How old are you and what to you do for a living?

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T~
Regular Member


Date Joined Nov 2007
Total Posts : 130
   Posted 11/17/2008 5:35 PM (GMT -7)   
This topic is really on my mind right now, because it was only two years ago that I was at the top of my game in a respected position with the money and a title.  I worked at the same company for eight years.  Now I make less then half and I literally feel like I'm 20 years back in time as far as a career.  The worst part is I feel like I'm unable to do what I do.  The fog is a bom waiting to happen for me.  I worry that I'm going to be called on when I make a major mistake and right now it's a 50 little mistakes all day.  I have told everyone, but when I make the mistakes that causes major trouble... what will happen?
 
My husband will not think of me quiting so that I can be a mother to our four (combined) children and take better care of myself.  The money is such an issue, because at 40 years old we have braces, college, commitments, and retirement that we are worried about.  The truth is if he said quit today.  I would do it just to be happier, feel better and be a better wife and mom.
 
Please share with me your story pertaining to work.  I'm at a loss.
 
Thank you in advance for your help,
Tricia
Fibromyalgia (DX'd Dec 07) ~ Generlized Anxiety ~ Migraines ~ IBS ~ Asthma ~ Allergies
Cymbalta   Topamax   Claritin   Tylenol   Ibuprophen


julieleaps
Regular Member


Date Joined Oct 2008
Total Posts : 257
   Posted 11/17/2008 7:16 PM (GMT -7)   
Hi Tricia,

You are not alone. I am experiencing exactly the same things you are with regards to my career. This particular flare (my first since I was dx'd in April, after a difficult winter, including a nasty fall on ice in Jan) has rendered my unable to work. I have disability insurance through work, with a 30 elimination period (like a "deductible), so I won't get paid for October at all. My claim has been filed, so we sit and wait for some income to start flowing in. Not only is it physically impossible for me to make it in to the office, due to pain, and an ungodly sleep schedule, I am very fearful of the fibro fog. As I started to make mistakes at work this fall, I would joke and say, "oh, it's those drugs I'm on", because when I've tried to explain this fog, I have yet to meet someone who does not have fibro understand how it feels. Alot of folks will just say to me, oh I lose my keys, too, or oh, just wait til you're my age, etc, etc. I'm 46, and have always prided myself on being sharp and having a good memory.

I am fortunate in one way, in that I don't have children at home to take care of. My husband feels alot like yours does: I can sense his need for me to get back to work as he is fearful of losing my income. I understand that, and after having some financial independence, it is hard for me to have to rely on him in that way as well. Then add on that fact that he's 14 years old than I am and wanting to retire, but the economy has messed that up, I'm sure he's beside himself thinking that I might not be able to work again. I have 2 children in college and a high schooler that's an exchange student overseas right now. The other part that's difficult is my children who are having a hard time understanding how this happened to me, and of course, being nervous about their own finances without mom's help.

I am hopeful that this flair will be over soon. By the way, I'm an insurance agent, and sales manager for a small independent insurance agency. The owner has been wonderful: we're small enough to shift responsibilities around, and yet I know that the business is probably suffering due to the lack of sales focus without me there. When I was hired, it was with the idea that I would end up buying the agency when the owner retires. Now I have no idea if that will ever happen.

I hope that it helps you to know that you are not alone. I would welcome being able to discuss these issues with someone who obviously has a similar experience to mine.

Take care,
Julie
*Severe Spinal Stenosis, ACDF Surgery Levels C5-7, Jan 07, Degenerative Disk Disease, Osteoarthritis,  Dx'd Atypical Migraines & Neuropathy Jul 07, Dx'd Fibromyalgia April 08,
GERD, Insomnia, Undiagnosed Inflammation with Elevated Sed Rate, C-reactive Protein
Mom to 2 College students +1 Exchange Student in Germany, stepMom to 2 marrieds, 8 stepGrands and my third job is being a pastor's wife.


