SLEEP APNEA- help

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KE08
Regular Member


Date Joined Nov 2008
Total Posts : 92
   Posted 11/20/2008 2:00 PM (GMT -7)   
Hello:
 
I have been reading this site for a while (great site).  I know that I have FM which sucks, but my Dr. said my ANA test is borderline postive (lupus??) maybe.  My doctor really doesn't think I have Lupus- but I'm not sure what to think anymore.  Anyway, I have been having bouts of sleep apnea (scary!!).  I went to see an ENT he says that it very common, but wants me to have a sleep study (thank God). 
 
I'm curious if anyone have/had sleep apnea or a positive ANA test??
Thanks!

CathyA
Veteran Member


Date Joined Mar 2005
Total Posts : 1431
   Posted 11/20/2008 2:21 PM (GMT -7)   
Hi KE08,
I have sleep apnea, but a normal ANA. I've been using CPAP for about a year and a half. It has helped alot with fatigue, but wasn't the cure-all that I had hoped for. But it definitely helps with the fatigue. Finding the right settings, mask, etc. can be a challenge. good luck to you. Feel free to ask any questions you might have. When is your sleep study? They are not alot of fun, since you're covered with wires. I had to have xanax just to fall asleep.
A good site for learning about sleep apnea and asking questions is cpaptalk.com.

springfling
Veteran Member


Date Joined Mar 2008
Total Posts : 519
   Posted 11/20/2008 2:51 PM (GMT -7)   

Hi,

I was diagnosed with severe sleep apnea in June? (I can't remember alot of things anymore!) I have been using my cpap for 5 months or more. It has helped me some...I get up in the mornings, but still have the fatigue, falling asleep all the time, etc. but I have noticed more energy than I've had before.

I really thought the test and everything would be awkward, but it was like going away to a motel. You know the camera is on the wall, but you forget after awhile. As for all the wiring hooked up to you - it is a pain, but I was so tired by the time the lights went out that I fell right to sleep. Woke up a few times during the night, but all in all it wasn't too bad.

It takes some time to get comfortable with the cpap, but after that you will rest better. Good luck and feel free to ask all the questions you want. You will find there are many here that have gone through it and willing to give you advice.

 


Never regret something that made you smile!

Fibromyalgia*Osteoarthritis*Sleep Apnea*Depression*Fatigue*Allergy/Sinus


KE08
Regular Member


Date Joined Nov 2008
Total Posts : 92
   Posted 11/20/2008 3:00 PM (GMT -7)   
I sometimes wake up gasping for air. Now I'm afraid to go to sleep.  My doctor says it normal to stop breathing for at least 10 seconds at a time.   I would prefer to have minor surgery than a sleep mask.  How long do you have to wear it?

CathyA
Veteran Member


Date Joined Mar 2005
Total Posts : 1431
   Posted 11/20/2008 4:51 PM (GMT -7)   
Sleep apnea can be a life-long condition, so you would need to use the cpap your whole life. Sometimes people lose weight and find that they don't need it any more.
KE08.....are you by chance going through perimenopause? My apnea really started up then.
I'm very claustraphobic, and ended up with a "Swift nasal pillow" system. Its not bad. The little mask is just over my nostrils. I have a data capable machine, which means I can see how I did in the morning, in terms of my apnea/hypopnea rate and my leak rate. There's a big challenge with leaks with just about any of the masks, and if your leaking, then its not working for you, so you need to fix it.
Springfling..........can you check your data each day?
I actually learned how to adjust my own treatment. Some docs don't like this, but a good one will work with you.
KE08, when I was going through perimenopause (about mid-late 40's), I would wake up gasping and in a panic attack almost every night. Not fun.
Alot of people say they just couldn't tolerate a mask, but when they start getting better sleep than they have for years, and feeling better during the day, the mask doesn't seem so bad!
Another issue is alpha wave intrusion. Supposedly, this is common in us with fibro. It means that just as we are falling asleep, our brains tell us to wake up.
I don't know about the rest of you, but I have always woken up with every little noise during the night. It seems like I'm hyper vigilant. Are you that way too?

