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K9
Regular Member


Date Joined Nov 2008
Total Posts : 263
   Posted 11/21/2008 7:56 PM (GMT -7)   
Hey hi everyone,
 
I'm a newbie here - just registered today. I was just recently diagnosed with fibro after a whole year of my doctor trying to figure out what the heck was wrong with me. She suspected fibro when a prescription for Lyrica seemed to work. I did get terrible edema from it though. But then I was sent to a rheumatologist and she diagnosed it right away. I was taking T3s for the pain, which sets in anytime between 10:30 am and 3 or 4 pm. Then it gets very intense, and I am uber-exhausted. Normally I'm a very vibrant person with a ton of energy, so this totally sucks. The pain I could handle (I think) but the fatigue is horrible. I'm working half-time and just submitted an appeal to my insurance company for disability. (They originally refused it due to what my dr. wrote on the submission.)
 
Anyway, I was wondering if anyone else simply could NOT tolerate amitriptylene. I tried 10 mg and I was just a zombie the whole next day. Then I tried to cut them in half, and the effects of the drug ("drowsiness"....times 10 to the infinite power) lasted all day til about 8 pm. My dr. said get the pharmacist to cut them in 4. So now we're down to 2.5mg and I'm still so doped up all the next day I can't even get up.
 
Lyrica works well - I'm now on 150 mg twice a day and that works well for the pain. I also have Tramacet for break-through pain and that works well too. Sometimes when I do an exercise (usually with my German Shepherd who I used to train before I took ill) I get an extreme headache the next day. I can't feel it at the time, but the next day I almost die.
 
So that's my story. I feel bad complaining when I review the people on this board. I don't have any other diseases or problems and I'm not depressed. But I have big career ambitions and the lack of energy is destroying my chance at achieving my life-goals. So I hope it goes in remission, or some of these meds work. I've been "experimenting" with dosages and such for 2 weeks now.
 
 

Sue2z
Regular Member


Date Joined Jul 2008
Total Posts : 368
   Posted 11/21/2008 8:57 PM (GMT -7)   

Hi and welcome.   I use lyrica and antiflammatory and they really help but I also had to go on narcotic partch as I cant swallow pain killers as they make my colon bleed, but it is good because the narcotic patch virtually takes it away.

As for tiredness most day I sit in a couch and constantly nod off even though I get up everytime I wake and I do something but most days the tiredness rules.  Maybe meds but could also be cronic fatigue which is common with fibro.  sue2z :-) :-)


Fibromyalgia, ulcerative colonitus, arthritus, bi-polar
norspan patch, valium, prothiedon, lyrica


CyndiO
Regular Member


Date Joined Jun 2008
Total Posts : 90
   Posted 11/22/2008 7:26 AM (GMT -7)   

Welcome Schutzhund!!

Glad that you joined us! I can totally relate to the fatigue as I believe that is how my fibro started. I had the crushing fatigue long before the pain introduced intself. Check out the Fibro 101 thread...there is some good info in there. You may also want to check out the info on malic acid/magnesium supplements which help some of us improve our pain and energy. If you are interested in taking them, check with your doctor and/or pharmacist to make sure there are no contraindications with any of the meds you currently take. There is also some prescription meds that some use for energy (Adderall, Provigil for example). This disease can really knock the wind out of you and there are a lot of adjustments that I have had to make. I have had to learn to pace myself and learn what my new limitations are. Overdoing can really set you back and leave you with even more fatigue and pain. I can't really help answer your question about the amitriptylene as I have not taken that particular med but I just wanted to welcome you!

((soft hugs))

Cyndi


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40567
   Posted 11/22/2008 8:57 AM (GMT -7)   
HI Schutzhund,

Welcome to the fibromyalgia forum. I take adderall for fatigue, it is something that you might want to talk to your doctor about. I can handle the pain, but not the fatigue. I spent close to two years in bed, and I am so greatful for the adderall. I can live a nearly normal life now.

There are other things that help if you don't want to go on anymore medications. That is malic acid. I have started that a while back and it does help.

I wish for you the best.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 11/22/2008 9:14 AM (GMT -7)   
Hi Shutzhund and welcome. I'm on 100 mg of amitriptyline a day so obviously didn't have the same reaction you did to it. I've been on it for 10 yrs.
 
Yep, the fatigue is horrible and so very frustrating for me. That is how everything started for me too. Yesterday afternoon after watching grandson it was like every bit of energy had been sucked out of me and I had so much that needed to be done but there is no pushing when it gets that bad. I have anxiety and the adderal I couldn't get to help without causing more anxiety. I can push through the pain but the fatigue is like a brick wall.
 
This is a great forum and you will get lots of ideas on how to help.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


springfling
Veteran Member


Date Joined Mar 2008
Total Posts : 519
   Posted 11/22/2008 12:21 PM (GMT -7)   

Hi & welcome!

You don't have to apologize for not having anything wrong other than Fibro. That is bad enough! I have finally gotten meds that help with my pain, but the fatigue is really bad. I fall asleep at my desk at work all the time now.

Maybe your Rheumy will be able to give you something to help with energy. My sister (who also has Fibro) is taking Provigil & it has really helped her with fatigue and energy. I couldn't get it from my Rheumy because of some of my other meds. I took Lyrica for approx. 6 months, but didn't have very much luck, just gained alot of weight. I have read where it has really helped others, so just depends on the person.

Read the thread (2nd from top) Fibro 101. It has some good information and advice. I hope you are able to find something that helps you. Hang in there! You'll have good days and bad.

Hugs!!  Margie


Never regret something that made you smile!

