As you can see by the title of my thread...I'm new here. I'm not really sure where to start...but bottom line is: I think I have fibro and I'm looking for support, advice,etc. I am 31 years old, married to a great guy and have an adorable one year old little boy. I am a RN and I work in telephone triage.
Ok....hmm..where to start. I guess I've had some of the sx of fibro for quite some time...probably years...but my sx were always fairly mild and not enough to slow me down too much. The main stressor in my life has always been endometriosis. I was formally dx in 2000 but I know I had it long before that. I've had numerous laparoscopies...5 I think....have bee on countless medical tx including Lupron...but it keeps coming back regardless of what I do. I know there can be a possible link between endo and fibro..that's why I mentioned it.
Back to the fibro...my symptoms really seemed to flair about five months after I had my son. I just chalked it up to my endo sx coming back or the added strain of carrrying around an infant all the time. It was probably May of this year that things started getting bad. I started waking up and literally feeling like I had been hit by a truck...massive fatigue, frequent headaches, and very sore, achey "flu like" muscle pain. Like I said...I at the time...just assumed my endo was coming back...so eventually..another laparoscopy was scheduled for August of this year.
During the time I was waiting for surgery...things just got worse and many strange sx started occuring. I started having (and still do have everynight) horrible soaking nightswets. I feel like I am so cold all the time but then I wake up in this dripping sweat. I have been having very, very frequent severe migrane like headaches. The muscle pain and fatigue are the worst they have ever been....I especially notice it in the cold weather..or if the weather changes.....(I live in Wisconsin). I notice it especially in my neck, shoulders, elbow area, hips, and low back. I also have noticed just sporatic joint pain....one day it's my knees, the next day its my elbows,etc,etc. My muscles cannot stand any pressure applied to them....it feels like thy are bruised. I especially notice it if my son pushes off on me with his little feet,etc. I have also noticed that I bruise extremely easily. My PMS has also been very bad recently....and the fibro like sx really flare during this time.
My other big problem is some right sided upper back pain. I've had it since September...I went to my PCP and he dx me with an ulcer and put me on prilosec. Well...the med hasn't helped...the back pain is severe at times...worse when I take a deep breath and worse when my other sx are worse. I wonder about costochondritis...but like I said...the majority of my pain is in my back.
I also should mention that I had a horrible reaction to the flu shot and had a similar reaction three years ago. about five hours after the shot...I developed wheezing, coughing, and SEVERE body aches and fever.
So...I finally got sick of things and went to my PCP's partner on Monday. She said fibro could be a definite possibility but wanted to rule out other things first. She ran a cbc, sed rate, lyme titer, and thyroid tests. Everything came back normal. So..that brings us to today...I have to talk to my doctor to see what the next step is. I'm hoping for a rheumatology referral.
Ok..I must stop..I'm sure you all are sleeping by now. Just wanted to introduce myself and my story. Do any of you think this sounds fibro like? Ok...thanks for reading and I hope to get to know you all very soon.