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 11/17/2008 7:48 PM (GMT -7)   
Hi Tricia,
 
What a great topic to bring up.  I think a lot of us (including me) have so many concerns regarding our Fibro and employment.
 
Before my lupus/fibro diagnosis, I went to photography school for a year. It was my passion and hobby since childhood.  I wanted to have a self-employed career using what I love to do as a hobby.  Make money at what I love!
 
So I graduated and came home, and got started shooting friend's and family, weddings, babies, etc.  Then my diagnosis came. I was one sick puppy.  I took 2 years off to get well, and then went into my business full time in 2003.  Despite the fibro and lupus, I have been able to sustain my business and shoot up to 20 weddings a year plus other work.  It's been wonderful.
 
The downfall came this year.  My fibro turned into a raging beast.  I can't work as much as I used to be able.  2009 is going to be 75% less busy.  I'm really upset and devestated by my health right now.  But I still have this business where I can decide just how busy I'm going to be.  It works great for scheduling doctor's appointments, etc.  My schedule, my time.  I'm the boss!
 
Is there a hobby you love that you can do from home and make some money at it? Photography is really a great "do from home" possibility.  YOu don't even need a studio.  Just a pretty corner in your home with good lighting and some neat props. 
 
I hope you get lots of feedback on your topic Tricia, I wish you the best in your search!
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Banana Bread
Regular Member


Date Joined Oct 2008
Total Posts : 57
   Posted 11/17/2008 8:25 PM (GMT -7)   
I'm 25 and a stay at home mom to two kids (ages 1 and 2).  I would like to go back to work some day, but it makes me nervous as well.  I just think back to my last job, when I would feel like crying every time I had to work because I was so tired and didn't feel well.  I remember wanting to call in every day but knowing I should save it up for when I got really bad and then having my boss yell at me when I did.  I don't miss that.  I do miss the paycheck and the adult interactions, though.

Oregon Mom
New Member


Date Joined Nov 2008
Total Posts : 13
   Posted 11/17/2008 9:14 PM (GMT -7)   
I am a 39 year old and I have a fulltime professional career in HR management in a large manufacturing plant.  Fibromyalgia does slow me down a lot but I think the fact that I have lived with a chronic disease (type 1 diabetes) for the last 26 years has numbed me to the tiredness and pain that comes along with fibro.  For some reason, I feel my best when I am busy working.  I would not be able to work in a non-desk type of job.  The pain usually starts right when I wake up and I am able to brush it aside (usually) while I am working.  It sets back in almost daily during my drive home.  For this reason, I have a hard time slowing down and relaxing - it usually hurts too much.   It is a catch 22 because if I don't slow down, I will pay for it as well.  It is definately a balance act.  It is hard to keep up with the kids and house while working FT and being in pain/tired.  I have had to sacrafice my tidy house.  I do find that I flare up during travel and all day meetings.  It is the all day sitting that causes my throbbing aches to go crazy.

Medical Conditions:
Type 1 Diabetes - diagnosed 1982
Fibromyalgia - diagnosed 2006
IBS-Endometriosis
 
 


profgary61
New Member


Date Joined Nov 2008
Total Posts : 8
   Posted 11/17/2008 9:32 PM (GMT -7)   
Great topic and one on most of our minds with FM,CFS,RA and a host of many other immune disorders.

In 1990 I had started to do the same thing as Ginny work at what I loved to do I was a Graphic Designer and had start to free lance out of my home and created an art studio. It did ok but not enough to really live off of. So One day I started another business in The Radio Controlled Model Race car business (manufacturing). It took off right away. In two years time I was in International Magazines for Radio Controlled Model cars and had even made the front cover.

about 7 years later I got real sick and it took my Family Doctor about 6 to 8 months to dxd me with RA in 1998. At this time it became difficult to sustain the work load and keep on hired help and the down turn, slippery slope of my financial life started then. My life has be a real struggle every year up to present date I am no longer building these cars and have been having troubles get my new family doctor to do anything for my illness other than treat me with sinus infection/allergies and anti depression medications. He told me that I could apply for a pension so I'm at a lost. Here in Ontario Canada we have Doctor shortages so it's very difficult to even find a new one. Last year I had started to do some resin casting in large scale race car models and at fist it seemed to be looking good money wise and then the world economy cashed. I'm not sure where to head in any direction now health wise or financial.

