Letter from Fibromyalgia

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springfling
Veteran Member


Date Joined Mar 2008
Total Posts : 519
   Posted 11/23/2008 10:32 PM (GMT -7)   
I posted this quite a while back & thought it would be something for our new members to read or just anyone who missed it the first time around. It brought tears to my eyes the first time I read it because I was struggling with finding out what was wrong with me and trying to convince my family that it was real. I hope you find it as interesting and touching as I did.
 
Hugs!!  Margie
 
 
 
A LETTER FROM FIBROMYALGIA

Dear Miserable Human Being,

Hi, my name is Fibromyalgia, and I'm an invisible chronic illness. I am now ‘velcroed’ to you for life. Others around you can't see me or hear me, but YOUR body feels me. I can attack you anywhere and anyway I please. I can cause severe pain, or if I am in a good mood, I can just cause you to ache all over.

Remember when you and Energy ran around together and had fun? I took Energy from you and gave you Exhaustion. Just try to have fun now! I also took Good Sleep from you and in its place gave you Fibro Fog (a.k.a.)Brain Fog. I can make you tremble internally or make you feel cold or hot when everyone else feels normal. Oh yeah, I can make you feel anxious or depressed, too. If you have something planned, or are looking forward to a great day, I can take that away too. You didn't ask for me. I chose you for various reasons: that virus you had that you never quite recovered from, or that car accident, or childbirth, the death of a loved one, or maybe it was those years of abuse and trauma. Well, anyway, I'm here to stay! I hear you're going to see a doctor who can get rid of me. I'm ‘ROFL’ (rolling on the floor laughing)! Just try! You will have to go to many, many doctors until you find one who can help you effectively. In fact, you'll see many doctors who tell you ‘it’s all in your head’ (or some version of that). If you do find a doctor willing to treat this ‘non-disease’, you will be put on pain pills, sleeping pills, and energy pills. You will be told you are suffering from anxiety or depression, given a TENS unit, told if you just sleep and exercise properly, I will go away. You'll be told to think positively, poked, prodded, and most of all, you will not be taken seriously when you cry to the doctor how debilitating life is for you every single day!

Your family, friends, and coworkers will all listen to you until they just get tired of hearing about how I make you feel, and that I'm a debilitating disease. Some of them will say things like "Oh, you're just having a bad day", or "Well, remember, you cant expect to do the things you used to do 20 years ago," not hearing that you said "20 DAYS ago"! Some will just start talking behind your back, while you slowly feel that you are losing your dignity, trying to make them understand, especially when you are in the middle of a conversation with a ‘normal’ person, and can't remember what you were going to say next!

In closing, you've probably figured out that the ONLY place you will get any real support and understanding in dealing with me is with Other People With Fibromyalgia! They are the only ones that will understand your complaints of unrelenting pain, insomnia, fibro fog, the inability to perform the everyday tasks that ‘normal people’ take for granted.

Remember, I'm stuck to you like Velcro – and I expect we'll be together for the rest of your life.

Have a nice day!! (ROFL),

Fibromyalgia
 
Author Unknown
If you are the author and claim copyright to this writing please contact me with your claim
and I will attribute this work to you or remove it if required.


Never regret something that made you smile!

Fibromyalgia*Osteoarthritis*Sleep Apnea*Depression*Fatigue*Allergy/Sinus


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 11/24/2008 8:06 AM (GMT -7)   
Margie I have this on my desktop and was going to have my niece read it today while she is here. She is one person in my life that really wants to know how all this feels. I hope to God she never knows how all this feels.
 
Hope your enjoying this gloomy day. devil
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


springfling
Veteran Member


Date Joined Mar 2008
Total Posts : 519
   Posted 11/24/2008 8:12 AM (GMT -7)   

Marlee,

I too made a copy and have it on the board above my desk. It is a gloomy day isn't it? I am just hanging out trying to do laundry and little things around the house. It's actually a great day for a nap! (which I'll probably be doing sooner or later)

Hugs!!   Margie


Never regret something that made you smile!

Fibromyalgia*Osteoarthritis*Sleep Apnea*Depression*Fatigue*Allergy/Sinus


realpain
Regular Member


Date Joined Nov 2008
Total Posts : 83
   Posted 11/24/2008 8:33 AM (GMT -7)   
Margie.
 
I am SO glad that you reposted this so people like me (new to this all) could read it!!! It make sme feellike I'm not alone... it helps me understand that there are others out there JUST LIKE ME... and I'm NOT crazy!!!!  Thank you for the post... hope all is well with you!!! ♥
 
Rach

colabear2890
Regular Member


Date Joined Nov 2008
Total Posts : 103
   Posted 11/24/2008 11:37 AM (GMT -7)   
Thanks so much for posting that. the letter describes me so well, it sounds like it was being written about me. it really helped me realize that i'm not the only one with it. Thanks again. maybe i'll show it to my friends, to help them understand what i'm going through
-Aliza

Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 11/24/2008 11:37 AM (GMT -7)   

Thank you for posting this.  I need to show it to my husband.  I will not even try to talk to my sisters about it.

Sue


jhawkfan
Regular Member


Date Joined Oct 2008
Total Posts : 86
   Posted 11/24/2008 3:25 PM (GMT -7)   

  

    This brought tears to my eyes. It could not have described me more perfectly.


Gentle Hugs,
Sheri
 
Fibromyalgia,Epilepsy,RLS,DDD
 
Cymbalta,Tramadol,Gabapentin,AmbienCR,Zonagran,Phenobarbital,Nystatin Powder
Fish oil, Vitamin E, Baby ASA, Multi-Vitamin,Berberine,Caprylic Acid,Malic Acid/magnesium
 
 
  
 
 


Corinne44
Regular Member


Date Joined Nov 2008
Total Posts : 98
   Posted 11/24/2008 4:41 PM (GMT -7)   
I'm going to print it and put it on the fridge where my family can read it!

springfling
Veteran Member


Date Joined Mar 2008
Total Posts : 519
   Posted 11/25/2008 3:01 PM (GMT -7)   
Bump Bump

Never regret something that made you smile!

Fibromyalgia*Osteoarthritis*Sleep Apnea*Depression*Fatigue*Allergy/Sinus


Mouse7r
New Member


Date Joined Nov 2008
Total Posts : 8
   Posted 11/25/2008 3:53 PM (GMT -7)   
This letter honestly made me cry... im going to share it w/ hubby when he gets home
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