Ok my doctor called..get this

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KE08
Regular Member


Date Joined Nov 2008
Total Posts : 92
   Posted 12/1/2008 4:54 PM (GMT -7)   
Last week I was told my ANA was 1:640.  So when I saw my doctor.. I asked her to run any test she could think of.  She called tonight and said all blood work is normal.  And for me to take 1000 grams(I think) of vitiman D.
 
I have had Fibro for 10 years. I was hospitalized 3 weeks ago for pain and dizziness.  ANA is high., dsDNA negative.   What is the Vitiman D all about??.. I know something should show up.. I have a lot going on..twitches, weakness, dizziness, aches, sleep anpea, tongue pain, balance problems, eye pain.. and the list goes on.
 
Going to see a rheumy tomorrow..something is not being tested. 
 
Had 3 MRI'S, BONES SCANS, EMG, ENVOKE POTIENTAL (2006).  
 
What test are missing??

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40573
   Posted 12/1/2008 5:34 PM (GMT -7)   
HI KEO8,

The vitamin D would be 1000iu. I take it every day. Fibromites are low in it. It really does help you to feel better all around. I was so sluggish before taking it. It even helps you feel better mentally. I started taking 3000iu at first, then 2000. Now I take 1000. And it has to be D3 as in Cholocalciferol (sp). That is what we are lacking.

I hope that the D works for you.

Best wishes,

Hugs, Karen

Oh yes, it is very inexpensive.
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17095
   Posted 12/1/2008 5:54 PM (GMT -7)   
I have a vitamin D deficiency too and take 1,800 iu daily.  It's good for your heart, too!
 
I do think you should find a doctor that you trust, though.  You have to have that "bond" in order to work well together.
 
Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Carnissa
Regular Member


Date Joined Jun 2008
Total Posts : 289
   Posted 12/1/2008 7:18 PM (GMT -7)   
vitamin D helps your body to absorb calcium, magnesium and malic acid, and make sure you buy a good quality brand...
Diagnosed - fibromyalgia 2001
Meds effexor xr 300mg/day amitryptilene 10mg/day
 
 


looking2
New Member


Date Joined Jul 2008
Total Posts : 13
   Posted 12/1/2008 9:52 PM (GMT -7)   
"OK....no one is listening to me. I don't want to be ridiculous here "but really". If someone says they have beat this thing you would think someone would listen but it appears no one is. Fibro is no more than food intolerance and I had it for 20 years....IT IS GONE......what more can I say. It is due to leaky gut. I don't care what anyone has to say. I am over it. **** has a blood test and a program that took away my Fibro, Add, IBS, Anxiousness and more that I suffered from of which no physician, natural path or anyone else has ever able to help me get over. I cant figure out why no one gets this. My fibromyalgia and other problems have left and all I have to do to prove my point that this IS the problem is go back to eating the foods that came up as positive and my symptoms return within a few days. Go ahead and take a bunch of tests from your doctor or whoever and spend a bunch of money. You can take a million tests as I did and come up empty handed.....JUST AS I DID. Talk Talk Talk is all I see here but no one seems to have any REAL answers....WELL HERE YOU GO....MY FIBROMYALGIA IS GONE. NOW ITS YOUR CHOICE.....I'm done here!

Post Edited By Moderator (Jeannie143) : 12/2/2008 1:32:32 AM (GMT-7)


Piercings
Regular Member


Date Joined Aug 2008
Total Posts : 326
   Posted 12/1/2008 10:03 PM (GMT -7)   
*blink* *blink* What just happened there? Did I miss a MIRACLE CURE?

pfft!

Piercings
Regular Member


Date Joined Aug 2008
Total Posts : 326
   Posted 12/1/2008 10:05 PM (GMT -7)   
OK. I'm sorry. I shouldn't make light of a company that promotes itself first as an herbal weight loss system.


HAHAHAHAHHAHA!

****************************************************

Alright I'm back to edit this as I went to do some further research on this (Company name removed). I just have a hard time swallowing that this company can cure my fibro, psoriasis, arthritis, and all these other things....
Inflammatory bowel disease
Infectious enterocolitis
Spondyloarthropathies
Acne
Eczema
Psoriasis
Urticaria
HIV infection
Cystic fibrosis
Pancreatic insufficiency
AIDS, HIV infection
Hepatic dysfunction
Irritable bowel syndrome with food intolerance
CFIDS
Chronic arthritis/pain treated with NSAIDS
Alcoholism
Neoplasia treated with cytotoxic drugs
Celiac disease
Dermatitis herpetiformis
Autism
Childhood hyperactivity....with a MINIMUM $250 - MAXIMUM $1099 food panel assessment.

Alright, there's my laugh for the night. I'm sorry I haven't been around more lately, but work's just been taking it out of me. The only reason that I'm posting right now is that I can't sleep. No even semi-comfortable position for me tonight.

Post Edited By Moderator (Jeannie143) : 12/2/2008 1:39:11 AM (GMT-7)


looking2
New Member


Date Joined Jul 2008
Total Posts : 13
   Posted 12/1/2008 10:44 PM (GMT -7)   
3. No posts that attack, insult, "flame", defame, or abuse members or non-members. Respect other members of the community and don’t belittle, make fun off, or insult another member or non-member. Decisions about health and well-being are highly personal, individual choices. "Flaming" and insults, however, will not be tolerated. Agree to disagree. This applies to both the forums and chat.

