Burning. Stinging, Aching Me

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Pamela Neckpain
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Date Joined May 2008
Total Posts : 1821
   Posted 11/25/2008 9:34 PM (GMT -6)   
Several years ago I was in an Aerobic dancing marathon. Ahhhh ... so much fun.
(That's probably what's wrong with me today) Anyway after the marathon, my
muscles were really sore. I don't remember them stinging.

My question: is this a part of Fibromyalgia?

Pamela Neckpain (I usually hang out in Chronic Pain)

springfling
Veteran Member


Date Joined Mar 2008
Total Posts : 519
   Posted 11/26/2008 12:20 AM (GMT -6)   

Pamela,

I have Fibro and at one time or another have had aching burning muscles in one place or another. It seems to change from time to time. I also have times where my heels and elbows will hurt and sting so much that I cannot even touch them.

I don't know if sore muscles after heavy exercise would be Fibro or the burning soreness you have from doing too much? Do you only have the soreness after an activity like that or is it more often?

I'm sure someone will be along who knows more about this, but with Fibro you will have burning, aching, stinging, & sometimes the feeling that you are bruised, etc.

Hugs!!   Margie


Never regret something that made you smile!

Fibromyalgia*Osteoarthritis*Sleep Apnea*Depression*Fatigue*Allergy/Sinus


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 11/26/2008 3:35 AM (GMT -6)   
springfling ...

I don't move very much at all. I have chronic pain and exercise makes it worse ~ much
worse. Even walking in warm water does me in.

I wrote this post because I feel like I just can't identify the particular problem I'm
having right now ~ my muscles must be REALLY inflamed but I haven't done
anything to cause it.

Maybe it's the holidays. There are a whole bunch of things going on in my family
and I can't say that I'm really happy about the situation! This is a waaaay bad
year.

I wonder if my mind has caused this pain. Is this psychosomatic? It's not
Arthritis.

Maybe it will be better tomorrow. Thank you so much for answering. I feel alone.

Pamela Neckpain

springfling
Veteran Member


Date Joined Mar 2008
Total Posts : 519
   Posted 11/26/2008 6:49 AM (GMT -6)   
Pamela,
 
With Fibromyalgia- stress, an accident, getting ill, & other things can cause a flare. (which is when a person has more pain & worse symptoms for a time). You could be having these problems because of stress or anxiety from the holidays?
 
I have been in a flare for the past week and nothing I do helps. I believe it is because of the holidays and I am just getting over a bad cold. Who knows, sometimes I will have a flare and I can't figure out anything that has triggered it.
 
I would mention it to your doctor. I am not the best at explaining things, so hopefully I haven't confused you. I hope you are feeling better soon! Please don't feel alone! There are many of us here going thru the same thing and we are all here to help each other. I hope you come back and keep us posted.
Hugs!!   Margie

Never regret something that made you smile!

Fibromyalgia*Osteoarthritis*Sleep Apnea*Depression*Fatigue*Allergy/Sinus


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 11/26/2008 8:01 AM (GMT -6)   
Margie,

Usually my pain will come AFTER the event. I always get sick after Christmas.
But then like I said this is a different kind of year. Depression has struck deep too ~
Oh, but I'm not on happy feet right now.

My doctor doesn't talk to me. Honest. He comes in singing a little song and
leaves within 5 minutes. He's a pain doctor and thinks I should have a pain pump.
I don't WANT a pain pump. I should find a different doctor, of course ... but where?

My interist will have quit her practice as of December 23. So first things first, I
suppose.

You have holiday stress too, huh? Are you going to put up a tree? Shop? Budget?
Cook?

I used to think that being alone for the holidays was the worst thing.But currently
I'm just not so sure.

I see you have Depression too. I hope your symptoms lighten soon.

Pamela Neckpain

The first doctor I went to 6 1/2 years ago. He diagnosed me with Fibromyalgia.
Then he said, "You need to go to a surgeon to see what HE cam do." then he
told me there was no treatment for Fibomyalgia. I have seen many doctors
since that day and have managed along just barely. 0
MEDICAL CONDITIONS

Osteoarthritis all levels of spine right down to Coccyx,Spondilytis,Myofascial Pain
Fibromyalgia,Bulging Discs,Spinal Stenosis,Scoliosis,Osteopenia,Chronic Constipation
Carpel Tunel Syndrome, Attention Deficit Disorder,
Depression & Anxiety

Methadone for Pain, Xanax for Anxiety, and more, of course.