I do believe I have most of FM symptoms as well as RA and CFM. I'm having trouble just walking to the convenient store now as my illness has really started to take it's toll on me.

I have left out a lot of things I've done both having to work at temp agencies since and doing auto body work as well in 2005/2006. I can't work now or even think of it. I'm just hoping to put a little quality/dignity back into my life in the future.

Again great Topic and great to read the many ways we cope with work/careers and our FM/CFS/EBV

Gary
God Bless
Gary


springfling
Veteran Member


Date Joined Mar 2008
Total Posts : 519
   Posted 11/17/2008 10:22 PM (GMT -7)   

I am 42 and work as a Secretary/Bookkeeper for a Tree Business. I am very lucky that I can make my own hours and I am the only one in the office. Even this is getting too much for me anymore. I find myself falling asleep in my chair, forgetting things that I have always done, & hurting too much to sit for very long.

Before this, I worked in a factory for 10 years. My body just couldn't take it anymore & I found myself barely making it through my 8 hrs. every day.

I applaud all of you out there with young children to take care of. I don't know how you do it. I find that just watching my grandchildren every once in a while tires me out. I will be cutting back my hours soon because of slow business in winter & I have to say that I look forward to it!

I don't know how long I will be able to keep on working. Even though I have an easy job it seems like that is even getting to be too much. I worry all the time about the income loss, but for now I just take it day by day.


Never regret something that made you smile!

Fibromyalgia*Osteoarthritis*Sleep Apnea*Depression*Fatigue*Allergy/Sinus


leemadd
Veteran Member


Date Joined Sep 2008
Total Posts : 532
   Posted 11/18/2008 9:41 AM (GMT -7)   
I stayed at home with my children for several years they are now 13 and 15. I really missed my independence financially then i came to realize that even though I did not get a pay check it was one of the most important jobs i would ever do. It was rewarding. I started clipping coupons and doing whatever i could think of to save money. If i saved $30.00 at the grocery store I would keep that money for myself that was my pay check. Now I am back to work I clean other peoples homes and it is very hard on my body physically. There are some days I get home and can hardly move.I find somedays I walk in circles not remembering if I dusted the buffet or the curio.I have gotten in to a circle of wealthy people that I clean for and they sometimes treat you like a used dish rag. The wealthiest person that I clean for is actually the nicest. He grew up poor and as he puts it was very lucky. They have always been very respectful and treat me like I am part of the family.One of the things i try to instill in my children is it does not matter how much money someone has they get out of bed and get dressed just like everyone else.That just because someone has money does not mean they dont have troubles. disease, stress and pain do not know how much money one has.
I am fearful that a day is coming that I will no longer be able to work it seems that it gets harder and harder.
Lee Ann

T~
Regular Member


Date Joined Nov 2007
Total Posts : 130
   Posted 11/18/2008 7:37 PM (GMT -7)   
Thank you so much for sharing your stories.  We all have so much in common in one way or another.  I find myself feeling so guilty at work.  I know that the mistakes I make cause concern and I try so hard to focus and double check my work.  I never call in sick.  I have worked through a migraine to show that I am of value.  I just know that I can't keep this up forever.  All my energy is spent getting to work and back to make the little money that I do (no benefits or sick days) and I ask myself would I be healthier sleeping in taking care of my family, getting a nap and having time to exercise and more importantly getting to the doctors I need to see.  I was told by my Rhuemy to see a Psychologist about my anxiety and I really don't have the time. 
 
