HOW TO DEAL W/FATIGUE

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Aiko
New Member


Date Joined Nov 2008
Total Posts : 7
   Posted 12/3/2008 9:13 AM (GMT -7)   
I'm a newbie and I've been diagnosed with fibro for 5 years now.  My problem is how to deal with the fatigue.  I always feel tired, but the afternoons are the worst.  I work full-time so it's very difficult to do my job and also to drive home.  On the afternoon weekends, I feel fatigued, but I feel so over tired that I can't take a nap. How do you handle your fatigue?  confused

Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 12/3/2008 9:39 AM (GMT -7)   
Hi Aiko and welcome to the family. The fatigue is the worse for me too. I do not work outside the home. Every afternoon it's like hitting a brick wall with the fatigue. I can work through the pain but not the fatigue. I can not take the malic acid that has worked well for others. I see my rheumy next Wed and I'm going to talk to him about vit B12 shots to see if that may help. I tried adderal but I have anxiety and couldn't find the right dose to help with the fatigue without causing more anxiety. Mine is not sleepiness and I can't sleep during the day, it's just fatigue.
 
I did have my whole family home for four days over the holiday and I seemed to have more energy while they were here but when they all left Sun morning I crashed. I don't know if it was adrenaline that kept me going or what. I still went to bed around 10:00 pm to keep on my sleeping schedule.
 
Read as much as you can and ask questions and we are all here for you.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


leemadd
Veteran Member


Date Joined Sep 2008
Total Posts : 532
   Posted 12/3/2008 9:54 AM (GMT -7)   
I take the malic acid, vitamin D, a daily vitamin and a b complex the b seems to help me with the energy I really notice if I miss one dose I have started carrying exta in my purse so if I have forgotton it I can take it when I remember.
Lee Ann

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40590
   Posted 12/3/2008 10:22 AM (GMT -7)   
Hi Aiko,

First of all, welcome to the fibromyalgia forum. You have come to a good place for advice. Everybody here is very kind and understanding.

I take adderall for the fatigue. I think that if you go the medicaiton route, that would be an idea. Also some take ritalin for fatigue.

Is there anyway that you can sneak in a little walk during the day? Even if it is only five minutes or so, it seems to burst up the energy some. I think the fresh air helps and just the fact that you are moving around.

I do take the malic acid supplements and vitamin D. That also helps a lot.

I hope that this helps in some small way. There are many other people that use other things for energy. I hope that you find what is right for you.

I am like Marlee, I can handle the pain, but not the fatigue. Talk to your doc and see what is recommended.

Best wishes for a wonderful day.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 12/3/2008 6:17 PM (GMT -7)   
hi aiko!

oh the fatigue is so frustrating, isn't it?? for me it's the worst part. i don't really have mine "under control" at all-there are some days when i'm at college and have the tremendous urge to just lie down on the floor and sleep! so i'm still working on this one, too.

one thing i have noticed is that my fatigue is worse if i do not stay properly hydrated. so i try to remember to carry a water bottle with me at all times and sip on throughout the day. it certainly doesn't give me booming amounts of take on the world energy, but it does help keep me limping through the day.

hope you're having a good day and welcome to the forum!
~danielle

Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 12/4/2008 9:08 AM (GMT -7)   
I use caffeine in coffee in the mornings and take lots of B complex as well as the malic acid and magnesium. I also try to get myself to bed at a decent hour to get enough sleep. Wish I could help more.
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


K9
Regular Member


Date Joined Nov 2008
Total Posts : 263
   Posted 12/4/2008 2:51 PM (GMT -7)   
I wish there were a magic wand for this one. It's ruined my whole career. I was just about to springboard into "fame and fortune" (ha ha) and fibromyalgia hit me like a ton of bricks. I can't work for more than 4 hours/day and my job demands about 12...

...I'll try some of the things others have suggested. Right now I'm working on the 30 minutes of aerobic exercise daily. But sometimes I can't fit it in in the mornings. And after 2 pm I'm so TOAST that I can't possibly do it.

Welcome to the site and good luck with finding some appropriate treatment!
I have Fibromyalgia, but nothing else!

I take Lyrica 150mg b.i.d.
Tramacet 75 mg for breakthrough pain

Tried amitryptelene 2.5 mg but it made me a zombie!


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 12/5/2008 1:58 AM (GMT -7)   
I also left my job because of the fatique. My PCP would not put me off work for Fibro, but I saw another doctor who signed my paperwork. I can get alot done in the morning, but came 2 PM and I collapse. I used to take my lunches in the Atrium, a large patient's family waiting room, and sleep. That was mt biggest problem, I couldn't get through the day. Now I work at home and don't have the same problem.

Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.


mamanan
Veteran Member


Date Joined Jun 2008
Total Posts : 846
   Posted 12/5/2008 7:13 AM (GMT -7)   
My fatigue is so much better since i started on the malic acid/magnesium combo. I used to feel so bone weary, it was an effort just to think about moving. That said, I did forget to take my supplements for 2 days a few weeks ago, and I haven't been the same since. I can't wait until they kick back in.
Waiting for appointment with rheumy (March 2009) to get an official dx. waiting, waiting, waiting....
Taking malic acid/magnesium combo, what a life saver! and amitriptyline


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 12/5/2008 8:05 AM (GMT -7)   

Hi Aiko and Welcome-

I have been off work since the fibro hit, and I do not know how some of you do it working fulltime.

I drink coffee in the morning and also take B12 subl. everyday. I started the B12 about a month ago or so. I did not notice a difference at first, but I am now noticing a slight change in my energy level. I also will rest my whole body on the couch a couple times a day. I know that is not an option for you. I think on the weekends, even if you do not "sleep" when your trying to get a nap in, at least you are resting your body.  
 
Hope you find something soon that works for you.
 
GamJill
 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
 
Zoloft, Tylenol 4000 mg., Darvocet  


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 12/6/2008 7:06 AM (GMT -7)   

Hi Aiko, and all. I think I find the fatique most frustrating in the mornings when I've slept almost all night (minus a BR, break), and still can't find the energy to get going in the mornings. It's like my investment of 8 - 9 hours of sleep never happened. I almost feel angry at myself, I get so frustrated. What the heck? I don't work outside the home at present, but what about when the time comes when I can no longer afford to live on disability ($740.00) per month. Who do you suppose comes up with those figures? How in the name of heaven is anyone supposed to live on that. Rent is almost $600.00. The main advantage is I don't have to pay but $5.00 per perscription. I take ten per month. if I were to pay out of pocket I would have to make about $800.00 over and above what I need to live on, just to finance the meds. Almost nobody in my family believes in or accepts I have Fibromyalgia. My sister who does nothing to help look after Dad, claims I'm living off his tiny seniors cheque. His cheque goes mostly to pay down debt his wife (now in nursing home), acquired while she was gambling four nights a week. Dad has Alzheimers, so I am here 24/7/360 because nobody else is willing to care for him. I am not yet prepared to place him in a home because he's an outdoors kind of man, he's very big, six three, physically strong, has a temper and would be locked up. He wouldn't survive. However, they want to paint the picture in their own minds, it is very hard looking after Dad and his business and I can't even get a call from brother and sis, and also I have his wife's mixed up affairs to try and untangle. I have al her bill collectors caling me. Also, she expects us to pay her medical transport to and from hospital, and buy all the little necessities of life, while she goes on these shopping trips with other residents from the nursing home. She buys things she absolutely does not need. She bought a brand new suitcase for this latest trip to hospital, yet had a perfectly good, exactly the same kind of suitcase, I bought her last year, she used once. I'm just going to take it. I'll tell her the next time she calls for all her fancy creams and stuff that I need that suitcase back to get the food from the foodbank home Back to the fatique for a moment. Somewhere I read us Fibromites suffer from various vitimin insufficiency. Does anyone know more about this, ie. specifically which vitamins and how much we need to take to feel better?

 


Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 12/6/2008 10:15 AM (GMT -7)   
Tyno, I go to the rheumy Wed and I'm going to ask him to do blood test for vitamins, I forgot last time so it is first on my list for this visit. I know my B12 has been checked but I don't know about the others. I was doing well taking several vitamins for a few months and then stopped keeping them right in front of me and out of sight out of mind.
 
I think it is something that we should all have checked for the fatigue.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


K9
Regular Member


Date Joined Nov 2008
Total Posts : 263
   Posted 12/6/2008 12:38 PM (GMT -7)   
tyno3 - thanks for your post. That was really helpful to me - I was starting to feel like a failure. I always had such energy and worked so hard. Then this thing hit me like a ton of bricks about a year ago and...as you say...I'm ok til about 2 pm and then I'm just plain done. Toast!
I have Fibromyalgia, but nothing else!

I take Lyrica 150mg b.i.d.
Tramacet 75 mg for breakthrough pain

Tried amitryptelene 2.5 mg but it made me a zombie!


