Help! Fibro and Dizziness!

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nannen
New Member


Date Joined Sep 2008
Total Posts : 16
   Posted 12/3/2008 3:48 PM (GMT -7)   
I was wondering if any of you experience dizziness/disorientation/light-headedness in any of the same conditions that I do. I (mostly) experience these feelings in certain lighting conditions (flourescent lighting and sometimes at sundown/dusk) and after I've exercised. I also have begun to feel dizzy after massages and adjustments from my chiropractor. Does anyone have these same issues? I am especially curious about the exercise factor. I just walk briskly for 15-30 minutes a few days a week. I have just recently started exercising again, so I'm wondering if it doesnt have something to do with that. I know dizziness is a symptom of fibromyalgia, but it seems odd to me that the dizziness comes in these particular instances. It sometimes concerns me. Any info is appreciated! Thanks :)

Tootiebug58
Regular Member


Date Joined Feb 2008
Total Posts : 378
   Posted 12/3/2008 4:06 PM (GMT -7)   
Hi Nanen
I am constantly experiencing dizziness with fibro. Especially in the grocery stores and department stores. I feel like I am walking sideways. I also get dizzy after I have my hair cut, which is really weird. Walking makes me dizzy, even in the house sometimes. I asked my dr about it and he said its part of anxiety and the fibro. I thought it may be my blood pressure was too low, its usually 110/70 and he said that was fine. When I get dizzy I drink a glass of cool water, and that seems to help a bit.
You might want to bring it up with your dr. Its no fun, as I never know when Iwill get a dizzy spell. Hope you feel better
Tootie
-------------------------------------------
anxiety/panic attacks...osteoporosis....Fibro
 xanax


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 12/3/2008 6:05 PM (GMT -7)   
Hi Nannen,
 
Oh yes.  I get everything you just mentioned too.  Fluorescent lighting is really bad for me.  I can't be in Walmart for more than a few minutes.  I stopped going to my chiropractor because of the dizziness and I also get light headed, dizzy from even just light exercise.
 
Interesting that we both have the same triggers.  Fibro is really strange!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 12/3/2008 6:11 PM (GMT -7)   
hi nannen!

i have issues with florescent lighting also! and i've just recently started having vertigo issues, even though i am not afraid of heights or ever had a problem with it in the past. (i was recently in an upper level study room at my college's library and when i looked out of the large widows that look down on to the lower level of the library, i literally thought i was going to pass out!)

for me the main problem is a weird "omg i'm going to fall over!" feeling..does that make sense? like the floor is going to just disappear right out from under me and i have to stop moving for a minute to feel normal again.

sorry i don't have better advice, but i do hope your dizziness stops giving you so much trouble!

{gentle hugs}
danielle

donnaeil
Veteran Member


Date Joined Jun 2006
Total Posts : 1156
   Posted 12/3/2008 6:27 PM (GMT -7)   
I get dizzy when I am in the pool, swimming. Even during water aerobics it occurs.

In addition, I feel nausea and too often have difficulties with keeping my balance.

When it happens in the pool I just try to relax and wait for it to go away. I hate the nausea though. It feels as if I am going to need the bathroom soon.

Sleepybug, I feel the falling over feeling like you do.

Thanks for brining this up Nanen. We need to share this information. I do not think that medical science has yet to learn about all of our symptoms.

Donnaeil

Donnaeil

Green Grove
Veteran Member


Date Joined Oct 2008
Total Posts : 2424
   Posted 12/3/2008 7:49 PM (GMT -7)   
Hey, I feel like this too, and my BP is normal. . . I think it is a hypersensitive reaction to the pain and then the anxiety from all this also. I know how bad this feels, and you all will be in my prayers to get better from these crazy symptoms :)
Much Love, Hugs, Peace & Comfort :)
Sam
 


Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 12/3/2008 9:05 PM (GMT -7)   
Yes, dizziness can be a problem. I never thought about florescent lights, but I hate stores like walmart and kmart - I always feel strange in there. Do you eat enough before exercising? If I havent eaten enough, I get extremely dizzy and lightheaded after exercising.
Sue

Mrsppmrxky
Regular Member


Date Joined Jul 2006
Total Posts : 380
   Posted 12/3/2008 9:37 PM (GMT -7)   
I am so glad that you posted this question! I was beginning to think that I was turning into a true oddity. LOL

When I go grocery shopping or in a close area like WalMart, it feels as if my glasses are tilted and the room is all out of kilter. I thought that I was going nuts with those symptoms.

