very interesting...I think I have chillblains

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Date Joined Nov 2007
Total Posts : 346
   Posted 11/13/2008 8:30 PM (GMT -6)   
this is not completely fibro related...but I am wondering if anyone has had problems like this before....

so...not sure if anyone remembers, but last winter, I had some issues with my toes. they would get swollen, and splotchy, and itchy and hurt. I ended up seeing a doctor ( who I did not love) for the first time in years, paying out of pocket, becuase I could not figure out what this could be. it just so happened, that when I went to see him, my toes were not swollen...nice. he judged through the symptoms I described that I had reynauds.

well, the odd toe swelling is happening again. and this time, I must have typed the right thing into google...because I came up with pictures that looked just like my toes...beside the word chillblains. exactly whats going on with my feet. it makes sense I suppose, that it is common in people with reynauds.

I suppose I am just excited becuase after I year of wondering, I found out what the heck is going on with my feet!

has anyone else ever experienced this? it mentioned that other disease could make you predisposed to have this, like lupus, and I am wondering if its not just the reynauds that is making me suceptable ( oh my....sp?!) to this? maybe its a fibro thing too??

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Date Joined Apr 2005
Total Posts : 17061
   Posted 11/14/2008 7:52 AM (GMT -6)   
Kelly, I had never heard of this before.  Here is a link to the Mayo Clinic that discusses chilblains.  One site I read said that not getting enough sleep can help cause this, too, and we all know we don't get enough sleep!  Hope this helps.  I trust the Mayo Clinic sites.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
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Date Joined Jun 2008
Total Posts : 726
   Posted 11/14/2008 10:23 AM (GMT -6)   
It's really weird that you are talking about this, because yesterday my mom was looking at my feet and said, "you have chillblains."  LOL-I had no clue what she was talking about, so I just said, "No.  My feet are cold."  I had never heard of this chillblains word.  I figured it was another one of my mom's weird Midwestern words or something she made up (she makes up a lot of bizarre, silly words).  LOL-I never thought about her 40+ years as a nurse.  It couldn't be a medical term! wink
Anyway, she really didn't go into what causes it, but she said that it gives you "splotchy" skin when your feet (or other extremities) are cold.  I'll have to try to get more info out of her. yeah
FINALLY dxd on 06/13/08
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Zoloft & methadone (NOT for pain) for sanity-which doesn't help, BTW
Klonopin for anxiety (Guess what?  Doesn't help!)
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Regular Member

Date Joined Nov 2007
Total Posts : 346
   Posted 11/14/2008 12:29 PM (GMT -6)   
thanks for your responses! last year I was a little upset with the doctor for dismissing the swelling and itching, and not paying much attention to me in general. like fibro, it was exciting for me to actually put a name to the i can stop stressing about my toes falling off. Sherrine, thanks for the mayo clinic link.

I had heard the word chillblains from my grandmother...when I would wear sandals when it was cold she would always tell me I was going to get them...but I had NO idea what they were! now I do! it looks like it is caused in cold and humid climates...when the feet ( or other areas) are exposed to cold, and then after they are exposed to heat, the blood vessels do not react fast enough..something like this...and that causes the swelling.

I'll have to try as hard as possible to not let my feet get cold...but living in maine...I am not sure how possible that is! I'll have to buy some electric socks I guess ;)

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