Rheumatologist Appt

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Leeriesan
Regular Member


Date Joined Oct 2008
Total Posts : 90
   Posted 11/18/2008 8:45 AM (GMT -7)   
Well so I bit the bullet and made an appointment with a rheumatologist I found in springfield. I just kinda picked one so we'll see how it goes. I'm really nervous though - I don't really know what I really want from her. I'm in a lot of pain and my PCP just really doesn't seem all too interested. I know I want a doc that I feel can focus on the fibro and I feel is knowledgable about it. But you guys so to be all prepared and I'm not really sure how to prepare for this. 9 times out of 10 I go to the doc with a list of things that are wrong - so I guess I juststart with a list of places where the pain hurts and what it feels like. But other than that, I feel kinda at a loss and I'm super nervous...any advice? My appt is on the 4th of December.
Oh and I think that if she feels its necessary I want some of those tests you guys say you got. I never had tests done when I was diagnosed with FMS. She listened to my symptoms then gave me drugs - I had had tests done before by other doctors - maybe they had done those things but I don't think - they had never been anywhere near FMS before. I went to the doc after seeing a Lyrica commercial and researching it on my own - they thought I had acid reflux or something so do you think it would be good to ask for that?
~~Asthma, Reactive Airway Disease, Allergies (to nature), Fibromyalgia, Kidney Reflux Disease, Chronic Migraines (docs currently working on those), Generalized Anxiety Disorder, Depression, Restless Leg Syndrome, and a few others that remain undiagnosed because I don't feel like being on anymore medication than I am already on. ~~

~~ Allergra, Singulair, Topamax 50mg 2x/day, Frova, LoestrinFe, Cymbalta 90 mg, Lyrica 50mg 5x/day, Flonase, Albuterol inhaler and nebulizer, Amrix, and a daily dose of chocolate ~~

~~ I'm 21 and trying to be optimistic~~


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 11/18/2008 9:17 AM (GMT -7)   
Did you ask if this doc believes in and treats fibro when you made the app??? I really hope you get a great doc that understands. Keep a journal starting now of how you feel all over, not just pain but fatigue and fibro fog and how it is affecting your life. We can feel many different kinds of pain from soreness to burning pain.
 
When I went to new rheumy I signed a release so he could get records from my other doctors on what test I have had in the past for fibro. That way your not paying for unnecessary test that have already been done.
 
Make a list of questions, as you think of them, so you will be armed when you go and don't have to remember what you wanted to ask. Take your time and make sure every question is answered. If this person makes you feel like they are wanting to get out of the room after a few minutes and their time is more important than your questions, you have the wrong doc. They should allow plenty of time for your first visit to get all your history and symptoms.
 
Good luck
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


springfling
Veteran Member


Date Joined Mar 2008
Total Posts : 519
   Posted 11/18/2008 9:35 AM (GMT -7)   
I'm sure some of the others will be along with some great advice. I think making a list of all of your symptoms is very important. Before my appt. I left a list on my table and added to it whenever I remembered something else I wanted my Dr. to know.
 
I know it makes a world of difference to have a doctor who is familiar with Fibro and is willing to go all the way in helping you. I was very lucky to have a great doctor who pretty much diagnosed me with Fibro, but also sent me to a Rheumatologist so I could get more help.
 
I went through alot of tests along the way (to rule out other things) before he finally diagnosed me with Fibro. I also found out I had Osteoarthritis in my spine.
 
Hopefully your new doc will be familiar with Fibro and will test you for other things, too. As far as the Lyrica goes...I took it for approx. 6 months and finally got off of them. They did not help my pain, but I did gain 30 lbs. I think they work differently on everyone. I have heard others who love it and say that it really helped them, so I guess it wouldn't hurt to try it out.
 
I wish you luck and hope you are able to get the help you need. If not there are great doctors out there who are very familiar in treating Fibro, so don't give up!
 
Hugs!  Margie
 

Never regret something that made you smile!

Fibromyalgia*Osteoarthritis*Sleep Apnea*Depression*Fatigue*Allergy/Sinus


springfling
Veteran Member


Date Joined Mar 2008
Total Posts : 519
   Posted 11/18/2008 9:40 AM (GMT -7)   

Sorry Marlee!!

My comment about others coming along with great ideas was made before your post! I actually had a long post all written out & somehow lost everything when I went to review it, so I had to rewrite.

Anyway, I have spent the last 20 minutes trying to get through 1 post and thought there were no answers up yet! I'm having a heck of a day!!!

Hugs!  Margie


Never regret something that made you smile!

Fibromyalgia*Osteoarthritis*Sleep Apnea*Depression*Fatigue*Allergy/Sinus


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 11/19/2008 9:00 AM (GMT -7)   
That happens all the time Margie when people are writing post at the same time. I found a great rheumy in Pekin so I get over in your area some times now.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin

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