RedDiane
Veteran Member


Date Joined Jun 2007
Total Posts : 906
   Posted 11/20/2008 4:54 PM (GMT -7)   
You generally wear the CPAP whenever you sleep, although I take naps sometimes without. I've had mine for a 1 1/2 years and have worn it constantly for a year. It can take a lot of trial and error to find the right mask. I still have terrible fatigue, although my sleep dr. thinks it might be from heart problems. But my dad had sleep apnea and never got it treated and he died from a heart attack in the middle of the night. I hope that my CPAP is helping me to keep from having a stroke or heart attack. Once you get used the the machine, it's hard to fall asleep without it. My dr. did tell me if I lost 75 pounds I might not need the machine. Good luck, Diane
Fibromyalgia since 1984, Sjogren's, Hashimoto's Thyroiditis, Auto-immune eczema, GERD, osteoarthritis, IBS, RLS, sleep apnea


KE08
Regular Member


Date Joined Nov 2008
Total Posts : 92
   Posted 11/20/2008 5:09 PM (GMT -7)   
I'm 39 years old, my doctor asked me do I have panic attacks when I wake up from the sleep apnea? I guess I do-but who wouldn't!!!!:+). I pray I don't have a heart attack in sleep (sorry to hear about your dad). That's why I'm seeking treatment. I'm not overweight (well maybe a little-LOL) I could lose 5 lbs.

I think being scared only makes it worse. IF ITS NOT ONE THING ITS ANOTHER- ALL THE TIME- :+).

CathyA
Veteran Member


Date Joined Mar 2005
Total Posts : 1431
   Posted 11/20/2008 5:22 PM (GMT -7)   
Hi again KE08,
Do you still have all your parts? (haha.......ovaries and uterus?) It would be very unusual for you to have a heart attack at your age, if you've been making hormones.
Did you have panic attacks before this? My perimenopause was absolute hell for me. I wished I'd known sooner about the sleep apnea. What makes me mad is that I had a sleep study during this time, and only slept about an hour and a half, but my neurologist (who was supposedly a sleep specialist), said everything looked fine. GGGrrrrrrrrr. It couldn't have been, with so little sleep.
Are you on any medication for your anxiety? You shouldn't use xanax all the time, but it sure helps occasionally. Do you have GERD? Sometimes acid can come up our esophagus and go into our trachea and make us feel like we're suffocating.
My husband is soooooooooo much more sensitive than he used to be. I can remember going through an absolutely horrible time......fibromyalgia, panic attacks, migraines every day, anxiety constantly. One night I freaked out, feeling like I was going to die, and he said "What is it NOW??" Fortunately, he's there for me now.
Are you married and do you get any support from your husband?
I know how scary panic attacks can be, and I feel for you. (((((((((((hugs)))))))))))) But you will survive, and you will feel better sometime!
Panic is such a great impersonator. It can feel like you're absolutely dying. But its just panic. I guess I went through it so many times without dying, I finally realized that I wasn't going to die, and it was a little easier to tolerate.

KE08
Regular Member


Date Joined Nov 2008
Total Posts : 92
   Posted 11/20/2008 8:19 PM (GMT -7)   
Hi..yesss I have all my body parts (for now) LOL.. no real support system.  My 13 year old daughter is heaven sent..(she a big help).. My mom helps with the kids, but is not interested in what I'm going thru..(she think its in my head).so..I don't even try to tell her anymore..(I roll solo now).
 
I don't have a husband anymore (divorced)..nor am I dating.  I will probably get back in the swing of dating soon, but he will really have to be an understanding person (rare)..HAHA.
 
Yes, panic attacks are a drag.. I been through them before (many times), but sometimes it still feels like your dying.  I have been off work for 3 weeks (with no pay).. I just wish the weather would clear up so I can get some relief with this FM..its been really really rough lately. 
 
I guess it could be worst-right yeah
 

CathyA
Veteran Member


Date Joined Mar 2005
Total Posts : 1431
   Posted 11/21/2008 7:16 AM (GMT -7)   
I'm learning to not fight the panic. My first response to them has always been to fight them and run. I could never outrun them though!

Then I talked to some people who have them and have developed the attitude "It is what it is"...........and they try to just allow the feeling without fighting it or running. Does that make any sense to you? It was a hard concept for me to deal with at first, but then I think I started to get the hang of it. When it comes on, I just think "Okay......its just a panic attack. Its not going to kill me. I'm not going to fight it. I know it will end."
I went through a long period of time of keeping a brown paper bag near my bed, and as soon as I felt the panic coming on, I would breath into it. I do think that sometimes these attacks are from a biochemical imbalance that causes hyperventilation, which brings on the panic, and not really anything psychological.
Really try to get outside, even when its cloudy. The good stuff still gets through the clouds and helps your skin make vitamin D.......which helps your mood.
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