Rheumy Appt tomorrow...anxious and worried

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Regular Member

Date Joined Oct 2008
Total Posts : 90
   Posted 12/3/2008 12:37 PM (GMT -6)   
I have an appointment with a rheumy tomorrow - my first one. I'm pretty anxious about it. I know generally what I want to say, but I'm still worried. When I was diagnosed with fibro I never had any tests run on me - a lot of people on here said they had all these tests run to rule out other things and that kinda worries me too... (getting a theme here? I worry a lot). So I want to ask her about that. I know I want a doc who can focus on the fibro and who actually cares about it - my pcp doesn't seem to give a crap and I want someone who does and someone I can talk to about it. Everything I've learned about fibro I've learned from the internet and that doesn't seem right to me. I feel nervous about going into a doc appointment with a list of stuff and being like "these are the things I think I know - are they true" and there are all these things associated with fibro like costochondritis and things like that that I think I have and I want to say "these are the things that I think I also have - do I????" I don't want to be one of those people that self diagnose themselves from the internet, ya know? That can be dangerous or...well its just not good. But the only doc I had that ever talked to me about it I moved away from very shortly after diagnosis and I want a doc who will sit down and talk to me about it. Half the time I'm not even sure I know what fibro is. When someone asks me I fumble over an answer - I know its hard to explain but I get confused and realize that I'm not quite sure. The only thing thats made any sense is the little drawing that came in the package of lyrica of how lyrica blocks certain chemicals or whatever. but yeah...so I'm nervous. I've filled out all the paperwork they've sent me - part of it was you had to shade in on this little drawing all the places you've hurt in the last week, and my boyfriend just started laughing and he said "you might as well color the whole darn thing in - you know its true" And it is to some extent I guess and I think its good I can laugh about it - but I don't want the doc to think I'm exaggerating things. But I also don't want to play it down either. GAH I'm so confused...I need to go to class now anyway. If anyone has any advice I'd really appreciate it. I think I'm going to ask my boyfriend to go with me...I'll think about that.

I hope everyone had a lovely Thanksgiving - I haven't been on here in a while. :-)
~~Asthma, Reactive Airway Disease, Allergies (to nature), Fibromyalgia, Kidney Reflux Disease, Chronic Migraines (docs currently working on those), Generalized Anxiety Disorder, Depression, Restless Leg Syndrome, and a few others that remain undiagnosed because I don't feel like being on anymore medication than I am already on. ~~

~~ Allergra, Singulair, Topamax 50mg 2x/day, Frova, LoestrinFe, Cymbalta 90 mg, Lyrica 50mg 5x/day, Flonase, Albuterol inhaler and nebulizer, Amrix, and a daily dose of chocolate ~~

~~ I'm 21 and trying to be optimistic~~

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 40401
   Posted 12/3/2008 2:51 PM (GMT -6)   
Hi Leeriesan,

First of all you are doing the right thing in carrying a list. Ask them some questions and write down what the answers are. You never think that you are going to forget what they say, but you do. I have a horrible time in the doctor's office, I do always down play everything. I don't know why I get so nervous.

Try to relax. Stress only makes things worse as I am sure that you already know that. Just breathe deeply and try to put it out of your mind for a while.

I hope that everything goes well at the reumy.

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

New Member

Date Joined Sep 2008
Total Posts : 16
   Posted 12/3/2008 6:04 PM (GMT -6)   
Hey. Sorry to hear about all your anxiety. I'm just 20 myself, and am the same way.
I don't have much advice, but I do have a little. I definitely agree with bringing a list and writing down things the doctor has to say. With my personal experience, I don't think I would go in a doctor's office and say "I think I have this, this, and this". Unfortunately, most doctors don't seem to be open to that sort of thing. However, I believe you should still state your concerns...just perhaps in a more passive manner. It seems to me that doctors tend to listen and communicate more when things are approached in this way. Most definitely mention that you did not have tests to rule out other conditions before you were diagnosed with Fibro. Other than that, just try and relax. I know how tough it is to be optimistic, but sometimes there's not much we can do in the present. Hope it goes well :)

Veteran Member

Date Joined Nov 2008
Total Posts : 1097
   Posted 12/3/2008 8:06 PM (GMT -6)   

when i had the appointment that *finally* got my diagnoses, i came armed with, a list of fibro symptoms, a list of my symptoms, and my health history to prove that a. i have had symptoms for quite a few years and b. i have tested negative for virtually every disease out there (well, the ones that mimic fibro anyway!) i stayed calm (or tried to! lol) and rationally explained that fibro was the one thing i found online that lined up with my symptoms. my dr. looked everything over, felt for my tender spots, and when i yelled in pain every time she hit a bad spot, she said "yup. probably fibro". she of course then promptly told me there was nothing she could do for me...*sigh*

anyway! i understand the concern of not wanting to sound like one of those self diagnosing hypochondriacs, but i think it might be helpful for you to come up with a list of fibro symptoms and a list of your symptoms. at least that give you somewhere to start the conversation:)

also, whenever anyone asks me what fibro is, i always say "they don't really know. or else i forgot. but! the symptoms are....' and so on:)

i am rooting for you and hoping your dr. appointment goes well-please keep us posted! and if you feel anxious going in, just remember this is YOUR body and YOUR life and you have every right to present what information you have to the dr!

{gentle hugs}

Regular Member

Date Joined Jul 2008
Total Posts : 368
   Posted 12/4/2008 7:52 AM (GMT -6)   
Try not to worry, easier said than done.  He will know what to ask  to do.  He will send you off for all the tests Its not as bad as I thought, but its taken me half dozen visits to finally relax and here am I trying to give advice.... Truly one can be over prepared take it from one who always is.  Luck   sue2z wink wink wink
Fibromyalgia, ulcerative colonitus, arthritus, bi-polar
norspan patch, valium, prothiedon, lyrica

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 12/4/2008 11:23 AM (GMT -6)   
I hope all goes well for you today Leeriesan. Be waiting to hear from you. Keep warm or you will really be hurting when you see the doc. It is up to 17 now.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
Co Q 10, Super B Complex, Extra B12, Multi vitamin

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