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 15188
   Posted 11/26/2008 2:31 PM (GMT -6)   
Pamela, burnng and stinging pain can be from fibro.  I also get aches in the muscles...like a toothache.  It's the type of stinging that feels like the extremity is cold but when I feel it, it's not.  Fibro is a very confusing problem and no two people seem to be exactly alike as far as symptoms.  That's why we have so many symptoms...and, also, why the doctors don't understand what is going on.
 
Im sorry to hear that exercise doesn't help.  I know when I started to exercise (walking and stretching) it really hurt me.  My knees and hips hurt a lot, too, but the more I did the better that pain got and now I can do light exercise without it hurting like it did.  I also lost weight.  I don't know if you have a weight problem or not, but I sure did.  By losing weight, it has helped my fibro some and I'm able to do more things than before.  Just a thought..
 
Hope you get some relief soon.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 11/26/2008 4:29 PM (GMT -6)   
Hi Sherrine,

Oh I wish wish wish I could exercise. I love it.
Dance, hike, swim, walk, yoga.
I've done more than my share of these things all my life.

Now I have Scoliosis and a bend in my neck.(and tail bone)
There really is no way to straighten
the bend and doctors' do not want to take on surgery. Unless
it's absolutely necessary.

As long as I'm fairly sedentary, I'm kinda ok.

I do the best I can. My back isn't stinging as much
today.

Pamela

springfling
Veteran Member


Date Joined Mar 2008
Total Posts : 519
   Posted 11/26/2008 4:37 PM (GMT -6)   

Pamela,

We will definitely be putting up our christmas tree the day after Thanksgiving. It is a tradition in our home and we still do it. The children are all grown and moved out, but they still come over to help decorate with the grandchildren. I'm not even close to finishing my shopping, so hopefully if I feel better in the next week, I can get it done. I also cook breakfast for everyone on Christmas morning(providing I am up to it!)  and the grandchildren open their presents.

I am so sorry you feel so alone. Do you spend Christmas with family? You sound so depressed. Fibro can do that to you and the weather doesn't help much. Every time I wake up and the sun is shining bright, I have to smile. I always feel better on sunny days!

You just need to try and keep your spirits up and know that you can live life fully & things will get better. I hope you are able to find a good doctor & start getting some relief for your pain.

Hope you have a pain-free Happy Thanksgiving!

Hugs!!   Margie

 


Never regret something that made you smile!

Fibromyalgia*Osteoarthritis*Sleep Apnea*Depression*Fatigue*Allergy/Sinus


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 11/26/2008 7:14 PM (GMT -6)   
Dear Pamela: I am sorry you are in such pain. I want to share a little personal experience with you. I was dx.'d with Fibro in 94,I was a firecracker before that. It seemed to be a spinoff from hypothyroidism, apparently. My TSH was higher than any my doctor had seen to date. I also has IBS in college, and cannot safely take nsaids, because of that. Two days max. So, I had a heck of a time managing my aching muscles. Amyltriptilene is an analgesic, anti-depressant and sleep aid all rolled into one. Initally, there are some rough side effects, dry mouth, morning drowsiness, and weight gain as it causes you (meaning me) to crave carbs. That's an ongoing battle. However, I was quite active at the time and that was all they offered, so I took it. Then there was an pedestrian/Truck collision in 2002 and that did me in (for a while). I came through dependent on pain meds to function, period. As We ( a supportive doctor and I tried to troubleshoot a means by which I could manage my pain and still allow me to function.) We hit upon Hydrocodone w acetominophen, first 5mgs/500, then 7.5/600, then 10mg./650, five times a day. Tolerance was a problem. Then the doc took out all the stops and prescribed methodone. I took it for 3 months. It was the first time I could remember waking up, walking around, doing normal, without pain. It was an ah ha moment. But I was zoned out. Couldn't care less about eating, sleeping, keeping a roof over my head, etc. I went back to the doc and said, we gotta take a giant step back. Back to Lortab. Back to sanity, back to functional, maybe some pain but at least I'll be conscious.I also had to go on an anti-depressant. The pain meds aggravate depression as they are CNS depressants. Do not take sertilene with methadone. It's a deadly combination. low serotonin levels can cause pain. I am now on a much milder pain medicine, and an anti-depressant and have 40 % less pain than before. I also use moist heat, also a muscle rub which does wonders for my facet joints. This is as good as it gets for us, I believe. I wish you a good doctor who treats you with respect. Why do you resist the pain pump? I know if I was offered a delivery method for pain medication, a patch in particular, I would jump at the opportunity. Taking the responsibility away for self medicating, would give me tremendous relief. Far fewer opportunities for "messing up". I don't know if any of this is of any use to you, but I surely hope you find a way out of the quagmire. 
Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 11/27/2008 1:49 AM (GMT -6)   
Thank you, Tyno.
I will answer bit by bit as I'm in pain and have to make a pie. Understand?
I fight the pain pump because I've heard of so many people who have terrible
trouble with it. One woman got Meningitis from it and had to be in the hospital
for three weeks.
But the main reason: My Methadone prescription reads -- 4 times orally, 3 times
a day. I don't take the entire amount but save one or two for a rainy day. Or
when the Methadone plants folds. (joke) I am scared to death of having to go
through withdrawls when I go off Methadone. I've already done that once with
Oxycontin. Terrible. Always avoid withdrawls.
What kind of muscle rub do you use? I can't use Tiger Baum or Ben Gay. I've
"burned" my skin through overuse of these topicals.
I would like a Fentanyl patch. I had them at one time but it was during the time
that they were taking them off the market because of bad batches or something.
I REALLY have to be careful with my combination of medications. Fortunatley,
I stay alert even with Methadone. (I guess I do anyway)
I hope to "talk" with you later.
Pamela Neckpain
MEDICAL CONDITIONS