Your stories help and it's not to know that others are suffering as I am.  It's the fact that we understand eachother so well.  I'm often amazed at the fact that there are so many of us fighting the same battle just to live a normal life.
 
I was searching for famous people that suffer from Cronic pain and another fibro site suggested that it would be the death of their career, I just can't help but think... if we only had a Michael J. Fox on our side. yeah
 
Please keep sharing.
 
Tricia
Fibromyalgia (DX'd Dec 07) ~ Generlized Anxiety ~ Migraines ~ IBS ~ Asthma ~ Allergies
Cymbalta   Topamax   Claritin   Tylenol   Ibuprophen


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40572
   Posted 11/18/2008 8:37 PM (GMT -7)   
I will be 50 on Saturday.

I use to have a business with a plant nursery, two green houses and a floral and gift shop. Though I lost it all to fibromyalgia. I can't earn a living, but I did make Christmas wreaths this year. I donated 400.00 worth of wreaths and swags to the local animal shelter. And now I am doing a few to sell. So I don't feel entirely hopeless.

I often think that maybe I could work a part time job, but when the fibro flares up, I remember that I can't. I plan to sign up for disability soon.

I also do wood burning, and paint on canvas. Plus I make jewelry with semiprescious stones on sterling silver and leather. So I guess that you would call me a starving artist.

I probably shouldn't have posted here because I definately don't make a living. But I thought I would tell my story.

Best wishes to all of you
hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


julieleaps
Regular Member


Date Joined Oct 2008
Total Posts : 257
   Posted 11/18/2008 9:08 PM (GMT -7)   
Sharon,

You absolutely should post here! Your story is important. You have taken a loss of career, and showed us that you are still productive and have something to contribute - you are to be praised!

I believe that as long as we are this side of heaven, we ALL have something to offer.

Sounds like you are making good use of your gifts and talents, hun.

Keep up the good work!

Gentle Hugs,
Julie
*Severe Spinal Stenosis, ACDF Surgery Levels C5-7, Jan 07, Degenerative Disk Disease, Osteoarthritis,  Dx'd Atypical Migraines & Neuropathy Jul 07, Dx'd Fibromyalgia April 08,
GERD, Insomnia, Undiagnosed Inflammation with Elevated Sed Rate, C-reactive Protein
Mom to 2 College students +1 Exchange Student in Germany, stepMom to 2 marrieds, 8 stepGrands and my third job is being a pastor's wife.


T~
Regular Member


Date Joined Nov 2007
Total Posts : 130
   Posted 11/18/2008 9:33 PM (GMT -7)   
I want to hear from anyone that wants to share.  I'm sure I'm not alone. ~Tricia
Fibromyalgia (DX'd Dec 07) ~ Generlized Anxiety ~ Migraines ~ IBS ~ Asthma ~ Allergies
Cymbalta   Topamax   Claritin   Tylenol   Ibuprophen


kelly71
Veteran Member


Date Joined Jun 2008
Total Posts : 726
   Posted 11/19/2008 8:01 AM (GMT -7)   
For the newbies who haven't heard my story, I am all too happy to repeat myself.  I do it all the time, anyway-especially when I don't mean to. wink
 
Up until early this year, I had worked almost 17 years as a veterinary technician (14 of them as a licensed tech).  I have suffered from back pain for years-brought on by heavy lifting, and my very large chest size.  My employer started cracking down and made me get a note from my GP-excusing me from heavy lifting.  BTW-at the time, I was working ER/critical care, so a lot of times when it's literally a life & death situation, you don't have the luxury to ask someone to help you lift a 75 pound dog. shakehead  
 
Last year, I broke my leg at work, and I had a terrible time with pain from just a "simple stress fracture."  Worker's Comp was something foreign to me, and I really think I got lost in the system (not to mention screwed over by it).  I was sent to orthopedic surgeons, 2 different neurologists (one just told me I was too fat mad ), and I still could not get any pain relief.  Finally, after 10 months, I couldn't afford to live on worker's comp, so I just asked to be released so I could return to work.  Great, right?  Wrong!
 
