Post Edited (ALMommy82) : 11/19/2008 8:02:22 PM (GMT-7)
Hi & welcome!
I am so sorry for all the pain you are going through. The hardest part for me of Fibro was getting others to believe I have it. I still have family members who think my doctors are all quacks and don't know what they are talking about.
What made the best difference was finding a doctor who was familiar with Fibro. It is so nice when your doctor understands and believes. I hope you are able to find a doctor who is familiar and treats Fibro. That will help so much.
The Fibro 101 thread the others mentioned is a great place to start reading. It is very helpful and helped me understand some things better. It also has some great ideas to help with some of the symptoms.
I also have the really bad pain once in a while where my skin hurts to the touch. Usually it is the back of my heals. On those days I can't even put on shoes, so I where shoes without heels.
I guess the most important thing for you right now is finding the right doctor. That will help so much to getting you on your way to feeling better! I wish you luck and hope you are soon feeling better.
Never regret something that made you smile!
Hi, ALMommy, welcome to the family. I would suggest you find a new dr. FAST! I just got rid of an idiot that didn't believe me. They aren't helping you, if they don't listen and dismiss what you say. I also have extremely sensitive skin, everything bothers it. I found by accident that flannel sheets work for me, I use them yr round. I also always use softener in the wash. I do not do bras, they hurt every spot that they touch.
Check out the Fibro 101 on the front of the site, they list a lot of the symptoms of FMS. Print it out and bring it to a real dr (one who listens), you will probably have tests to rule out other things, but that is how they get a dx of FMS. They will also check your body for tender points. A competent dr. will test, not pontificate. I wish you luck.
I hope you will read over past posts to get a lot of info, ask questions, share what works for you. We are all in this together.
God bless. Alice.