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MarcieinOhio
Regular Member


Date Joined Jan 2006
Total Posts : 38
   Posted 11/17/2008 7:07 AM (GMT -7)   
I just read a book on Fibromyalgia.  It mentions Mirapex as a drug that works for people with Fibro and can actually heal your body and you can take back your life. Has anyone ever tried it?

bridgewitch
Regular Member


Date Joined Aug 2008
Total Posts : 26
   Posted 11/17/2008 7:41 AM (GMT -7)   
The side effects scared me off of trying it..I do not need help being woncky!!
To medicate or not to medicate of course is an intensely personal decision we all must make for ourselves in conjunction with advise from our PCP..I am just one of those anal people who wants to know ALL the issues, not just take the doc's word..but hey, I am also the person who got a smart phone and am learning that the dam thing is smarter than I am, so dont go by me!
Its NOT denial..Its selective reality!


donnaeil
Veteran Member


Date Joined Jun 2006
Total Posts : 1156
   Posted 11/17/2008 10:32 PM (GMT -7)   
Hmmm, I never heard of Mirapex actually healing fibro. I too am worried about it's side effects. I will wait until the trials are completed.

Donnaeil

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40590
   Posted 11/18/2008 7:21 AM (GMT -7)   
MIrapex is for restless leg syndrome. I tried it and it made me hallucinate. It was like I had bugs crawling on my legs. I carried them back to the pharmacy.

Hugs,Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


SheTiger68
Regular Member


Date Joined Nov 2008
Total Posts : 55
   Posted 11/18/2008 7:38 AM (GMT -7)   

I was on Mirapex for a while for my RLS. I HATED it with a passion. Not only did it not help with my symptoms, but for the first couple of weeks it felt like it made them worse. And the brain drain? It was horrible. I couldn't remember the names of my coworkers that I see every day, I would stand up from my chair, but forget why within seconds, and start on a task only to lose interest in it a few minutes later. It was like fibro fog, only 10 times worse. But by far the most serious side effect for me was the wakeful sleeping. My brain would temporarily shut down like it was asleep, but my body was still awake. I had a couple of instances where I would be in one place, and several minutes later be someplace else, with absolutely no memory whatsoever of going from point A to point B. The last instance almost killed me-I was driving to work one morning, and we have a long quiet stretch of road near our airport I used to drive. That morning, I remember leaving home, getting in the car, turning at the first stoplight, and a few miles later, waking up to the sound of screeching tires and honking horns. I had driven for several minutes without being aware of it, and blew threw a red light at 50 miles per hour. I almost hit another car and a pickup that had the green light. Needless to say, that woke me up pretty quick, and I managed to get to work. As soon as I arrived, I called my doc, explained to the nurse that I almost took out innocent bystanders, and demanded to be seen immediately. She said she would have the doctor call me back. After a couple days, I heard nothing, so I stopped the meds cold turkey.

Eventually, the doctor did call me back, and casually asked me what the problem was, and said he could try to fit me in the next week. I yelled at him that if he didn't care that I almost killed me and a couple of other people, then he didn't care for me as a patient, and to stick his script where the sun don't shine, and I haven't looked back since. The downside was that for a few months after that, my legs felt like they had a mind of their own, and I would have given anything to have had them amputated. But they finally calmed down for the most part, and I'm back at square one, no better or worse than when I got diagnosed. Perhaps not everyone has bad reactions to the Mirapex, but I haven't heard a lot of good testimonials.


Live, Love, Laugh. We only get to ride this ride once!
 
Shannon

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