Fibromyalgia*Osteoarthritis*Sleep Apnea*Depression*Fatigue*Allergy/Sinus


jhawkfan
Regular Member


Date Joined Oct 2008
Total Posts : 86
   Posted 11/22/2008 2:23 PM (GMT -7)   
 
 
  Hi Shultzhund and Welcome!! I just wanted to let you know that you never have to worry about saying anything wrong here. I have not belonged here
  very long, and I can tell you that we support each other no matter what, through the good times and bad. I hope you take advantage of all the
  great info on Fibro 101. Take care and keep in touch!      
Gentle Hugs,
Sheri
 
Fibromyalgia,Epilepsy,RLS,DDD
 
Cymbalta,Tramadol,Gabapentin,AmbienCR,Zonagran,Phenobarbital,Nystatin Powder
Fish oil, Vitamin E, Baby ASA, Multi-Vitamin,Berberine,Caprylic Acid,Malic Acid/magnesium
 
 
  
 
 


K9
Regular Member


Date Joined Nov 2008
Total Posts : 263
   Posted 11/22/2008 2:26 PM (GMT -7)   
Thanks for the welcome everyone!
I'm trying the aerobic exercise (treadmill) every morning for 30 minutes. It may take a while to kick in. And I've totally dumped the amitriptylene. It was nasty. I'll check out the Fibro 101 thread.
Thanks again.
I have fibromyalgia ~ nothing else that I know of! I'm very humbled by reading all of your signatures - gosh - many of you suffer with so much more than me! 
 
Lyrica 150mg b.i.d.
Tramacet for breakthrough pain
Trying 2.5mg Amitriptyline for sleep
 


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 11/22/2008 6:59 PM (GMT -7)   
Hi and welcome!

I too can not take amitrip...zombied me out also. I didn't persevere as long as you did because after trying so many things it's pretty easy to spot something that's just not going to be something I can live with. A few months ago I talked to my doc about Provigil. It's often used for folks who need to take long acting pain medications to help keep you from being sleepy all the time. Since I'm on oxycontin and percocet for pain I was not as alert as I needed to be to drive or function. One morning on my way to work...when I WAS working...I was at a stop light and realized I had just dozed off for a couple of seconds. Thank the Lord I wasn't moving when it happened. That's when I spoke to my doc who had no problem letting me try it. Works very well. I don't get revved up by them, just helps keep me from dozing off all day.

Glad you've joined our family and do check out the 101 thread. We have some great Fibro Awareness ribbons free for the asking. The information to obtain them is in that section.

Hugs,
Chutzie
Co-Mod Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, collapsed disk, dermatitis herpetiformus, osteo arthritis in spine and other locations.
***************

The only difference between genius and stupidity is that genius has it's limits. Albert Einstein: (1879-1955)


payroll~lady
New Member


Date Joined Nov 2008
Total Posts : 14
   Posted 11/23/2008 2:50 AM (GMT -7)   
hi, shutzhund! i couldn't tolerate the amitriptyline at all. started out with 5 mg & gradually increased, and just zoned right out. after driving to work one day and not remembering how i got there, i was taken off it (gradually decreased).

i tried ciprolex (like lexapro) next, but that didn't help at all. i'm currently on 60 mg of cymbalta which has improved both my sleep and pain levels. i also take tylenol or advil as needed if i'm extra sore.

glad to see another canadian here.
fibromyalgia ~ cymbalta 60 mg, flexeril 10 mg, advil/tylenol
hypothyroidism ~ synthroid 112 mcg
gerd ~ nexium 40 mg
peri-menopause ~ yasmin 28


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 11/23/2008 3:46 AM (GMT -7)   
hi, again, Schutzhund: i wrote a long winded reply including a question about the Amyltriptilene on another thread, Canadians, before I checked this latest thread. You need not reply as you have answered my question here. I guess the amyltriptilene is a no go for you. i had problems early on, as you described, then, gradually learned some tricks. First, take it about two hours before bedtime. It is slow to metabolise. At the time it was prescribed for me, I had no other options. Elavil (amyl), or suffer. Now, apparently, there are other things available. I will look forward to hearing from you again.

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 11/23/2008 12:17 PM (GMT -7)   

Hi, Shutzhund, and welcome!  I'm so glad you joined in!  You have come to a great place.  We have wonderful people that have good ideas to help you live a full and enjoyable life with fibro.  I guess I'm a day late and a dollar short!  Everyone has filled you in and led you to the Fibro 101 thread.  You will learn a lot and we will help with any questions you have.  Hope to hear more from you soon!

Sherrine 


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 11/24/2008 6:52 AM (GMT -7)   

Hi Schutzhund and Welcome!

I got fibro about 7 months ago and along with that, depression. They put me on Zoloft and that helps with my fatigue and I drink a couple cups of coffee in the morning. I try to take a couple rest periods throughout the day. I too used to have "tons" of energy so this has been frustrating for me also as I can only do "so" much in one day.  

I have not been able to return to work since this hit and have applied for Disability. I had a very good job, with great people, good benefits and was just at a point where I was going to buy a townhome- and than the rug got pulled out from under me. shakehead

We never know what life is going to throw at us but I know it could be worse. The Lyrica sounds like it is working for you and maybe with other meds you'll be able to find something that helps with the fatigue- so don't give up hope yet on your goals. You may be able to achieve them, just not as fast! :-)

The group is great here and with "support" it makes a difference in how you feel too, I know it has for me. Nice to meet you!

GamJill

 


 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
 
Zoloft, Tylenol 4000 mg., Darvocet  

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