Osteoarthritis all levels of spine right down to Coccyx,Spondilytis,Myofascial Pain
Fibromyalgia,Bulging Discs,Spinal Stenosis,Scoliosis,Osteopenia,Chronic Constipation
Carpel Tunel Syndrome, Attention Deficit Disorder,
Depression & Anxiety

Methadone for Pain, Xanax for Anxiety, and more, of course.


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 11/27/2008 5:46 AM (GMT -6)   

Dear Pamela: I can totally relate. Now I understand the pain pump problem (tongue twister). It's like a shunt into your flesh which means you've an open hole in your body. I agree. That surely won't work. I don't know about the fenanyl patch but have heard of Duragesic (same thing, or different?) and many folks here talk about the Norco patch. That's what I'd like cause I keep fumbling up my meds. Since it's four times a day orally (but a much milder pain killer), sometimes I forget and take more or don't wait till they kick in and take more. I just think I would do better with a patch so the administration of the meds would require replacing it every three days or whatever, I can do that with a calendar. Anyway, withdrawls are horrific, I've been through it many times. Once a friend of my son's came to a movie with us and got access to my meds by going through my purse. I had no idea until later and couldn't prove it. Since then, I divide my meds into weekly ammounts and hide all but the bottle I'm using presently.  I don't really recall much withdrawl from the methadone because I went right back on the Lortab !0 mgs. five times a day. I can relate to feeling like an addict drug seeking fool. Some doctors think Fibro is all in your head. The linament I use is called Flexall (Ultra), it has vitamin E and Aloe Vera which is probably why it doesn't burn. Also, if I'm out I use my Dad's Minards Linament. That doesn't burn me either. I prefer the former though. I avoid camphor like the plague, as well as menthol as they are "cooling" rubs and I hate the smell, also the way they open all my pores. Kinda like vicks. Please understand, I'm not criticising the use of methadone, it was the one medicine that totally got me out of pain, and I know you have many pain issues beyond my own. Each of us are different. I however, did find myself living out of my car, and living in a camping park as the result of my 'not taking care of business" because of the zoned out feeling I got. Take Care, I hope you have a great Thanksgiving, we are Canadians and celebrate Thanksgiving in October. I give thanks every day now, for all my blessings.

 

 


Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 11/28/2008 4:14 AM (GMT -6)   
tyno,

I DO understand why you don't take Methadone! The way you lived there for
awhile must have been very difficult. It sounds like you're on your way up now ~
On your feet. Right?

You mentioned something called Sertiine. I've never heard of it. What would
happen if I took it with Methadone?? Eeek?

I don't think they have Flexall Ultra or Minard's Linament around here. Is it OTC?

