Everything started for me 8 LONG years ago and at that time I also developed a nodule on the right lobe of my thyroid. I had tons of tests to make sure it was not cancerous and dealt with the side effects of it for approx 5 years before having a partial thyroidectomy. Since the the doctor found the nodule every time I went to see him he blamed everything on my thyroid, mind you, the other half of my thyroid took over for the missing lobe, and my levels have been normal for 3 years now. I have seen a few other doctors as well and as soon as they see my history they too try to blame it on my thyroid, but when the levels come back normal they try to blame it on my depression and anxiety. My heart use to race between 130 – 140 beats per minute, so of course that had to of been due to anxiety, the doctor put me on xanax which didn’t seem to help, and tried blood pressure medication, which made my blood pressure dangerously low (I have had low blood pressure through all of this) finally he found that if he kept me on the combo of low dose xanax and low dose beta blockers I was able to bring me heart rate to around 100, which is still quite high for my age and weight, but it is atleast bearable now. Needless to say the pain in my legs and arms were still pushed off as being due to stress, I was tested for lupus a few times now and they came back normal. The doctor I just saw finally told me that he believes that I have fibromyalgia, because I have a TON of the symptoms but he too would not dx me with it until I saw the reumy… which I can’t see until late January. I feel you pain and frustrations… without a doubt. After everyone telling you there is nothing wrong with you (including family and friends) it is hard not to feel crazy inside!!!! How can this pain NOT BE REAL???? Why can’t people see that we are in pain and need help???? I have had debilitating headaches for 2 weeks straight now and my legs hurt so bad that it is difficult to even drive. I’m not sure about everyone else, but for me to stand for even a short period of time it hurts even writing hurts me… I remember one day when I was trying to peel potatoes and was almost in tears!!! I hope that you find answers soon, as do I!!!!
Um...are we related? Seriously, are we? Our mothers have got to be related somehow. Does your mom like to play the martyr? OMG-if I hear, "I'm a terrible mother," one more time! LOL-I've begun to use what I like to call "reverse b****ology" and say, "I'm a terrible daughter." LOL-I know, I am very mature. Now if I could just get that eyeroll down...
Thanks for the laughs