any advice I can get, I am in a lot of pain!

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jaime123
New Member


Date Joined Nov 2008
Total Posts : 5
   Posted 11/26/2008 6:27 AM (GMT -7)   
I have had IBS and reflux and a hietal hernia since I was 12, I am now 30, I also have ever symptom of  fibromyalgia, muscle pain all over, fatigues, stomach problems, headaches etc.
 
The trouble that I am having now started about a year ago.  I have upper abdonmial pain in the center and it feeels like someone is pinching me or strangling me inside. The area in the center and under my chest on both side gets so sore sometimes it is tender to the touch.  with nexium and elavil and klonopin and now acupunture, I have had better days but since Sunday afternoon, the pain has been excruciating.  and it hurst in my back as well.  I went to the ER when it started because the pain was so bad i couldn't eat and I had so much diarhea, I am usually constipated.  They took a cat scan and said I had gastritis and some inflamation in my intestines but no infection. I had an endoscopy and colonoscopy and they said it was just my IBS Reflux and Hietal hernia.  They did a cat scan a few weeks later and the inflamation had gone down.
 
I feel crazy, how can I have pain for a year and it not be anything serious! Does anyone else have the same problem where you have had multiple tests and they say it's just the normal IBS, reflux, hietal hernia bothering me. I am at work and I can't decide whether to go to the doctor or not.  I have intense pain in the upper center of my abdomin, burning, soreness under both sides of my chest and pain in my back in my shoulders and the middle.  sometimes when I rub the area for a long period of time it will subside for a  while.  Alsom I can't understand why I can feel better for days and then feel so bad again!
 
If anyone has any advice I woudl appreciate it.  I know that I am getting anxious about it because tomorrow it will be a year since this all started and I am sure the anxiety is worsening my pain, but I feel crazy!
 
 

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40602
   Posted 11/26/2008 6:46 AM (GMT -7)   
Hi Jaime,

First things first. "You are not CRAZY" So don't even think that, though fibromyalgia can make us feel like we are crazy. I think we have all gone through this.

If you get a chance, read the fibro101 thread. It is the second thread on the first page of the fibro forum.

I am not positive but it almost sounds like costrochronditis (sp). Which is common with fibromyalgia. I don't know a lot about it myself, but hopefully somebody will come on who does.

It is normal to feel good for awhile and then feel bad. I honestly dont' know what I will be capable of doing from one day to the next.

I hope that this has helped you in some small way. At least you know that you aren't alone with this. We can all relate to what you have written.

I hope that you have a good day today.

Keep posting,
hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


jaime123
New Member


Date Joined Nov 2008
Total Posts : 5
   Posted 11/26/2008 6:55 AM (GMT -7)   
thanks so much for responding. I have heard of costocondritis, so I think it might be a combo of the "stomach stuff" and the costo. however, I can't take antiflamatroies for the muscle stuff because of my heartburn and Ibs etc. It's very frustrating. I just want to feel better and stop being afraid that there is something seriously wrong that is going undetected. how can we feel so much pain that mimics gall bladder problems and ulcers and it jsut be normal fibro symtoms. I do feel better reading your email and I will check out thatl link. It's hard to be apart of groups and forums because I am always working or being in pain but I will try to utilize this site it has helped me to just get it off my chest

feel well, and have a happy holiday

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40602
   Posted 11/26/2008 7:04 AM (GMT -7)   
Thank you Jaime,

I wonder if muscle relaxers would help any? Can you take them? Like I said, there will be more people on who have more knowledge about it than I do. I don't have costo (yet), so I am not really familiar with it, but I have read about it on here. Infact there is a thread about it that you might want to read.

You have a happy and safe holiday.

Luv and hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Nanda
Regular Member


Date Joined Aug 2007
Total Posts : 101
   Posted 11/26/2008 7:41 AM (GMT -7)   
Hi Jaime,
Well I've had costochondroitis and excruciating heartburn(can't get out of bed doubled over feels like ribs are cracking_ all the way through to my back pain) at the same time and that's what it sounds like but again I'm no doc! My rheumy gave me a shot of cortisone/prednisone?(not sure what it exactly was now) in the rib cage to finally reduce the pain and I ate tons of tums and drank half and half(yes i know that sounds weird but for me it helped!) Nexium didn't do c%#p for me!? I also did tons of hydrotherapy where you're in a very warm pool and the therapist has you go through gentle exercises to open up the rib cage area and the pool water took the weight off the joints. I loved that as I also have arthritis in my hands and feet and fibro and walking in very warm water weightless..well all I can say is ahhhhh!
light and love
Cynthia

jaime123
New Member


Date Joined Nov 2008
Total Posts : 5
   Posted 11/26/2008 10:35 AM (GMT -7)   
hey karen,
I did take muscle relaxers for years but they gave me really bad headaches and increase muscle pain, i know it's weird! thanks writing back, i don't feel so alone! I hope you have a happy and safe holiday too!

Hey Cynthia,

I am so sorry that you have suffered from so much trouble and pain from costochondroitis and heartburn, it makes me feel better that I am not alone. I guess the same thing is happening to me because they have done all the tests and come back with nothing! Everything you are explaining is how I feel. i will have to ask about the injections, I am willing to try anything to feel better. I know the nexium isn't really helping, but it is worse without it, I think? I will look into the hydotherapy. I love being in the water, it's the only excersize that doesn't hurt me, it's just getting thers is the problem.

I will try tums again, but i swear they bother my lower stomach area like gives me diarhea cramping. I don't know it's so hard to figure everything out when there are so many systems involved.
thanks you for your support and i hope that you continue to get relief and have better days!

aaaaaaaaaaaahhhhhhhhhhh sounds good!

feel good,
Jaime

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 11/26/2008 11:37 AM (GMT -7)   
Hi, Jaime, and welcome!  I have had heartburn, an ulcer, and I do have Crohn's disease along with the fibro.  I used to take a lot of Tums but my doctor put me on Prilosec and that reduces the acid in the stomach.  It healed the ulcer, too.  Then, after several months I started taking ibuprofen again for the costo and fibromyalgia.  I was a bit concerned but my doctor said that the Prilosec will protect the stomach in 70% of the cases so I thought those were good odds.  I haven't had problems taking the ibuprofen and I don't have acid reflux now either.  This might be something you can ask your doctor about.
 
I hope you check out the Fibro 101 thread.  There is a link about malic acid/magnesium supplements that may help with the pain and fatigue of fibro.  I know they help me.  Also, there are links to info about fibromyalgia.  You will see that the pain you are experiencing isn't foreign to people that have fibro.  But, you can learn how to control the pain and live a full and enjoyable life with fibro!
 
Read posts and ask questions.  We are here to help you.  I'm so glad you joined in and I hope to hear more from you soon!
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

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