As soon as I was released, my employers informed me of a "new policy" they had saying that in order to work there, I had to be able to life 50 pounds on my own.  With all this pain I was having (besides the leg), there was just no way I could do that.  So, my employer said that I needed my GP to either sign off-saying that I could lift the full 50 pounds, or I needed to go on disability.  I felt absolutely lost. Should I just get my doc to sign off-even though I knew there was no way I could continue this painful hell I was going through, or do I try to convince him that I need disability?  By the time I finally saw him, I was an emotional basketcase. cry
 
I was shocked when he listened to everything I told him and after I told him that there was no way I could lift 50 pounds by myself, he suggested that I go on disability. shocked   Now, in CA, they have their own state disability, so all I had to do was fill out forms and he had to fill out some forms and then I was approved.  I got my GP to write an excuse to my employer saying that I was going on disability.  I hand carried that excuse to work, and everything seemed fine.  The very next day, I received a certified letter in the mail saying that my position at work could not be held and I was being terminated.  If and when I got better, I could call them and see if there was an opening. mad
 
So, I know what you are all thinking...that's illegal, right?  Uh, there are about a million loopholes that employers can use-and it was legal.  Also, did I really want to work at a place who obviously considered me expendable?  I'm sorry, but I had 17 years experience and I was darn good at what I did.  If they want to hire some kid off the street to work ER (where you have to know your **** and not freak out), then go for it.  I wouldn't trust my animal there.
 
Anyway, it was about this time that I finally gave up and decided to fufill my mom's dream and move home to SC.  It took about 6 months, and now I've been living with my parents for over a month.  If my hair wasn't already falling out, I'd tear it out myself.  It has been a struggle-to say the least.  My mom and I have a "moment" at least once a day (and we had a huge blowup last week).  I'm just waiting on some sort of good news (hopefully I can get SS) so I can get out of here.  Grown children are not supposed to live with their parents. shakehead
 
So, that's my story.  Oh, I'll be 37 on November 29th.  I am still a licensed veterinary technician.  And, I live with my parents.  You tell me how I feel. rolleyes
FINALLY dxd with fibro on 06/13/08
Vicodin, Neurontin, Ibuprofen for pain-which doesn't help, BTW
Zoloft & methadone (NOT for pain) for sanity-which doesn't help, BTW
Klonopin for anxiety (Guess what?  Doesn't help!)
Chantix (quit smoking 08/29/08)
 
"I'll take the Chivas instead"
-Kelly Clarkson


Meggie
Regular Member


Date Joined Jul 2008
Total Posts : 408
   Posted 11/19/2008 9:15 AM (GMT -7)   
I turned 42 recently and work as an office manager.  It was just three years ago that I returned to work after being home with my three kids for many years.  I wanted to wait until the youngest one was in school full time and then I returned part time doing data entry.  The job was low stress but I think the amount of work to be done overwhelmed me.  I new something was wrong before I returned to work, I had been telling my doctor that I just couldn't keep up for years, and I hurt so much.  His response "your a mother with three young kids, of course you are going to be tired".  As my girls got older I took on more responsibility at work and changed positions, what a mistake that was.  This job was high stress and I really felt it.  My brain, mouth, and feet were not working as they should be.  I stumbled all the time, couldn't complete a sentence with out stuttering and could not remember short sequences of numbers (which was part of my job).  The more mistakes I made the worse I felt and the more mistakes I would make (it was a vicious cycle).  I was in that job for 9 months before I had to leave.  I was fortunate that my current job opened up and two months before I started work here I was diagnosed with FM.  I was relieved and scared.  The family life got bad, my kids thought I was going to die and my husband couldn't adjust to my new life.  It's been just over two years since my diagnoses and my life has changed dramatically.  It's not always good but I'm getting by.  My family has made huge steps in acceptance and understanding and my job is low stress and manageable.  I go to work to get away from stress (I never thought I would say that).   Don't get me wrong, I love my family but the everyday routine of getting three kids where they need to be and with the things they need to have is STRESSFULL.  I have two teenagers (need I say more) and a 10 year old, all girls.  A dog with anxiety problems (any suggestions for a stressed out dog, I hate to see her so upset) and a cat with an attitude (she's my princess).
 
