hi from a newbie

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SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 11/28/2008 10:02 PM (GMT -7)   
hi everyone~

i've been reading these forums for a few days now, and just finally got around to getting a name and all that jazz. i am danielle, the sleepy bug (something i call my kids when they get tired). i am 35 (though feel about 75 most days *sigh*), live in michigan, and am married to a wonderful man who tries his very best to be understanding and supportive, and am also the mother of 3 beautiful, intelligent, supremely cool kids. my hubby and i run an online book business out of our home, and are both also enrolled in college. we also have two crazy dogs and one prissy cat. in short, i live in a madhouse.

i have a really long "this is how i got from being a fully functional, energetic, enthusiastic person to being an absolutely exhausted, achy, brain foggy ancient-feeling person" story, but i'll save that for another day. i will say, though, that i was officially diagnosed with fm 3 years ago, and almost immediately after my diagnosis, i lost my job and so of course also lost my health benefits. since my hubby and i "make too much money" for me to qualify for medicaid, i currently do not have a regular dr. and am not on any medications except for over the counter stuff for gerd and ibuprophen when i really need it. i basically rely on super hot baths, stretching, and naps when i can get them to get me through the day, though i do push myself way too much (i'm not sure how to get around that one with the kids and all..:( ) and find myself flairing a lot. (if anyone has any good, inexpensive alternative medicine/diet/exercise/etc. kind of coping tips, i would greatly appreciate them!)

anyway...i meant to just say "hi", and now i've rambled. i wish i could be more clear and concise with what i want to say, but it's midnight and i'm having one of those "i am bone tired, but can not sleep" kind of evenings rolleyes

in short (really!), even with my fully supportive hubby and other family members (not all, but most!), i feel like this..disease? disorder? whatever it is officially called is very isolating in a lot of ways and i could really use some friends who understand:)

thanks for reading and i am looking forward to getting to know all of you.

:)

~danielle

Jeannie143
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Date Joined Apr 2004
Total Posts : 6056
   Posted 11/28/2008 10:40 PM (GMT -7)   
This is getting scary... Another one of us from Michigan... (Jeannie hears the shark music from 'Jaws' in the background.) Anyway, Danielle, welcome. I've had this my whole life for as long as I can remember but only dx about 4 years ago. At that time I started taking Malic Acid on the advice of a friend with CFS. I've had very good results with about 3200mg of Malic Acid a day plus extra calcium and magnesium. Get them at puritan.com for a reasonable price. Hope this helps.

BTW, I"m in Lansing. You?
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


Chutz
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Date Joined Jan 2005
Total Posts : 9090
   Posted 11/28/2008 11:59 PM (GMT -7)   
Hi danielle and welcome! Sounds like you folks from Michigan will have others to commiserate with over the long, dark, cold winter days/nights. If your state has a 'state health insurance' program check them out and see if you can get in. Our state, Washington, has what's called Basic Health. It's on a sliding scale from free to fully paying, but goes on your income. Can't be turned down unless the program is so full there's no money but they always seem to find more. Many states have this type of system. Jeannie would likely know.

Join us for our daily Check-In. We have a bit of fun that not fibro related because it helps to remind us we're regular people with the same hopes and dreams as others. Gets our minds off our misery for a short while and can be a great start to your day.

Hugs,
Chutzie
Co-Mod Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, collapsed disk, dermatitis herpetiformus, osteo arthritis in spine and other locations.
***************

The only difference between genius and stupidity is that genius has it's limits. Albert Einstein: (1879-1955)


Sera Smiles
Veteran Member


Date Joined Nov 2006
Total Posts : 671
   Posted 11/29/2008 1:35 AM (GMT -7)   
Hey, Danielle and welcome to a great forum/ I'm sorry you are having a rough time, we can all relate to your story. I think its about time to get someone to listen to our story, someone with the national ear, someone who could make others finally listen. Anyway- welcome, nevre hesitate to ask questions or offer suggestions of your own! We learn from each other and I'll bet we could learn from you, too!
 


SleepyBug
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Date Joined Nov 2008
Total Posts : 1097
   Posted 11/29/2008 7:46 AM (GMT -7)   
thank you all so much for the warm welcome! :)

jeannie-from what i've been reading, there does seem to be an awful lot of people from michigan around here...coincidence, or something nasty in our water??? i grew up near traverse city, but now live just about an hour south of lansing in an itty bitty little town no one has ever heard of. i usually just tell people i live halfway between jackson and adrian. thank you for the malic acid tip-i will definitely try that. about how much extra calcium and magnesium would you recommend to go with that?

chutz-our state health system is really screwed up-it used to be that if you had children under 18, you automatically qualified if you didn't have health insurance through your work (or you weren't making a lot of money), but they took that away. now it seems to be virtually impossible to get medicaid, especially if you are married. my dh and i only make about $2,500 a month, yet that's too much!? with 5 of us in the family, i just don't get how that is possible. i know that most counties in the state have special programs for people who have no insurance and don't qualify for medicaid, but unfortunately there's nothing like that in the county i live in :( it's a very frustrating position to be in!

thanks again everyone!

