Hi Aiko and Welcome-
I have been off work since the fibro hit, and I do not know how some of you do it working fulltime.
Hi Aiko, and all. I think I find the fatique most frustrating in the mornings when I've slept almost all night (minus a BR, break), and still can't find the energy to get going in the mornings. It's like my investment of 8 - 9 hours of sleep never happened. I almost feel angry at myself, I get so frustrated. What the heck? I don't work outside the home at present, but what about when the time comes when I can no longer afford to live on disability ($740.00) per month. Who do you suppose comes up with those figures? How in the name of heaven is anyone supposed to live on that. Rent is almost $600.00. The main advantage is I don't have to pay but $5.00 per perscription. I take ten per month. if I were to pay out of pocket I would have to make about $800.00 over and above what I need to live on, just to finance the meds. Almost nobody in my family believes in or accepts I have Fibromyalgia. My sister who does nothing to help look after Dad, claims I'm living off his tiny seniors cheque. His cheque goes mostly to pay down debt his wife (now in nursing home), acquired while she was gambling four nights a week. Dad has Alzheimers, so I am here 24/7/360 because nobody else is willing to care for him. I am not yet prepared to place him in a home because he's an outdoors kind of man, he's very big, six three, physically strong, has a temper and would be locked up. He wouldn't survive. However, they want to paint the picture in their own minds, it is very hard looking after Dad and his business and I can't even get a call from brother and sis, and also I have his wife's mixed up affairs to try and untangle. I have al her bill collectors caling me. Also, she expects us to pay her medical transport to and from hospital, and buy all the little necessities of life, while she goes on these shopping trips with other residents from the nursing home. She buys things she absolutely does not need. She bought a brand new suitcase for this latest trip to hospital, yet had a perfectly good, exactly the same kind of suitcase, I bought her last year, she used once. I'm just going to take it. I'll tell her the next time she calls for all her fancy creams and stuff that I need that suitcase back to get the food from the foodbank home Back to the fatique for a moment. Somewhere I read us Fibromites suffer from various vitimin insufficiency. Does anyone know more about this, ie. specifically which vitamins and how much we need to take to feel better?
I have: Fibromyalgia, CFS, Holt-Oram Syndrome, nasal allergies, depression
Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren.
Wow thanks everyone,
Sorry, it takes me awhile to get on my computer and read everyone's response. I share my computer with my son, who is always on the computer. Anyway, thanks for the suggestions. I'll try the malic acid w/ vitamin D & B & malic acid/magnesium and see which works best for me. Let me know if the sublingual B-12 works. I'm so happy to have found this website, I don't feel so all alone.