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 12/6/2008 3:02 PM (GMT -7)   
To the best of my recolection I know vitamin D was a biggy, as was B12. The other B's wouldn't hurt either. I heard that B2 (I believe) helps with memory and that might help the Fibro Fog (which for me has been a big issue, just recently). It would be good to know if we're missing something else. I've heard that the omega's are important for the mind, and that Evening Primrose was also important for Fibromites. I was once a highly functioning Social Worker and advocate for persons with mental health disabilities. I often held a full time job and also a part-time job and at one point, was also taking several university courses. Now I can barely get out of bed, make coffee and get the dogs out before I have to lie down again. Then I'm up to fix lunch for Dad, we do a few errands and I'm dragging untill i can get back into bed. Where did that other person go? She seems to be fading quickly from memory. I can't even get worked up about anything, good or bad. A social life, well once the belle of the ball You folks and my one friend are it, my entire social life. i did take my son out to buy him a beer when he was here last week but I can't drink b/c of all the meds. Carrot juice for me please.

Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.


jewelrylady
Veteran Member


Date Joined Jun 2008
Total Posts : 717
   Posted 12/6/2008 3:33 PM (GMT -7)   
Marlee, I take a B12 sublingual.  I had heard it is the next best thing to a B12 shot bcause you dissolve it under your tongue & it goes directly into your bloodstream.  It might be something to ask about.  I can't remember who told me about it.  LOL   I also know B1 & B2 are good for pain.  There is another B that is good for pain but I can't remember that either.  Obviously, they don't help with memory.  So anyway, I just also take a B Complex. 
 
Aiko, Hi & welcome.  It is nice to meet you.  I just found this forum & it is really wonderful.  I think sleep is my main problem with all this DD so I am always looking for new ideas.  Take care.
 
Hugs, Denise

 I have:  Fibromyalgia, CFS, Holt-Oram Syndrome, nasal allergies, depression

Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren.


SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 12/6/2008 4:02 PM (GMT -7)   
hey can someone tell me a good place to find some sublingual b-12? i take the regular pill kind now but i've heard that the sublingual kind is way more effective and i can't find it at my local pharmacy.

thanks!

~danielle

Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted Yesterday 10:21 AM (GMT -7)   
Danielle they have them at Walmart. I was taking them but now I don't want to start anything til after I have blood work on Wed.
 
Tyno, I am having a hard time getting excited about anything. I know I'm still mourning the loss of my grandson and that is natural and normal, he has only been gone 19 mos. Even though this is the second holidays without him it is still very painful. I have to have the best Christmas I can for my other grandchildren but my heart isn't in it. If it wasn't for them I would do nothing for Christmas. I am going to talk to my doc about changing anti-depressants, they all want me on cymbalta but since so many people have a hard time getting off of it I'm not sure that is the one I want to take but I do feel like I need a change in meds to maybe perk me up a little. So maybe it's time for you to change your anti-depressant too. I know I can't go off the amitriptyline (tried cutting down in the spring and had a flare from hades). I'm hoping a change will give me more energy too.
 
luv and hugs
Marlee 
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


Aiko
New Member


Date Joined Nov 2008
Total Posts : 7
   Posted Today 9:00 AM (GMT -7)   

Wow thanks everyone,

Sorry, it takes me awhile to get on my computer and read everyone's response.  I share my computer with my son, who is always on the computer.  Anyway, thanks for the suggestions.  I'll try the malic acid w/ vitamin D & B & malic acid/magnesium and see which works best for me. Let me know if the sublingual  B-12 works. I'm so happy to have found this website, I don't feel so all alone.

Thanks,

Aiko

 

 

 

 


SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted Today 9:11 AM (GMT -7)   
aiko,

you are definitely not alone!

is your son a TEENAGER perchance? lol my 15 year old daughter is a computer nut. fortunately though hubby and i run an online business out of the house and so we have 4 computers in the house-no fighting that way!

marlee,

thanks for the info-i never thought to check walmart! seems so obvious..duh...fibro brain. i'm definitely going to pick up some and see if that makes a difference.

{{hugs}}
~danielle

swedderb
New Member


Date Joined Dec 2008
Total Posts : 3
   Posted 12/9/2008 9:46 PM (GMT -7)   
what helps my fatigue is mucinex please go to amazon.com to see the rating for this program. the book is called what your doctor may not tell you about fibromyalgia please research the book and see the rating for it and please try the program it works for pain and ibs good luck!!

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 12/9/2008 10:52 PM (GMT -7)   
There sure are lots of things to try and help fight the fatigue. I hate the feeling of being groggy and sleeping my life away. I'd rather be more awake and in pain.

I asked my doc about taking Provigil and it's really helped. It's often used for people who have trouble staying awake because of pain medications they take...that would be me. Might be a thought...

Chutzie
Co-Mod Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, collapsed disk, dermatitis herpetiformus, osteo arthritis in spine and other locations.
***************

The only difference between genius and stupidity is that genius has it's limits. Albert Einstein: (1879-1955)

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