Post Edited By Moderator (Jeannie143) : 12/2/2008 1:36:38 AM (GMT-7)


Piercings
Regular Member


Date Joined Aug 2008
Total Posts : 326
   Posted 12/1/2008 10:53 PM (GMT -7)   
Um...what happened to....."MY FIBROMYALGIA IS GONE. NOW ITS YOUR CHOICE.....I'm done here!"

I thought you were done. And their website says $249.99. Not $24.99. Decimal points make a big difference when it comes to laying out money.

PS...It's "sister" not "brother" in my case.

looking2
New Member


Date Joined Jul 2008
Total Posts : 13
   Posted 12/1/2008 11:34 PM (GMT -7)   
3. No posts that attack, insult, "flame", defame, or abuse members or non-members. Respect other members of the community and don’t belittle, make fun off, or insult another member or non-member. Decisions about health and well-being are highly personal, individual choices. "Flaming" and insults, however, will not be tolerated. Agree to disagree. This applies to both the forums and chat.

Post Edited By Moderator (Jeannie143) : 12/2/2008 1:37:34 AM (GMT-7)


Piercings
Regular Member


Date Joined Aug 2008
Total Posts : 326
   Posted 12/2/2008 12:01 AM (GMT -7)   
If there was a cure, we'd know it. And we'd be all over it. But so far there's not. Leaky gut is not something that's even been fully accepted by the medical community, it's a loose term that's used in the "alternative medicine" community. Don't get me wrong - I'm all for the least invasive or lowest chemically induced treatments and believe in being abl to try and balance our bodies.. But it's not a "cure" as you claim it. If it cured you, I'm willing to bet that you didn't actually have fibro and you were diagnosed by one of the not so educated doctors that uses fibro as a catch all for anything that they can't explain.

Personally I'm tired of watching everyone try to hawk their wares to people that are looking for a cure. If you were that genuinely interested in promoting something that can "cure" all of us a non-aggressive, non holier than thou, non arrogant attitude would probably have garnered a much better response from me and any others.

When I check your (company name removed) site the first thing that they promote themselves as is an herbal and natural weight loss system. Only as a secondary act do they promote their "treatments for these ailments." The minimum that they ask, for a pediatric food panel (mind you this is not for an adult) is $250 with it being on sale right now for $210. If you find it laughable that I am not willing to toss $350 for an adult 100 food panel (on sale for $310) out the window for something that has not been confirmed, then keep on laughing. Cause really, when you can come to me with some sort of legitimate testing and double blind studies...I'll start tossing that money. Till then, it's better spent on other items.

Okay, you said you were done and didn't follow though. Now, I'm going to say that I am done - and mean it. I'm not looking to turn this thread into a flame war.
(I've removed the name of the company because we don't want to give them any free publicity. eyes )

Post Edited By Moderator (Jeannie143) : 12/2/2008 1:45:12 AM (GMT-7)


Sera Smiles
Veteran Member


Date Joined Nov 2006
Total Posts : 671
   Posted 12/2/2008 1:13 AM (GMT -7)   
Looking- perhaps you mistook this forum as a place to push your own issues and be condescending and nasty. However, this isn't that kind of forum. So, please, take your schtick somewhere else. This is not a forum where argumentative, obstinate, pushy people are appreciated. Good luck with your health and please take this somewhere else.
 


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 12/2/2008 3:34 AM (GMT -7)   
cry  I am decimated. This forum has been my lifeline. It has been a place where I can go and ask questions and get the help I need to get through those days that are meant only to be survived, not lived. The Fibro Forum, as compared to many others I suscribe to here, has been more than beneficial. What is this thread all about? It sounds like the Christmas Dinners we used to have as a family where the crarving knife and serving utensils would bounce off the walls, along with the gravy boat. Sis would fly out the door and go up the mountain with no coat, stepmom would get dizzy and fall down the stairs, brother and Dad would get in a fistfight and as best I could, I'd go looking for a pound cake to take my sorrows away. Come on people. If someone has found something that helps them feel better, congratulations. However, every one of us is an individual struggling to function with a chronic disease. Some days are better than others. That's all I know.
Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.


vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 12/2/2008 5:22 AM (GMT -7)   
FURTHERMORE...if your fibro has been cured, what are you doing even coming to this forum anymore?

Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 12/2/2008 11:10 AM (GMT -7)   
I apologize for not making my editing clear. The individual who posted has apparently not read the forum rules and was being unkind to a regular because she didn't subscribe to their particular theory/product/latest scam. It's difficult to just remove the rude stuff so sometimes I have to take out an entire post and insert a rule.

I have left part of the posts in the hopes that this person will understand the general feel of our forum and perhaps learn to share in a more polite way. I have not asked Admin to ban them yet because I'm hoping for a more civilized give and take. The individual does not have a clear and informed grasp of the dynamics of fibromyalgia or its accompanying disorders. I also believe that there are some "selling" interests involved.

I am trying to give this person an opportunity to redeem herself.
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


mamanan
Veteran Member


Date Joined Jun 2008
Total Posts : 846
   Posted 12/2/2008 11:26 AM (GMT -7)   
Jeannie, you are wonderful. Thank you to all the moderators who enforce the rules about no spam, and keep things civil between members. I love the tone of this forum, and I woudl hate for it to change.
Waiting for appointment with rheumy (March 2009) to get an official dx. waiting, waiting, waiting....
Taking malic acid/magnesium combo, what a life saver! and amitriptyline

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