spheno palatine ganglion

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mrs mac
Regular Member


Date Joined Nov 2005
Total Posts : 163
   Posted 11/24/2008 7:34 AM (GMT -7)   
hi guys, haven't posted on here for a while.
 
Any way just wanted to ask if any one knows any thing about spheno palatine ganglion??
 
Has anyone tried this for their Fibro, and if so, did they have any success with it???
 
look forward to hearing from you
 
 
Sandra xxx
 

Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 11/24/2008 11:41 AM (GMT -7)   
The only online reference to a double blind study on it said:

"...To assess the efficacy of 4% topical lidocaine in spheno-palatine blocks, a randomized controlled trial was carried out on patients with chronic muscle pain syndromes....These data suggest that, in this population, 4% lidocaine is no better than placebo in the treatment of chronic muscle pain."

Judging by this data I'd skip it and start using malic acid, 2400mg a day, which has been shown to help many of us.
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


mrs mac
Regular Member


Date Joined Nov 2005
Total Posts : 163
   Posted 11/24/2008 1:20 PM (GMT -7)   
thanks Jeannie, we are looking into that just now!!!!!

just thought i would ask about the spb blocks just in case!!!!


Sandra xx

mrs mac
Regular Member


Date Joined Nov 2005
Total Posts : 163
   Posted 11/24/2008 1:22 PM (GMT -7)   
ok, can anyone reccomend a site in the UK that does combination of magnesium and malic acid??

Sandra xxx

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17095
   Posted 11/24/2008 1:26 PM (GMT -7)   
I get mine through Puritan.com.  They might ship to the UK.  It's worth a try!
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


mrs mac
Regular Member


Date Joined Nov 2005
Total Posts : 163
   Posted 11/24/2008 3:00 PM (GMT -7)   
hi Sherrine, have had a look, and they only accept payment by credit card, we don't have any,(had them before and decided to get rid)

will just keep searching!!!

thanks

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 11/24/2008 3:21 PM (GMT -7)   
Hi,

I'm visiting from the chronic pain board. I don't have fibro, but I saw this thread & I have had sphenopalantine blocks done, so I thought I'd just let you know my experience. My blocks were done for severe eye pain. Unfortunately they didn't help at all. There are 2 different ways that they can do the block -- they can inject the ganglion (back of your throat), or they can stick lidocaine-soaked q-tips waaaaay down your nose, so that they rest on top of the ganglion. The theory with the q-tips is that the lidocaine diffuses across to the ganglion to block it. I had the later done as my doc doesn't do the spenopalantine injections. I wish he had done the injection though because I feel like that would have a better chance of working. Good luck.

Skeye

mrs mac
Regular Member


Date Joined Nov 2005
Total Posts : 163
   Posted 11/24/2008 3:29 PM (GMT -7)   
thanks for sharing your experiences with me, much appreciated. Only heard about it today, so still got a lot of research and deciding whether or not it will be beneficial for Andy!!

He can't take codeine or opiate based pain killers because he suffers from CH and migraines and the pain killers cause rebound headaches for him, but he is in such a bad flare just now, that we are getting desparate!!!!

Sandra xx
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