shivering, squeezing feeling

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Veteran Member

Date Joined Jun 2008
Total Posts : 846
   Posted 11/21/2008 10:32 AM (GMT -6)   
I love these "do you have" threads. It always makes me feel better when I know a symptom is common among us!

I used to get this when I first got hit, then it went away. I am in a flare I guess, and this just came back. It's so hard to explain, but here goes:

Do you ever get a shivering sensation down your spine. It almost feels liek when someone is scratching at a chalkboard. It's a twisting, squeezing, tightening kind of shiver, starts at the top and goes down my spine. Not exactly painful, but very uncomfortable. It then ends in a painful squeeze in my hips adn down my thighs. Then it starts all over again. When this happens, I also feel liek I have a hard time controlling my legs, from the hip area. I feel very unsteady on my legs, lose balance, and can walk stiff legged too. I think that is b/c teh hips feel so strange and tight, I'm compensatign by tightening all my muscles in my leg. If I concentrate adn will myslef to walk normally, I can, but then the squeezing, tightenign feeling in my hips and thighs intensifies.

I told you it was strange and hard to explain ;) Can anyone relate?
Waiting for appointment with rheumy (March 2009) to get an official dx. waiting, waiting, waiting....
Taking malic acid/magnesium combo, what a life saver! and amitriptyline

Veteran Member

Date Joined Nov 2008
Total Posts : 2858
   Posted 11/21/2008 10:43 AM (GMT -6)   

Absolutely.  I have been telling Sherrine that of all my fibro symptoms at the moment, these 'shiver, goosebump' sensations are driving me crazy.  I was standing in a store the other day wondering what I was in there to buy, when these 'shivers' crawled up my leg into my back.  I get them all over, however, not just my spine.  So, you are not alone!



Veteran Member

Date Joined Jun 2006
Total Posts : 1156
   Posted 11/21/2008 10:33 PM (GMT -6)   
Oh good, it is not just me. I honestly thought I was the only person who shivered.

It can happen anywhere but the larger number of incidences occur when I am in the pool. I will swim a length, stop and shiver. It is so weird. I thought it was caused by the temperature dropping but that is not always the case.


Sera Smiles
Veteran Member

Date Joined Nov 2006
Total Posts : 671
   Posted 11/22/2008 12:14 AM (GMT -6)   
I have experienced this too- mine are a little different, and hit the back of my left thigh as I either climb the stairs, or reach high for something in the cabinet. When it happens I think I am going to fall, the muscles literally sieze up and cramp like mad. The pain is not like anything I know, except for one thing- it feels very similar to how horrible menstrual cramps felt when they were so bad and would radiate down the back of my thighs. I am working now with a fabulous massage therapist who specializes in FM and has found, after just 4 treatments, where all of my tension points are and is helping me work out these kinks. But I know how it feels and it is extremely painful.

Veteran Member

Date Joined May 2008
Total Posts : 1081
   Posted 11/22/2008 10:51 AM (GMT -6)   
Is this muscle spasm? I used to take zanaflex for muscle spasm, it worked well. Now I don't have so much, I keep Flexeril in my toolkit.I do get spinal pain, though, right at my tailbone and it is awful. Of all the fibro symptoms I find this to be the worst. Pain Meds don't work. Only amyltriptilene and sleep.
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