM (GMT -7)   

Hi

I attepted physical therapy and massage therapy, twice with both, and both times I was more miserable and in pain than before.  Both of these places said they understood fibromyalgia and were highly recommended.  I was told to drink tons of water two days before which I did.  After I came home, I had to literally crawl up the stairs and I didnt sleep for several nights.  For me, it was a bad experience.

My TMJ is so bad the dentist is at a loss as what to do.  The bite splint helps, but I use moist heat almost every day.  Never chew gum and when I yawn, I hold my hand under my jaw so I dont stretch my mouth open to much.

If you try physical therapy make sure they know how to treat fibro.

I wish you better luck then I had


Tootie
-------------------------------------------
anxiety/panic attacks...osteoporosis....Fibro
 xanax


Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 11/13/2008 12:12 PM (GMT -7)   
Mouse,
My daughter had PT for TMJ and it was extremely effective. The therapist also taught her how to "self massage" the jaw when it started to go out again. She also had the myofacial release done. If you have the insurance to do this I would strongly recommend it but I would also ask to be taught how to treat yourself. None of us can afford to do PT for the rest of our lives! turn
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


DangerMouse
New Member


Date Joined Nov 2007
Total Posts : 11
   Posted 11/13/2008 12:45 PM (GMT -7)   

Hmm...you really felt terrible for days after a massage?  It has been over a year since I have had one, but I dont remember it leaving me sore.  I will definitely make sure the PT knows about and how to treat Fibro. 

I am lucky to have a wonderful insurance plan through work that covers up to 100 PT visits per year, only having to pay the $10 copay.  I also get up to 30% off regular massages, so I think i am set as far as getting supplimentation for payment of treatments.  But having the time and the strength to actually make it to the appointments among feeling like crap, working, grad school, babysitting a couuple times a week, and finding time to eat, sleep, and shower, I have little time for anything else in my life. 

Well, I can only wait and see from this point.  My appointment is 8am tomorrow morning and I am anxious and a bit nervous.  I will be sure to report back to you all to let you know my experience and if I am going to continue with treatment or not.

 

 


27 female
Baltimore, MD
Dx'd in May 2007 with Crohn's Disease.  Dx'd in Nov 2008 with Fibromyalgia.  Dx'd in Jan 2008 with Periodic Limb Movement Disorder.  Also have inflammatory arthritis in fingers and toes and SI joint.  1 Fissure.  Rx'd Pentasa (4g), Sulfasalazine (2g), also on Zoloft (75mg) for depression Mirapex for PLMD and Trazadone (200mg) as a sleep aid.  


DangerMouse
New Member


Date Joined Nov 2007
Total Posts : 11
   Posted 11/16/2008 1:43 PM (GMT -7)   

Well, Friday seemed to go well.  I got a wonderful fibro-appropriate massage of the head, neck and shoulders and learned some really great stretches for that area.  Unfortunately, she is not a PT who specializes in TMJ.  I am going to continue with her until I find someone else who is even more specific.

Thanks everyone!


27 female
Baltimore, MD
Dx'd in May 2007 with Crohn's Disease.  Dx'd in Nov 2008 with Fibromyalgia.  Dx'd in Jan 2008 with Periodic Limb Movement Disorder.  Also have inflammatory arthritis in fingers and toes and SI joint.  1 Fissure.  Rx'd Pentasa (4g), Sulfasalazine (2g), also on Zoloft (75mg) for depression Mirapex for PLMD and Trazadone (200mg) as a sleep aid.  

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, December 07, 2016 5:14 PM (GMT -7)
There are a total of 2,734,355 posts in 301,205 threads.
View Active Threads


Who's Online
This forum has 151324 registered members. Please welcome our newest member, worldviews.
363 Guest(s), 10 Registered Member(s) are currently online.  Details
desert bound, Wanda1225, dismissed, Teamchris, holo100, Huddie, Suffering34, Hilander64, LiveJoy, RachelAvila


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer