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Corrie_1
Regular Member


Date Joined Oct 2008
Total Posts : 185
   Posted 11/18/2008 1:58 PM (GMT -7)   
I woke up this morning with horrible fatigue... the worst that I've had to deal with since this all started. I couldn't even get out of bed this morning without an hour of slowly inching my way off to the side of the bed and sitting waiting for the strength to slowly move to the bathroom.
 
It's not that bad now... but my energy level is so devistatingly low that I couldn't even make it to coffee with my brother today because I can't walk far enough without rest to go.
 
Does anybody else experience occational fatigue that prevents them from doing anything during the day? I know Fibro an Chronic Fatigue Syndrome are often co-concided... does anything help with fatigue?
Diagnosed with Fibro - October 2008
 
Gabapentin 300mg/Paroxetine 20mg/Armitriptyline 40mg to help me sleep 
 
Lorazepan... when things get real bad.
And I'm not fond of people who don't label pill bottles.
                                                                                                                 
 
 


honeyprincess21
Regular Member


Date Joined Oct 2008
Total Posts : 99
   Posted 11/18/2008 2:08 PM (GMT -7)   
If you find anything that helps with the fatigue, PLEASE let me know. That's one of the worst things for me. I know exactly what you're talking about with the whole inching towards the end of the bed thing. A lot of people I say things like that to are like "Oh yeah it's hard for me to get out of bed too" and I'm like "No, it's actually a concentrated EFFORT for me to get up". They just don't get it.

Don't feel too bad about the fatigue though. I actually fell asleep on the toilet at work once because I was so tired lol. Granted it was only 10 minutes but....lol
Endometriosis since 2002 diagnosis via laparoscopy
5 laparoscopies for Endometriosis from 2002 - present
Anxiety since 2004
Post Traumatic Stress Disorder since 2005
GERD since 2008
Fibromyalgia since 2008
Colonoscopy - 2008
Endoscopy (EGD) - 2008
 
Currently in Physical Therapy for Pelvic Floor spasms. Also for lower back, hip & thigh muscular problems.
 
* Baclofen
* Xanax for Anxiety
* Fish Oil Capsules
* Iron Pills
 
!!! At my wit's end with being "broken" !!!
 


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17096
   Posted 11/18/2008 2:09 PM (GMT -7)   
I have had that but only occasionally.  I am usually in a haze or barely able to keep my eyes open when that happens. I generally vegetate on these days.  I don't bother to try to do anything really constructive since I know I'm so fatigued that I would only mess it up.  So, you definitely are not alone.  I hope you wake up tomorrow more rested and able to go about your day.  Feel better!
 
Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40575
   Posted 11/18/2008 3:08 PM (GMT -7)   
Hi there,

I have had problems with fatigue, I spent two years in bed. Finally I started taking adderall and now I can handle things. I get up, but not too early, and can function. Not perfectly, but much better than I was.

I hope that this helps

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Carnissa
Regular Member


Date Joined Jun 2008
Total Posts : 289
   Posted 11/18/2008 4:37 PM (GMT -7)   
I have extreme fatigue i don't think there is a day where i don't have it... i have to force myself to get up and move.. i have been lucky lately and haven't had any really bad but it sucks...

I can't afford to go off on sick leave so i still work full time and just keep repeating to myself i can make it through the day then go home to bed

But i also have sleeping trouble.. there are days i can sleep 18 hours and still not feel rested going for sleep study soon but not soon enough in my opinion

springfling
Veteran Member


Date Joined Mar 2008
Total Posts : 519
   Posted 11/18/2008 5:25 PM (GMT -7)   

I have those days when it takes every thing I have to force myself out of bed & sometimes I probably look like my grandma hobbling along. (those are the days that I hurt everywhere and I can hardly walk on my feet) It usually takes me an hour in the mornings to get around. I take my meds first thing!

There are also times that I can sleep for 12 hours and still be tired. Now that I have my machine for the sleep apnea, I thought it would maybe take care of the fatigue, but it seems it has only helped a little.

I don't know if it is my meds or fibro, but the other day as I sat in front of the computer (trying to keep my eyes open) I fell asleep while taking a drink!! That is no lie. I remember picking up the glass to get a drink and the next thing I knew I had spilled my tea everywhere and dropped the glass on the floor. That's when I know I might as well go back to bed!

 


Never regret something that made you smile!

Fibromyalgia*Osteoarthritis*Sleep Apnea*Depression*Fatigue*Allergy/Sinus


julieleaps
Regular Member


Date Joined Oct 2008
Total Posts : 257
   Posted 11/18/2008 9:33 PM (GMT -7)   
I hear ya! What I want to know is, how can I be so fatigued, so very tired, that I can sit here and not be able to keep my eyes open, and yet I cannot fall asleep? Last night I was up til 5 a.m. Slept until 9 or so this morning, and I've been up ever since. I had a short burst of energy this evening, but that's it. When I sit down to dairy my day, I simply can't remember what I did to fill my day. I keep thinking, I MUST have done something! But, nope, I can't come up with much more than taking care of a bit of correspondence, work on my couponing, and keep up with favorite websites. I didn't even do the dishes or shower today. If I can get even one thing done on my to do list each day, I consider it a good day. How do you explain that to someone that doesn't have one of these dumb diseases? It takes a real effort on my part to keep being polite as folks continue to tell me what so and so found that helped them with their aches and pains, or their sleep disorders.
*Severe Spinal Stenosis, ACDF Surgery Levels C5-7, Jan 07, Degenerative Disk Disease, Osteoarthritis,  Dx'd Atypical Migraines & Neuropathy Jul 07, Dx'd Fibromyalgia April 08,
GERD, Insomnia, Undiagnosed Inflammation with Elevated Sed Rate, C-reactive Protein
Mom to 2 College students +1 Exchange Student in Germany, stepMom to 2 marrieds, 8 stepGrands and my third job is being a pastor's wife.


Terrie B
Regular Member


Date Joined Mar 2007
Total Posts : 90
   Posted 11/18/2008 11:29 PM (GMT -7)   
The thing that I worry about, with the fatigue, is that I recently was called to sub at my daughter's high school, and I did it, so they called me again to see if I sub again this Friday. I told them I would, but I'm so afraid that I'm going to wake up Friday and be in so much pain and be so tired, that I'm not able to do it- after already telling them at the first of the week that I would. They probably wouldn't call me again if that happened. I also struggle with SEVERE insomnia so I also worry that I won't be able to sleep the night before, from being all jazzed up thinking about it, and then I'll be exhausted the next day! Oh the things I worry about!!

i think I better try to put myself to bed now... I'm having a real hard time concentrating on what I'm writing. I have to keep going back to read and see if what I'm saying makes any sense! Have a good night (or I guess day now!) :0)
 
 
                                         Terrie


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 11/19/2008 7:50 AM (GMT -7)   
Fatigue has always been my worse problem but pain is catching up with it. I've never not been able to get out of bed. Fatigue hits me in the afternoon and when it hits I'm done for the day. I have felt so tired it's an effort to breathe. I don't get sleepy it's just bone tired. If I don't sleep well I'm like a zombie all day.
 
The fatigue is the most frustrating problem for me. I can work through the pain but not the fatigue. Most events are in late afternoon and evening and by then I'm too tired to enjoy myself or even take part in them. All my children are coming home for Thanksgiving which means late nights and I'll probably be in bed before the youngest grandchild. I can not sleep during the day for some reason so there is not recharging my batteries. It wasn't that long ago when I could out last all of them at night cause they had small children to get up with the next morning.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


honeyprincess21
Regular Member


Date Joined Oct 2008
Total Posts : 99
   Posted 11/19/2008 8:39 AM (GMT -7)   
I feel the same way. I am SO tired all day, every day. Yet by the time bedtime comes, good luck getting to sleep. The problem is, I fall asleep when I don't want to, like the other poster on here. If there's a movie on, forget it, I'm out. I end up falling asleep on the couch every night and when I get up to go stumble to bed, I end up not being able to get back to sleep. But I can't sleep on the couch all night or I'm hurting superbad. I hate when I go to the doctor's and they ask me if I'm having problems sleeping...what do I say to that? On the one hand, I feel like I could fall asleep while I'm driving and stuff like that, but on the other hand, I can't sleep at night when I really need to since I have to work in the morning. Now it's to the point where I don't even care anymore when I sleep, as long as I get to. I used to try not to take naps after work because I figured there'd be no way I'd fall asleep at night, but now I don't care. I'll take sleep whenever I can get it. I'm afraid to take pills at night to help me sleep because I don't need that foggy feeling on top of the fibro fog. I feel like there's nothing I can do! I'm 28 and I haven't seen my best friend in over 2 years because of this. I never have the energy, not even to just have her over. And I'm ashamed to have her over because the apartment isn't always in the best shape since I never have the energy to clean...ugh.
Endometriosis since 2002 diagnosis via laparoscopy
5 laparoscopies for Endometriosis from 2002 - present
Anxiety since 2004
Post Traumatic Stress Disorder since 2005
GERD since 2008
Fibromyalgia since 2008
Colonoscopy - 2008
Endoscopy (EGD) - 2008
 
Currently in Physical Therapy for Pelvic Floor spasms. Also for lower back, hip & thigh muscular problems.
 
* Baclofen
* Xanax for Anxiety
* Fish Oil Capsules
* Iron Pills
 
!!! At my wit's end with being "broken" !!!
 


Corrie_1
Regular Member


Date Joined Oct 2008
Total Posts : 185
   Posted 11/19/2008 11:24 AM (GMT -7)   
lol chores and household duties are unfortunatly the things I tend to leave undone when my energy is low.

I use to have a lot of trouble sleeping and I started taking armitriptyline to help me sleep.... I'm still rather unrested in the morning but I do manage to sleep through the whole night - something I hadn't done in years and I find if I take them an hour or two before I'm planning to sleep it helps with the morning fog.

btw I'm 20 nice to meet you Honey :)
Diagnosed with Fibro - October 2008
 
Gabapentin 300mg/Paroxetine 40mg/Armitriptyline 40mg to help me sleep and anxiety 
 
Lorazepan... when things get real bad.
And I'm not fond of people who don't label pill bottles.
                                                                                                                 
 
 


RedDiane
Veteran Member


Date Joined Jun 2007
Total Posts : 906
   Posted 11/19/2008 11:32 AM (GMT -7)   
I have had unending fatigue for at least 10 years. I've had fibro for 24 and always have had some fatigue. Now I can only do and hour's worth of activity per day.

Shannon, I thought my CPAP would help my fatigue, too, but I've been on it a year and no luck. The sleep dr. wants me to have a heart workup, in case it's not fibro causing the tiredness. Diane ( I wish there was an icon with big bags under her eyes)
Fibromyalgia since 1984, Sjogren's, Hashimoto's Thyroiditis, Auto-immune eczema, GERD, osteoarthritis, IBS, RLS, sleep apnea


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 11/19/2008 11:53 AM (GMT -7)   
Diane I had a drug induced stress test done and EKG and they didn't find anything wrong with my heart. Wow one hour a day??? I got the utility room presentable, beds in guest room made, some laundry done and folded and took Krissy out to run around in the back yard, which she really needed since it is 47 degrees. Now I'm ready to rest for awhile and that probably will be it for the day.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


honeyprincess21
Regular Member


Date Joined Oct 2008
Total Posts : 99
   Posted 11/19/2008 12:28 PM (GMT -7)   
Hey Corrie_1, it's nice to meet you! Wow, you are so young to have to deal with this! I always feel sorry for myself for feeling this way, but that's got to be harder for you. It just really sucks to feel like a little old lady when you're still young. I'm scared about what will happen when I get older! What if I get arthritis on top of these muscle aches when I get older? I don't know what I'd do with myself. If you ever need anyone to talk to, let me know. I know how rough it can be to try to have a social life ("try" being the operative word lol) when you just want to sleep for a month!
Endometriosis since 2002 diagnosis via laparoscopy
5 laparoscopies for Endometriosis from 2002 - present
Anxiety since 2004
Post Traumatic Stress Disorder since 2005
GERD since 2008
Fibromyalgia since 2008
Colonoscopy - 2008
Endoscopy (EGD) - 2008
 
Currently in Physical Therapy for Pelvic Floor spasms. Also for lower back, hip & thigh muscular problems.
 
* Baclofen
* Xanax for Anxiety
* Fish Oil Capsules
* Iron Pills
 
!!! At my wit's end with being "broken" !!!
 


Corrie_1
Regular Member


Date Joined Oct 2008
Total Posts : 185
   Posted 11/19/2008 12:42 PM (GMT -7)   
:) I know exactly what you mean. The future is so uncertain for me... and I never expected to practically house bound at 20! Socially I try to have my friends visit me.. but its hard when by the time they're heading out to the bar I'm about ready to go to bed :P

But I figure just taking it a day at a time is the best thing I can do :)

PS... I'd love to chat with you :)
Best way to contact me is leaving a message on my blog :) You can get to it by pushing clicking the home under my name :) Or just send me a message :)
Diagnosed with Fibro - October 2008
 
Gabapentin 300mg/Paroxetine 40mg/Armitriptyline 40mg to help me sleep and anxiety 
 
Lorazepan... when things get real bad.
And I'm not fond of people who don't label pill bottles.
                                                                                                                 
 
 


honeyprincess21
Regular Member


Date Joined Oct 2008
Total Posts : 99
   Posted 11/19/2008 12:46 PM (GMT -7)   
I completely understand. I would love to have my friends over, but they don't really understand that even sitting on the couch watching movies can get to be too much for me....like feeling like I have to be "on". And I'm just not the kind of person who can ask them to leave so what can ya do? Last night I was supposed to hang out with my 2 closest friends but they wanted to come over at 8:30. 8:30?!?! Seriously??!!! I'm ready to die on my couch by then! How old does that make me feel? lol

I will definitely message you when I get home. I'm stuck at work and in pain and this forum is the only thing keeping me sane, I swear!
Endometriosis since 2002 diagnosis via laparoscopy
5 laparoscopies for Endometriosis from 2002 - present
Anxiety since 2004
Post Traumatic Stress Disorder since 2005
GERD since 2008
Fibromyalgia since 2008
Colonoscopy - 2008
Endoscopy (EGD) - 2008
 
Currently in Physical Therapy for Pelvic Floor spasms. Also for lower back, hip & thigh muscular problems.
 