I guess that sums up my life.
 
Love the thread!
 
Meggie

julieleaps
Regular Member


Date Joined Oct 2008
Total Posts : 257
   Posted 11/19/2008 11:24 AM (GMT -7)   
Meggie: one of the most important things I learned when dealing with teenage daughters.

Drama Trauma: Here today, gone tomorrow.

Ya know how they can come to you and cry and wail and they are convinced the world is coming to an end? It's usually over a friend, or a boy. Well, you listen and support and dry their tears, make their favorite dinner. You do all you can to make them happy, because you can't be happy when they aren't. So you lose sleep that night trying to figure out their problem, how to make it better, what to say to them. The next day after school, you approach the subject again with kid gloves, and try to discuss the issue again and offer your worldly insights...and they look at you like you're from outer space, and say, "Oh, that. Well, I'm over it. So and so did x, y, or z, so it's all better. Can I have some money to go to the mall?"

I'm a slow learner, so this experience was repeated a number of times before I realized: be loving and supportive, but don't lose any sleep over it. Tomorow is a new day, and there will be another Drama Trauma. Just put your big girl panties on and deal with it.

Hope that helps reduce your stress level somewhat with the day to day.

Gentle Hugs,
Julie
*Severe Spinal Stenosis, ACDF Surgery Levels C5-7, Jan 07, Degenerative Disk Disease, Osteoarthritis,  Dx'd Atypical Migraines & Neuropathy Jul 07, Dx'd Fibromyalgia April 08,
GERD, Insomnia, Undiagnosed Inflammation with Elevated Sed Rate, C-reactive Protein
Mom to 2 College students +1 Exchange Student in Germany, stepMom to 2 marrieds, 8 stepGrands and my third job is being a pastor's wife.


Meggie
Regular Member


Date Joined Jul 2008
Total Posts : 408
   Posted 11/19/2008 3:24 PM (GMT -7)   

Julie,

You are so right, that pretty much sums up my girls.  It's still hard to not be able to make it all better though.  I give a lot of hugs and encouraging words and hope for the best and as you say, it's usually fine the next day.

Thanks for the advice, I may need more as they grow!!!

Meggie


SheTiger68
Regular Member


Date Joined Nov 2008
Total Posts : 55
   Posted 11/19/2008 7:41 PM (GMT -7)   

I just turned the magical 40 years old, and got my dx for Fibro a week later. Yay me! I am a senior telephone customer service rep for an insurance company. Before I started working for my current employer 10 years ago, I worked various jobs, and I do mean various. I was like a Shannon of all trades, lol! Not knowing what I really wanted to do with my life, I worked as a student bus driver in high school, worked for different temp agencies, was a security guard in two states, and even took CNA classes and became a CNA. I thought that might be the right thing to do since my mother had been a nurse for many years, and I loved helping folks. However, office politics in medical settings set me straight, so I quit. When I got hired at my present company, I thought I would get bored with this job, too. But, before I knew it, I was celebrating my 10 year anniversary. And until the day FM finally wins the battle, I plan to stay just where I'm at.

 

 


Live, Love, Laugh. We only get to ride this ride once!
 
Shannon


T~
Regular Member


Date Joined Nov 2007
Total Posts : 130
   Posted 11/19/2008 7:55 PM (GMT -7)   
I like the advice about teenage girls.  I have three girls (12, 13 & 17)... eek!
 
