I love these "do you have" threads. It always makes me feel better when I know a symptom is common among us!
I used to get this when I first got hit, then it went away. I am in a flare I guess, and this just came back. It's so hard to explain, but here goes:
Do you ever get a shivering sensation down your spine. It almost feels liek when someone is scratching at a chalkboard. It's a twisting, squeezing, tightening kind of shiver, starts at the top and goes down my spine. Not exactly painful, but very uncomfortable. It then ends in a painful squeeze in my hips adn down my thighs. Then it starts all over again. When this happens, I also feel liek I have a hard time controlling my legs, from the hip area. I feel very unsteady on my legs, lose balance, and can walk stiff legged too. I think that is b/c teh hips feel so strange and tight, I'm compensatign by tightening all my muscles in my leg. If I concentrate adn will myslef to walk normally, I can, but then the squeezing, tightenign feeling in my hips and thighs intensifies.
I told you it was strange and hard to explain ;) Can anyone relate?
Waiting for appointment with rheumy (March 2009) to get an official dx. waiting, waiting, waiting....
Taking malic acid/magnesium combo, what a life saver! and amitriptyline