* Baclofen
* Xanax for Anxiety
* Fish Oil Capsules
* Iron Pills
 
!!! At my wit's end with being "broken" !!!
 


QTKaren
Veteran Member


Date Joined Apr 2008
Total Posts : 605
   Posted 11/19/2008 12:59 PM (GMT -7)   
Ahhhh fatigue.  It used to be the pain over shadowed everything else but now it's mostly the fatigue.  It's not that the pain has gone away but the fatigue has surpassed it in my thoughts.  I come upstairs around 10pm every night as Jayson has decided he cant sleep anywhere but the sofa and I used to just stay up late watching tv while he slept but now he has decided that he cant sleep with the tv on.  Big surprise seeing as when he is tired during the day he can conk out for up to 5 hours with the tv going.  The other night around 7or8 I had takin some meds and was dozing off in my chair so Jay gets all pissy with me cause I have a cold and I was snoring so he keeps saying if your tired go to bed and I'm telling him there is no way I am ready for bed at 8pm for the night.  But I got all my stuff together for the night and went upstairs anyways since he was being such a poop.  And of course I didnt go to bed for hours but after a few hours I was dozing at the comp.
 
And to make things worse when I am tired,not sleeping mind you but just tired I lose feeling in my fingers and drop my cigarette over and over again so needless to say my computer keyboard looks like hell with all the tiny burn marks on the keys from dropping my smoke.  I retireve it right away but its too late for no burn mark.  If I get very tired and am dozing I dont smoke at all BTW for safty reasons.  The other night though I guess I totally nodded off because all the sudden there was this huge bang sound and I realize it was my head hitting the edge of the desk!!!!!  It's like I heard the sound before I felt the pain but ya I left a nice divot in my head on that one.  So my whole night consists of sitting up at the comp for a few hours and then back to bed for one hour and then up again so if you add up the hours I might get 4or 5 hours sleep but then agian you have it figure it takes a few to fall all the way to sleep once I lay down so there goes about 10 minutes and I am dragging butt all day long.  And this is with Ambien and Melatonin as a sleep aid.  At least my bed finally feels good with the memory foam topper so its solid sleep when I do lay down.
 
But what really got me the other night is that Jay is constantly falling asleep in the couch and to have the nerve to gripe at me about dozing off just made me so mad.  Yesterday was like most tuesdays and I was out shopping with my daughter all day and watching kids too and Jay calls me to ask when I was coming home and I told him why did he even care with his behavior the night before.  I just have no time to play games with anyone lately and get mad easily lately.  He apoligized and all is well but I better not hear it again.  And then to top things off my daughter said her and the kids would not be having Thanksgiving dinner with us as with her hubby out to sea its too hard for her to bring the kids by bus and drag all their stuff and then have to stay 2 days in my moms small apartment so I will be going out to her house the day after Thanksgiving to do it all over again for a late holiday for her kids.  I asked her then why dont you just make dinner for you and the kids and she said omgggg mom there is no way I can cook that huge meal by myself with all the kids here sheesh wimp lol.  Her first thought was why didnt I pack up all my left overs and bring them to her and the kids the day after and I told her you think I am coming between a fat man and his turkey? na uh no thanks lol plus the kids need that whole smelling the turkey all day long thing to get the full impact of the holiday and of course since Jakob recently did a Thanksgiving program at school he can tell all the lil kids what the true meaning of the holiday is and we will still all be together for x-mas eve.
 
So for today I will try and stay awake long enough to walk over and meet jay at work and make him at least one hot meal today oh and laundry and dishes and vaccuming yikes guess I better stay awake ugh.  Everyone have a good day or try to.
 
Soft Hugs,
Karen
 
 
Karen
 
Mom of one gramma to 4 lover to One
 
Fibromyalgia,IBS,Stroke x2,endometriosis,Diabetes type 2,neuropathic pain,nerve damage due to tailbone removel,nerve damage due to fractured back,deppresion,high blood pressure,severe nausea,atrophy,chronic pain,nerve damage due to botched bladder surgery,torn hip joint,hypoglycymic
 
Norco(double strength vicodin) 80 to 100 mg @ day
Ms Contin(morphine) 45 mg @ day,Lyrica 600mg @ day
 
 
 

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