newbie help :-)

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LilMissSunshine
Regular Member


Date Joined Nov 2008
Total Posts : 40
   Posted 11/23/2008 12:37 AM (GMT -7)   
Hello Everyone!
I am very new to this all but found this site and wanted to reach out to people who are dealing with fibro. I have not been diagnosed yet, but think I have finally found my answer. My story is a long one so please bear with me as I share it. It's going on three years this month when this all started... I had a cyst on my ovary burst and was put on birth control, shortly after I developed what the doctors thought at the time was asthmatic bronchitis (however, ended up being the severe respiratory infection RSV) and was given all kinds of antibiotics and steroids. I was a senior in high school, ballerina, middle school cheerleading coach, good figure, good life... and I watched things slipping away from me. I had to stop dancing, ended up with asthma that I still have to this day, and started getting these weird rashes that didn't itch, just bumps. They treated the "rash" with more antibiotics. From that point on my body stopped working correctly... I was tired ALL the time and caught anything anyone had just by them looking at me. I was always sick, always feeling bad... and nothing seemed to help. The main thing was that I was tired. I had entered a community college and I can remember being so depressed and so upset because getting out of bed and going to class was HARD... I didn't understand how I could be that tired, especially since I had never had that problem before. It was such an indescribable exhaustion, like my mind and body had been put through a ringer. So it's been a journey... the fatigue had grown into fatigue AND pain...then into REAL bad pain. I've had weird stomach problems and been tested for lupus and crohn's disease(baffled the dr when that came back negative). Over the summer my mom took me along with her to see her friend a few hours away and her daughter (in her 40s) has suffered with fibro since at least college. In fact, she was not able to finish medical school because of her fibro. Upon hearing me tell her my problems she suggested that I could have fibro. My mom then came forward saying she had suspected fibro because some symptoms I had (hands feeling swollen and tingly but no visible swelling, joint pain) were things she had when she suffered from fibro. I read somewhere that fibro can be genetic? Now my mother no longer suffers from fibro... for some reason when she went through menopause she came out of it with no more fibro! (it could be anything- but we like to say God healed her) So I guess to list my symptoms: fatigue, muscle's feel weak, pain especially in shoulders,back, and legs but generally everywhere, hands and arms get tingly, stomach problems like IBS, sleep can get thrown off SO easily, developed food sensitivities, rash (or small red bumps) on skin... ehh that's all I can think of for now haha... I'm evaluating myself as I type. Does my story sound like that of fibro? Feel free to ask me more questions, I'm sure I left things out. At this point I've been through so many diagnosis and possibilities but been disappointed when the results come back negative... I'd really love to know why my body HATES me.

jhawkfan
Regular Member


Date Joined Oct 2008
Total Posts : 86
   Posted 11/23/2008 1:08 AM (GMT -7)   
    
 
 
 I am not sure if you are up at this time of morning to read this, but at least it wiill be there in the morningfor you. Many of us were active, full- fledged out and gettem kind of women until this took over. I have made the choice to not be a victim and learn everything I could about this illness. Yes. it sucks, yes, it takes things away from you...but you MUST find a way through your sprirituality, us, or any other way possible to make this ok. The way I see it is what we owe the next generation. Read everything posted for fibro101. read all the info given to you from people living with this illnesws and then, little by little, you will come to understand it all. Most of us have been put through the ringer anbd not diagnosed the first time and we have become strong woman because of  it, The only other option is to be a victim, Welcome and come in and kick your feet up. You are at home. Nothing you say is too silly, nothing you say is too angry...You are home. 
 
Gentle Hugs,
Sheri
 
Fibromyalgia,Epilepsy,RLS,DDD
 
Cymbalta,Tramadol,Gabapentin,AmbienCR,Zonagran,Phenobarbital,Nystatin Powder
Fish oil, Vitamin E, Baby ASA, Multi-Vitamin,Berberine,Caprylic Acid,Malic Acid/magnesium
 
 
  
 
 


LilMissSunshine
Regular Member


Date Joined Nov 2008
Total Posts : 40
   Posted 11/23/2008 4:57 AM (GMT -7)   
thank you so much for the warm welcome!

i am looking to get diagnosed professionally... how do you recommend avoiding the doctors who aren't going to be helpful at all?

Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 11/23/2008 6:46 AM (GMT -7)   
Ask the doctor's receptionist when you call if he treats fibromyalgia patients. That should do it. Welcome...
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 11/23/2008 7:15 AM (GMT -7)   
I am so sorry you're experiencing all this at such a young age. Then I look back and realise, as early as junior high I was on antibotics for strep throat, continuously, and only attended school half of the time. Even in university, I had to pace myself. Taking like 2, 3 courses at a time. The secret is learning to pace yourself. For example, I am obsessive about housework. We are living in this beautiful modern house right on the water, I want it clean and beautiful, all the time. Unfortunately, I have to make myself take a rest every two - three hours. I used to slip into the ladies room at Junior college where there was a little coach and sleep through my lunch break. I needed the rest more than the food. That's how I survived. Good luck, I hope you get some answers. Also, the genetic part, my mom is in a motorized wheelchair, she has MS.
Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression.
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 11/23/2008 7:34 AM (GMT -7)   
Hi LilMissSunshine and welcome. It doesn't matter what kind of doc you go to as long as they believe in and treat fibro. Many go to rheumatologist but like Jeannie said ask if they treat fibro before you make an app. They need to rule out MS, lupus and RA before you get a dx which they may have already done.
 
My fibro started with the fatigue before the pain. It's hard to describe when it feels like every bit of energy has been sucked out of your body. I hate that worse than the pain.
 
Read the fibro 101 thread, second on first page, it contains a lot of great info.
 
This is a great group of people and there are many your age on here.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 11/23/2008 12:13 PM (GMT -7)   
Hi, and welcome!  You have gotten really good information.  As stated, read the Fobro 101 thread...the second thread on the forum.  Once you educate yourself about fibro that will help you in accepting this and moving forward to enjoy your life.  Don't hesitate to ask questions.  That's what we're here for.  Hope to hear more from you soon!
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40590
   Posted 11/23/2008 5:24 PM (GMT -7)   
Hello LilMissSunshine,

I too would like to welcome you to the forum. You have come to a good place and one of the most wonderful thing is that you aren't alone in this anymore. We all have been struggling also and know just what you are saying. Keep posting, as we are here for you.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 11/24/2008 7:37 AM (GMT -7)   
Hi LilMissSunshine and Welcome-

My diagnosis was fast because the fibro hit me like a ton of bricks. It has got to be frustrating when symptoms have been there for a long time and your not sure what it is. Hopefully you can get into see a Dr. that knows about fibro and get some answers soon.

Keep us posted and it was nice to meet you!

GamJill
 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
 
Zoloft, Tylenol 4000 mg., Darvocet  

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