I wanted to mention... my husband wrote down a Fibro Study that he thought I should call and check out.  I said, my Rhuemy asked me about a study at one time, but she then asked if I could do without my Cymbalta and I told her I was afraid, because I went through such anxiety/panic when I wasn't on it.  I'm gathering that you must be med free.  My husband said, maybe I should go clean and go through the study to finally get some help or simply the attention.  I responded to him as if he suggested I cut my head off.  Now I'm re-thinking.  I am modified just enough to survive getting back and forth to work.  I work 6-8 hours a day, pick my children up and if I'm lucky I take a much needed hour nap.  My family helps wake me up to get dinner or any chores I need to do that night.  Maybe I'd be better off going allowing myself to go through what ever might come.  I think Gary would be shocked to see what I'd suffer if I let all the meds go.  I'm nearly certain I'd lose my job, because before all the meds I was suffering awful.
 
I don't mean to sound so negative.  I'm actually serious.  I don't want to struggle this way every single day into the... who knows how long.  I feel tortured in a way and it's not like I get paid well or receive benefits etc.  It brings me to tears at the thought that this is my painful life.
 
I'm sort of going on and on, but I'm wondering your thoughts.  I'm also having a bit of a pitty party.
 
Hugs,
Tricia
Fibromyalgia (DX'd Dec 07) ~ Generlized Anxiety ~ Migraines ~ IBS ~ Asthma ~ Allergies
Cymbalta   Topamax   Claritin   Tylenol   Ibuprophen


Carnissa
Regular Member


Date Joined Jun 2008
Total Posts : 289
   Posted 11/19/2008 8:40 PM (GMT -7)   
Hello all

well i am 29 years old.. i went through college for hotel restaurant management in hopes of becoming a pastry chef, and opening my own shop. However after being diagnosed in 2001 with fibro that dream went down the drain. Since i can't stand extreme heat and cold i can't work in the food industry. so i thought i would go to the hotel side of things.. but soon found out that i can't do shift work. I love to garden as well so thought about doing landscaping but the physical demand is to much for me. So here i am living at home with my parents (not much longer though :) ) and working at a lumber yard so i don't have to do nights.. I work either 8-5:30, 7-4:30 or 8-4 i don't work outside in the yard but i do work inside the store. which means i can lift anywhere from .5lbs up to 100lbs at times. Usually i am on the customer service desk but lately that is even that is getting to much.... i get home exhausted most days i can't even make it through the day unless i come home on my hour lunch eat and have a 20-30 min nap... by the time i get home around 6 all iw ant to do is collapse. but usually i don't since i am doing cleaning or laundry or helping out with chores.. by the time i get to bed all iw ant to do is sleep but usually all i do is sleep shallow for about 2 hours then am awake for 3 then back for 2 then up for one and back to sleep for 30 or 40 minutes. I am in constant pain.

I force myself each and everyday to get my *** out of bed and go to work and do what i need to do when all i want to do is stay in bd and sleep for the rest of my life or cry from the pain. I was raised that you don't miss work unless you are on your deathbed. And you do what needs to be done no matter what. I know my parents don't understand how i feel. They always say we all are tired and sore but still have to do this or that.... I would love for my mom especially to take a week in my life and feel how it is to not be able to do once you what you used to.. or have the energy you long for all the time.... I always used to do my makeup and hair before i left the house.. Now i am lucky to wash my hair.. ican't blowdry my hair cuz my arms go numb from being above my head and my hands ache and cramp up from holding the brush and blow dryer. i am 29 and feel like i am 100 at times.

I hate being told that i look tired and i should get some rest. There are times when all i want to do is go back to before i had fibro and stay at that point in time.. but when i look back i don't think there was a time when i didn't have it... i can probably go as far back as 1993 with having the symptoms of fibro.