Pamela
MEDICAL CONDITIONS

Osteoarthritis all levels of spine right down to Coccyx,Spondilytis,Myofascial Pain
Fibromyalgia,Bulging Discs,Spinal Stenosis,Scoliosis,Osteopenia,Chronic Constipation
Carpel Tunel Syndrome, Attention Deficit Disorder,
Depression & Anxiety

Methadone for Pain, Xanax for Anxiety, and more, of course.


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 11/28/2008 7:33 AM (GMT -6)   

Dear Pamela Neckpain: It's always great to hear from you because whatever ails you you are upbeat and positive. I am trying to remember what Linament I used when I lived in US (Florida,s Gulf Coast, beautiful little drinking village with a hugh fishing problem). Just my attempt at humour. Anyway, now that you mention it, I don't think I was able to get either of those rubs there either. I would go to a Livery Supply like the Tractor Supply Store and get some horse linament. Or if that puts you off there is a rub made especially for Fibro sufferers available at most pharmacies. It's the camphor that burns so try to avoid that. Also they make those little patches "salonpas" are available at most pharmacies. Also the Therma Heat wrap(cheaper if you buy walmart brand), for days you have to be out and about.

The antidepressant I was referring towas Zoloft/ Sertilene, is the generic. Apparent several high profile overdoses which occured in the past two years involved a combination of Too Much methadone with some Sertilene added in for good measure.

Yes, although in tremendous pain, the methadone worked extremely well, except all I wanted to do was walk in the park or along the beach. I did work for my room and board for this couple who owned a motel, by cleaning for them, which I did very well but they were very greedy, and when I said I wasn't going to be at their beck and call 24/7 they presented me with a hugh bill. In Fl. The Inkeepers act packs a lot of weight, so in order to avoid being arrested, I had to forfeit my little truck, an 02 Rodeo, which I loved, to cover that bill. That left me with a 1985 Crown Victoria, only seven of eight cylinders firing, no muffler, and the tranny was slipping. Unbelievably, that car (which had belonged to my grandfather) got me home. Except, once I got home there wasn't really anyplace to live so I lived out of my car. You see, I had been corresponding with two friends from here while planning my trip home, both of whom were willing to have me live with them. One, had made up a room for me and gave me a key and all. But, my dog was not welcome. My dog and I have been together for thirteen years, through thick and thin. She sleeps at my feet. She is part American Staffordshire Terrier, and part Rhodesian Ridgeback. An amazingly beautiful, loyal, protective friend. So, no dog, no me. The other was a fellow who used to babysit my boys  when they were in their early teens but he had a hugh drinking problem and when he was drunk, he was beligerant. So, no refuge there. So it goes. Although university edcated, with tons of experience and success workig with ├┐outh at risk", I wasn't in a position to get a job in my field. I was too sick, homeless, and had lost all confidence in myself. So I took a job at a recycling depot, physically demanding, but mindless. I even got fired from there. Because I was living out of my car, they thought I would steal from them to finance a trip back to Florida. Also the job involved lifting 100lb. bags of tin cans etc. up over my head, with Fibro, it nearly killed me. Then I got a job with a construction company which I quit when my Dad got sick with pneumonia, his wife, my stepmom developed kidney disease, and Dad was diagnosed with alzheimers. Thank-goodness, I live in Canada. It's not great but there is a safety net. I applied for, and recieved provincial disability assistance, get my medicines paid for which is hugh, and get a little housing allowance, and about $100.00 a month to live on. I have been here for two years, caring for my Dad in a house I rented with my disability. He contributes to bills, electricity, gas, and food. his wife left him with a hugh mortgage on the house they'd been living in, and although it's falling down, wet, full of mould (which is toxic to me,) and uninhabitable, he still puts out $400 a month towards that debt. She also left him with a hugh bill for a truck they'd been leasing and a hugh Visa bill. That we can't do anything with at present except watch it grow. Forgive me for my longwindedness. I now take tylenol 3 two tabs up to three times a day but always run out a couple of days before months' end and that leaves me adrift. I'm there right now. They do manage my pain along with the amyltriptilene two hours before bedtime. I take valium at bedtime as well. These past five days I've slept pretty darn well. That makes all the difference in the world. Thank-you 


Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 11/28/2008 12:47 PM (GMT -6)   
Tyno,

What a life story you have!

My story would not be as dramatic but it does seem to me I've been hit by one
disaster after another. I look around at other people who have made it to the
top and try not to have envy. After spending yesterday with all of them,
I feel that green jealousy monster coming toward my psyche.

