I have Fibro and at one time or another have had aching burning muscles in one place or another. It seems to change from time to time. I also have times where my heels and elbows will hurt and sting so much that I cannot even touch them.
I don't know if sore muscles after heavy exercise would be Fibro or the burning soreness you have from doing too much? Do you only have the soreness after an activity like that or is it more often?
I'm sure someone will be along who knows more about this, but with Fibro you will have burning, aching, stinging, & sometimes the feeling that you are bruised, etc.
Never regret something that made you smile!
We will definitely be putting up our christmas tree the day after Thanksgiving. It is a tradition in our home and we still do it. The children are all grown and moved out, but they still come over to help decorate with the grandchildren. I'm not even close to finishing my shopping, so hopefully if I feel better in the next week, I can get it done. I also cook breakfast for everyone on Christmas morning(providing I am up to it!) and the grandchildren open their presents.
I am so sorry you feel so alone. Do you spend Christmas with family? You sound so depressed. Fibro can do that to you and the weather doesn't help much. Every time I wake up and the sun is shining bright, I have to smile. I always feel better on sunny days!
You just need to try and keep your spirits up and know that you can live life fully & things will get better. I hope you are able to find a good doctor & start getting some relief for your pain.
Hope you have a pain-free Happy Thanksgiving!
Dear Pamela: I can totally relate. Now I understand the pain pump problem (tongue twister). It's like a shunt into your flesh which means you've an open hole in your body. I agree. That surely won't work. I don't know about the fenanyl patch but have heard of Duragesic (same thing, or different?) and many folks here talk about the Norco patch. That's what I'd like cause I keep fumbling up my meds. Since it's four times a day orally (but a much milder pain killer), sometimes I forget and take more or don't wait till they kick in and take more. I just think I would do better with a patch so the administration of the meds would require replacing it every three days or whatever, I can do that with a calendar. Anyway, withdrawls are horrific, I've been through it many times. Once a friend of my son's came to a movie with us and got access to my meds by going through my purse. I had no idea until later and couldn't prove it. Since then, I divide my meds into weekly ammounts and hide all but the bottle I'm using presently. I don't really recall much withdrawl from the methadone because I went right back on the Lortab !0 mgs. five times a day. I can relate to feeling like an addict drug seeking fool. Some doctors think Fibro is all in your head. The linament I use is called Flexall (Ultra), it has vitamin E and Aloe Vera which is probably why it doesn't burn. Also, if I'm out I use my Dad's Minards Linament. That doesn't burn me either. I prefer the former though. I avoid camphor like the plague, as well as menthol as they are "cooling" rubs and I hate the smell, also the way they open all my pores. Kinda like vicks. Please understand, I'm not criticising the use of methadone, it was the one medicine that totally got me out of pain, and I know you have many pain issues beyond my own. Each of us are different. I however, did find myself living out of my car, and living in a camping park as the result of my 'not taking care of business" because of the zoned out feeling I got. Take Care, I hope you have a great Thanksgiving, we are Canadians and celebrate Thanksgiving in October. I give thanks every day now, for all my blessings.
Dear Pamela Neckpain: It's always great to hear from you because whatever ails you you are upbeat and positive. I am trying to remember what Linament I used when I lived in US (Florida,s Gulf Coast, beautiful little drinking village with a hugh fishing problem). Just my attempt at humour. Anyway, now that you mention it, I don't think I was able to get either of those rubs there either. I would go to a Livery Supply like the Tractor Supply Store and get some horse linament. Or if that puts you off there is a rub made especially for Fibro sufferers available at most pharmacies. It's the camphor that burns so try to avoid that. Also they make those little patches "salonpas" are available at most pharmacies. Also the Therma Heat wrap(cheaper if you buy walmart brand), for days you have to be out and about.
The antidepressant I was referring towas Zoloft/ Sertilene, is the generic. Apparent several high profile overdoses which occured in the past two years involved a combination of Too Much methadone with some Sertilene added in for good measure.