I hope my story helps.. I don't want to go on disability but i don't think i am going to have a choice soon.. although there is the chance of going back to school

Corrie_1
Regular Member


Date Joined Oct 2008
Total Posts : 185
   Posted 11/20/2008 1:40 AM (GMT -7)   
Hi! I'm 20 years old... and have been unable to work for 4 months now... and it probably will be another 6 before I can go back. I'm young... and not being able to work for a living and support myself is difficult - Luckily I have a supportive boyfriend, although I can tell our finances are a major stress on him... he's between jobs and I'm fighting with my disability claim... he works hard when job is available and tries to support us the best he can.

I get exauhsted walking up the stairs to my bedroom and I have little energy during the day. I try and walk everyday... but that often takes most of my energy... that and trying to keep my house clean.

I can relate to wanting somebody to know how you feel even for a day... it's hard for people to understand something they haven't experienced first-hand... and they can be so insensitive at times.

Oh! I worked at a bank as the Commercial Tellar... I was full time and I moved up fast into one of the more senior positions. I loved my job and was getting involved in different programs and commitees when my fibro symptoms started. It's been a huge disapointment that I've had to miss so much work :( I miss the feeling of accomplishment I'd get after a long day of work... now I'm just happy on days I have the energy to get out of the house.

 

 


Diagnosed with Fibro - October 2008
 
Gabapentin 300mg/Paroxetine 40mg/Armitriptyline 40mg to help me sleep and anxiety 
 
Lorazepan... when things get real bad.
And I'm not fond of people who don't label pill bottles.
                                                                                                                 
 
 

Post Edited (Corrie_1) : 11/20/2008 1:45:46 AM (GMT-7)


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 11/20/2008 2:16 AM (GMT -7)   
First let me says, soft hugz and lots of them too.
I've just turned 43, a stay at home mom cause my daughter was born with
a serious heart defect, Critical Aortic Stenosis for which she had open heart surgery at twelve days old,
Well, she'll be 18 next March doing pretty good heart wise, but has to be
watch once a year, by a cardiologist. We are facing college cost as well and
sure hope she can get scholarships.
anyways enoguh of my rambling...
soft hugz to everyone...
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd, Enlarged Pituitary Gland
******** "We could never learn to be brave and patient if there were only joy in the world" from Helen Keller *********

********>^..^<********>^..^<********>^..^<********


payroll~lady
New Member


Date Joined Nov 2008
Total Posts : 14
   Posted 11/20/2008 6:43 AM (GMT -7)   
i'm 43 and work full time as a payroll administrator. by the time i get home at 4:45, there's not much "oomph" left in me ~ just enough to make supper and collapse in front of the tv with my electric blanket on.

i do alot less than i used to and have to rely on DH and DD12 to help out more around the house. if i go for groceries, i have to rest an hour or two afterwards. i seem to do too much on my good days then suffer for it afterward. trying to learn to pace myself, but it's frustrating!
fibromyalgia ~ cymbalta 60 mg, flexeril 10 mg, advil/tylenol
hypothyroidism ~ synthroid 112 mcg
gerd ~ nexium 40 mg
peri-menopause ~ yasmin 28


mamanan
Veteran Member


Date Joined Jun 2008
Total Posts : 846
   Posted 11/20/2008 7:29 AM (GMT -7)   
I am 39 and work 3 nights/week as a waitress. I have always loved my job, I liek the fast pace, but this summer was a real struggle for me. I had a hard time just walking somedays, and the memory was failing fast. Luckily, I am feeling much better now, adn I enjoy gettign out of the house. Good thing too, because i was stressing about what woudl happen if I had to quit. As a waitress, you get next to nothign for UI, since they don't look at tips earned, which is the bulk of my income. I coudl not do a desk job. There are some days when I want to be at the computer, but I just can't sit for that long. I spend most of my day standing and walking around, and that I think has helped me tremendously with pain control.
Waiting for appointment with rheumy (March 2009) to get an official dx. waiting, waiting, waiting....
Taking malic acid/magnesium combo, what a life saver! and amitriptyline

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