Seven years ago when I got hit by Fibro and other things, my living conditions
and my confidence level went down down down.

I'm trying to come back up. I'll get up and feel good and tell myself I'm really
gonna get my house clean and then Fibro ... (or whatever) knocks me down
and I spend the day close to my bed or couch. I used to have such energy &
enthusiasm for life and doing stuff.

I suppose all our stories are alike in someways. So it's just one foot in front
of the other.

I'm happy to have met you.

Pamela

I will never take Zoloft/Sertiline with Methadone. Thank you for warning all
of us that it can be a deadly combination. skull

Post Edited (Pamela Neckpain) : 11/28/2008 10:50:10 AM (GMT-7)


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 11/28/2008 7:28 PM (GMT -6)   

I have this belief that all things happen for a reason, even Fibromyalgia. Perhaps to make us stronger. Maybe to make us humble. Maybe to force us to reflect on our lives and learn gratitude for the gifts we do have.

Somehow, i feel that ordeal I went through a number of years back was preparing me for something greater. I would not be able to stand being locked in with my aging alzheimers suffering dad, listening to the same stories of his boyhood, repeated five, ten, twenty times a day, were it not for that rainy summer I lived under a tree in a provincial park. I have many stories to tell. My brother who is a playright, actor and Professor of Fine Arts, tells me I write beautifully, and that perhaps I should try to get some of my experiences down on paper.

I have lived very freely, most of my life. That I cherish most of all. Therefore, sometimes I have to pay dearly for that freedom.

I have really enjoyed sharing some of my story with you. Maybe we both will discover a higher calling through all of this. Maybe someday I will actually get a storey together worth telling. Some very amazing people and occurances have appeared in my life. Some quite bizarre, others very touching. I certainly have learned to problem solve my way out of nearly every situation I find myself in.


Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 11/28/2008 8:09 PM (GMT -6)   
This is off topic, Tyno:
I wrote for maybe 5 years.
It's brutally hard.
Digging ditches
or
Bathing lions
would be easier
AND
more profitable.
However,
if it is your time to write
nothing ... nothing ...
can stop you.
I don't do it anymore.
When pain hit me hard
the "muse" flew off.
We'll see about you.
You just put one word
after another.
(I remember that much)
Pam
Take care.
I have a feeling you might do it. :-)

tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 11/29/2008 7:20 AM (GMT -6)   
Dear Pam: thank-you for the encouragement. Would you recommend writing the old fashioned way, with pen and paper, or the new fangled way, with a computer/word processor? I know I've seen things in my life that are ├╝nusual" or so I think. Maybe others would think these so, or maybe not. One example: I was the Director of a residence for women, through the YWCA, which I don't know if that organization even exists anymore. We had thirty beds. Some doubles, some singles. I had several rooms open one time. Usually there would be , say four to five "transient beds", and the Remainder were filled by women that were called "permanent," which meant a year or so. A young woman, obviously mentally ill, Mary Anne was admitted one day. She seemed fine during the day, she did her wash, fixed some food and retired to her room, a single room, that locked. The other girls started showing up at the desk downstairs saying if we didn't get her out of there they would. Some of those gals were pretty tough. So, I was called in, from home. I arranged a babysitter to sleep over, just in case. Well, when I approached her doorway there were several gals standing back faces like they'd seen a ghost. I listened. There were three voices coming from the room, two male voices, one seemed older, one younger, maybe twenty something. And one female voice, crying aand begging them to stop hurting her. i shushed the other gals back to there rooms and open the door (master key) after calling her by name and telling her I needed to come in to check and make sure she was allright. She said sure and actually opened the door. I said the other girls were complaing that she had men in her room (It was a women only residence), she said, "no, no men here". So I looked. It was second storey room, windows did not open. No men. Not under the bed, not in the closet, no men. So I thanked her, and left. A dozen women met me outside the room and said she had to go! I said, "no, it's the middle of the night, and she's staying there inside her locked room, and you ladies are going to bed". I will sit here outside her door untill morning. I did. Next morning I called a chap who was very helpful and concerned who was an advocate for the mentally ill. he came,we strategized, he took her, probably to hospital. This really happened. I heard what I heard. Amazing. I've seen many more of thes oddities but whether anyone else would be interested, who knows?    
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