Yes, although in tremendous pain, the methadone worked extremely well, except all I wanted to do was walk in the park or along the beach. I did work for my room and board for this couple who owned a motel, by cleaning for them, which I did very well but they were very greedy, and when I said I wasn't going to be at their beck and call 24/7 they presented me with a hugh bill. In Fl. The Inkeepers act packs a lot of weight, so in order to avoid being arrested, I had to forfeit my little truck, an 02 Rodeo, which I loved, to cover that bill. That left me with a 1985 Crown Victoria, only seven of eight cylinders firing, no muffler, and the tranny was slipping. Unbelievably, that car (which had belonged to my grandfather) got me home. Except, once I got home there wasn't really anyplace to live so I lived out of my car. You see, I had been corresponding with two friends from here while planning my trip home, both of whom were willing to have me live with them. One, had made up a room for me and gave me a key and all. But, my dog was not welcome. My dog and I have been together for thirteen years, through thick and thin. She sleeps at my feet. She is part American Staffordshire Terrier, and part Rhodesian Ridgeback. An amazingly beautiful, loyal, protective friend. So, no dog, no me. The other was a fellow who used to babysit my boys when they were in their early teens but he had a hugh drinking problem and when he was drunk, he was beligerant. So, no refuge there. So it goes. Although university edcated, with tons of experience and success workig with ÿouth at risk", I wasn't in a position to get a job in my field. I was too sick, homeless, and had lost all confidence in myself. So I took a job at a recycling depot, physically demanding, but mindless. I even got fired from there. Because I was living out of my car, they thought I would steal from them to finance a trip back to Florida. Also the job involved lifting 100lb. bags of tin cans etc. up over my head, with Fibro, it nearly killed me. Then I got a job with a construction company which I quit when my Dad got sick with pneumonia, his wife, my stepmom developed kidney disease, and Dad was diagnosed with alzheimers. Thank-goodness, I live in Canada. It's not great but there is a safety net. I applied for, and recieved provincial disability assistance, get my medicines paid for which is hugh, and get a little housing allowance, and about $100.00 a month to live on. I have been here for two years, caring for my Dad in a house I rented with my disability. He contributes to bills, electricity, gas, and food. his wife left him with a hugh mortgage on the house they'd been living in, and although it's falling down, wet, full of mould (which is toxic to me,) and uninhabitable, he still puts out $400 a month towards that debt. She also left him with a hugh bill for a truck they'd been leasing and a hugh Visa bill. That we can't do anything with at present except watch it grow. Forgive me for my longwindedness. I now take tylenol 3 two tabs up to three times a day but always run out a couple of days before months' end and that leaves me adrift. I'm there right now. They do manage my pain along with the amyltriptilene two hours before bedtime. I take valium at bedtime as well. These past five days I've slept pretty darn well. That makes all the difference in the world. Thank-you
Post Edited (Pamela Neckpain) : 11/28/2008 10:50:10 AM (GMT-7)
I have this belief that all things happen for a reason, even Fibromyalgia. Perhaps to make us stronger. Maybe to make us humble. Maybe to force us to reflect on our lives and learn gratitude for the gifts we do have.
Somehow, i feel that ordeal I went through a number of years back was preparing me for something greater. I would not be able to stand being locked in with my aging alzheimers suffering dad, listening to the same stories of his boyhood, repeated five, ten, twenty times a day, were it not for that rainy summer I lived under a tree in a provincial park. I have many stories to tell. My brother who is a playright, actor and Professor of Fine Arts, tells me I write beautifully, and that perhaps I should try to get some of my experiences down on paper.
I have lived very freely, most of my life. That I cherish most of all. Therefore, sometimes I have to pay dearly for that freedom.
I have really enjoyed sharing some of my story with you. Maybe we both will discover a higher calling through all of this. Maybe someday I will actually get a storey together worth telling. Some very amazing people and occurances have appeared in my life. Some quite bizarre, others very touching. I certainly have learned to problem solve my way out of nearly every situation I find myself in.