~danielle

Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 11/29/2008 7:56 AM (GMT -7)   
Hi Danielle and welcome. We have come up with some creative ways to help with the pain any kind of moist heat is our friend.
 
Ask questions, read the threads and vent when you need to.
 
Jeannie I noticed a long time ago that there are so many from Michigan on here. What is in the water up there???
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


Southernlady
Veteran Member


Date Joined Jun 2008
Total Posts : 844
   Posted 11/29/2008 8:02 AM (GMT -7)   
Hello Danielle and welcome to our fibro family.  We are all here to help each other and you will meet a lot of good friends here.
 
Read as much as you can.  I've learned so much from this forum.
 
God Bless!
Shannon
Of all the things that I have lost, I miss my mind the most!!!!


SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 11/29/2008 8:08 AM (GMT -7)   
thanks marlee and shannon!

re: moist heat-the bath is already my best friend, but what other ways are there to incorporate moist heat into my daily routine? are there special packs out there or anything else that is portable? sort of a "have moist heat/will travel" kind of thing? :)

any tips there would be greatly appreciated, too!

Southernlady
Veteran Member


Date Joined Jun 2008
Total Posts : 844
   Posted 11/29/2008 8:15 AM (GMT -7)   
I read that rice bags are good for the shoulder pain.  You put them in a sock and sew up the end of it.  Heat them in the microwave and you have wonderful relief.  I think it's a great idea and I even bought a couple bags of rice, but I haven't gotten around to putting it in the socks. 
 
You may want to try this.  I've heard that it helps a lot.
 
Shannon
Of all the things that I have lost, I miss my mind the most!!!!


Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 11/29/2008 9:38 AM (GMT -7)   
Marlee,
If this disorder is indeed caused by a micro mini bacteria, as has been proposed by some scientists, then it's possible that Michigan is an epicenter, like Lyme, Connecticut was for Lyme disease. Or maybe we just have more computers per capita than most states so we are more connected to the internet and forums. Don't know but it's not in the water. People all over the state get their water from several different sources including artesian wells, Lake Michigan, Lake Huron and the Saginaw aquifer. Maybe it's in the milk?
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 11/29/2008 10:11 AM (GMT -7)   
Hi, SleepyBug, and welcome!  It sounds like you are doing the right things for fibro and you also seem to have a good attitude.  That' half the battle!  Check out the Fibro 101 thread...the second thread on the forum.  There is a lot of good info about fibro.  There is also a link in there all about malic acid/magnesium supplements that have helped some, including me, on this forum.
 
I use the malic acid/magnesium supplements along with ibuprofen (with food) and Tylenol for my pain and fatigue and have managed.  I do a lot of stretching and walking, also.  This all helps.
 
I'm so glad that you found us and decided to join!  I hope to hear more from you soon!
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


mamanan
Veteran Member


Date Joined Jun 2008
Total Posts : 846
   Posted 11/29/2008 12:14 PM (GMT -7)   
Hi SleepyBug, I'm so glad that you found us! You certainly have your hands full, don't you? It's nice to meet you, adn I'm looking forward to getting to know you. How old are your children? I have 4, ages 20 mths to 10. Once again, welcome!
Waiting for appointment with rheumy (March 2009) to get an official dx. waiting, waiting, waiting....
Taking malic acid/magnesium combo, what a life saver! and amitriptyline


SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 11/29/2008 12:21 PM (GMT -7)   
wow-4 kids! for some reason that seems like so much more than 3. what is that old saying? having one child is having one child, but having 2 children is like having 5? (so i guess my 3 are really like 10 and your 4 would be 15 or something! :)) the messes definitely seem to compound with each addition...

my daughter is 15 and my sons are 6 and 4. they are all most definitely a handful-my dd is driving (eeeek!!!!shocked ) and can be moody and surly, but also incredibly sweet and so, so funny. my 6 year old likes to act and draw and talks like he's 35 (the vocabulary! it's astounding) and my 4 year old is a completely fearless redheaded ball of destructive tigger energy.

so-yup! they keep me busy alright! (wouldn't have it any other way, though, even with all of the pain and fatigue it brings) :-)

Post Edited (SleepyBug) : 11/29/2008 12:24:36 PM (GMT-7)


mamanan
Veteran Member


Date Joined Jun 2008
Total Posts : 846
   Posted 11/29/2008 12:36 PM (GMT -7)   
2 boys so close, yikes! lol. My middle ones are (almost) 6 and 4 as well, but the older is a boy adn then a girl. They do fight, but I think it is quieter that way than 2 boys that age. My oldest is a boy, adn he and his brother are enough when they get into their crazy games. I'm just starting to sense the teenager in him now, but it's still mostly unexplored territory, and it scares me! But seriously, after you have the second child, anythign more is easy to get used to. At least we are never bored, and I tell myslef they also probably make me feel better, since I can't sit for too long, even if I wanted to ;)
Waiting for appointment with rheumy (March 2009) to get an official dx. waiting, waiting, waiting....
Taking malic acid/magnesium combo, what a life saver! and amitriptyline


SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 11/29/2008 12:56 PM (GMT -7)   
absolutely! i completely credit my kids with keeping me focused on the positive and steering clear of too much "woe is me" kind of thinking. they know mommy has her "days" sometimes when she's slow and doesn't do much other than sit on the couch, but i really make a point of not getting too down in front of them or complaining too much-i don't want them to think of me as a grouchy, grumpy mama! they also make me laugh so much and that helps tremendously.

my boys do fight, especially over who gets what toy. lol. but they are also so close. they love to play together and have a great time most of the time. my daughter is a bit different since she's so much older than my sons-she's into her music and books and friends, etc., but she's also so a great help to me-she does the dishes every night, takes care of the cat, does her own laundry etc and that really helps out so much. she and i like to have our "girl" days where we have snacks and watch silly t.v. like bridezillas and wife-swap, so she helps keep me "up", too.

good luck with your son and his move into teenager-ville. i don't know what boys are like during that stage yet, but man girls can be super tough! (all the exaggerated sighs and eye rolling! oy!!!)

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40603
   Posted 11/29/2008 1:06 PM (GMT -7)   
Hi Sleepybug,

Do do do do. Another one from Michigan. I live in Northern Lower Michigan. I think a lot of it is the humidity from the lakes and the changes in the barometric pressure can cause flares. Maybe there is another connection there, but there seem to be a lot of us from this northern state.

I hope that you have a lovely day and I wanted to welcome you to the forum.

Take care, Keep posting,
hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


donnaeil
Veteran Member


Date Joined Jun 2006
Total Posts : 1156
   Posted 11/29/2008 8:28 PM (GMT -7)   
I tell you what. It is COLD in Michigan.

I guess it is cold in a lot of other places though. Oh well, back to the drawing board.

Donnaeil

realpain
Regular Member


Date Joined Nov 2008
Total Posts : 83
   Posted 11/29/2008 9:11 PM (GMT -7)   
Welcome Danielle,
 
I too am a newbee..  AND also from Michigan, I have not been "dx" yet but told that fibromyalgia is what I probably have and have began treatment for it, just have to pay a visit to the rheumy, before my doctor will give me a written diagnosis!!!  I have dealt with the pain for 8 LONG years though, and I am in a middle of a horrible flare up, and this weather doesn't seem to help a bit!!! I was told to try the Malic Acid as well... I think I will go and order some tomorrow, didn't know where tog et it at until now.  Good luck with everything, I have three children myself,and usually a house full of their friends to boot... certainly adds to the chores!!! : ) 
 
 
 
Wishing everyone a pain free day, ((((hugs))))
 
Rach
 
Partial thyoidectamy (hyperthyroidism), fibrocystic breast disease, low blood pressure, hypertension, depression, and anxiety, severe headaches, joint and muscle pain due to fibromyalgia.
 
Cymbalta, Tramadol (ultram), Propranolol, and Alprazolam (xanax)


jhawkfan
Regular Member


Date Joined Oct 2008
Total Posts : 86
   Posted 11/29/2008 9:18 PM (GMT -7)   
Welcom Danielle!! You have come to the right place. I LOVE the bed buddy (rice in sock) , it reallt works on those places that really ache,
How baths just moving is helpful. Some days  I just do very limited things around the house and get my shower in and rest alot in between. I take Yoga and it helps me alot. I now do some of the stretches when I home and have that tight feeling in certain areas. Do read the Fibro101 ok? It has alot of good info for you and remember, we are here to support you. Take care,  
Gentle Hugs,
Sheri
 
Fibromyalgia,Epilepsy,RLS,DDD
 
Lyrica,Tramadol,Gabapentin,AmbienCR,Zonagran,Phenobarbital,Mirapex,Dextromethopan, Flexeril
Fish oil, Vitamin E, Baby ASA, Multi-Vitamin,Malic Acid/magnesium,
 
 
  
 
 


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 11/30/2008 8:07 AM (GMT -7)   
I was in a hurry yesterday when I welcomed you so I didn't go into the different sources of moist heat. By the way my three sons are in their 30s and they still fight and than throw in four grandsons from 5 to 12 and the past 4 days of my life has been enough to make me want to run away from home. My close to 12 year old granddaughter is fine as long as the boys leave her alone and so is the almost 7 yr old granddaughter. They all went home this morning. turn The silence sounds soooo gooood.
 
You can make rice bags out of long tube socks by filling one with uncooked rice and closing the end and using the other one as a cover. Put it in the microwave to heat. I also have a Bed Buddy I bought at Walgreens, I think, that is larger. I ordered a gel filled neck thingy that covers your neck and shoulders that can be heated or froze. I think I got it from MedicalProductsOnline.com. I use a moist heat heating pad. I have a wonderful shower massage I got at Walmart it has two heads one stationary and one hand held.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin

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