It doesn't happen at home too often. I was thinking something was really off with my bifocals.

K9
Regular Member


Date Joined Nov 2008
Total Posts : 263
   Posted 12/3/2008 9:53 PM (GMT -7)   
I get dizzy a lot too - especially after exercise. My rheumatologist told me to do aerobic ex. for 30 minutes and that would help with the energy loss so for the last month (since I saw her) I've been doing my treadmill 6 days/week grasping at straws to get some energy. So far not sure if it's working but it does make me dizzy! lol

I just figure the dizziness is from all the dope I'm taking!
I have Fibromyalgia, but nothing else!

I take Lyrica 150mg b.i.d.
Tramacet 75 mg for breakthrough pain

Tried amitryptelene 2.5 mg but it made me a zombie!


nannen
New Member


Date Joined Sep 2008
Total Posts : 16
   Posted 12/3/2008 11:13 PM (GMT -7)   
Wow! All these responses. Thank you all so much for sharing. It helps ease my mind a little bit. I had heard from others about dizziness in the aforementioned stores and such, so I wasn't quite as concerned with that as I was with the exercise part of that (I had an especially bad episode of that today). I'm so glad that other peoples' minds are being put at ease also.
 
Instead of writing long individual responses, I hope shorter responses will do.  It's getting very late .

Tootiebug- My blood pressure is normal, but low blood pressure upon standing has been mentioned by my neurologist as a possible factor. Thank you for the suggestion of drinking cold water to help.
 
Ginny- Your response was very reassuring. It is quite strange, isn't it? I'm glad we are not alone.
 
Sleepybug- Yes, I am very familiar with that feeling! I wonder if some of my dizziness isn't actual vertigo... This facet of Fibro is very new to me also.
 
Donnaeil- It's interesting that you mentioned that. I started Phys. Therapy (in a heated pool) just a couple of months ago. While I don't feel dizzy in the pool, I do feel terribly dizzy once I get out. Puzzling. I've stopped going for now. Sorry about your nausea. I've only experienced Fibro-related nausea a few times, and it's rough.
 
Greengrove- Thank you. You will be in mine as well. And I think you make a very good point. I'm sure those things play a part.
 
Statgeek- Yes, I do think I eat enough. Unfortunately, I don't think my dizziness is food related. :( But thank you for your suggestion.
 
Mrsppmrxky- I can definitely relate to what you say you are feeling. It rarely happens at home for myself as well.
I'm glad this post helped.
 
Schutzhund- Have you talked to your Dr about this dizziness with exercising? The few doctors I've said anything to are clueless, and I've never asked anything about the after-exercise specifically. Perhaps it does have a bit to do with our meds, but I am not currently taking too many things, so I'm not sure.
 
Thank you all again for your posts. I'm also very thankful that this thread has helped more than one person. It was such as pleasant relief/surprise to come home to several reassuring replies, especially after one of "those" days. We all know them well.
 
Have an amazing day.
 

K9
Regular Member


Date Joined Nov 2008
Total Posts : 263
   Posted 12/3/2008 11:45 PM (GMT -7)   
Nope - haven't talked to my dr. about it. In fact, I talk to my dr. about very little! I guess that's just the sort of person I am. The insurance co. that's denying my disability told me last week I should have "complained more" over the past years. Geesh...

Mostly, I don't sweat the small stuff. I have a debilitating disorder, I take a bunch of dope now. I figure...what's a little dizziness? Just hang on to something after I get off the tread mill!
I have Fibromyalgia, but nothing else!

I take Lyrica 150mg b.i.d.
Tramacet 75 mg for breakthrough pain

Tried amitryptelene 2.5 mg but it made me a zombie!


nannen
New Member


Date Joined Sep 2008
Total Posts : 16
   Posted Yesterday 5:22 PM (GMT -7)   
Ha ha, yes I see.
Thank you for your insight!

telula68
Regular Member


Date Joined Sep 2008
Total Posts : 56
   Posted Today 2:32 PM (GMT -7)   
YUP!! can't go to places like walmart. I feel like I am going to pass out. dizzy and it messes with my eyes and head. the way I describe it is like in cartoons when tom and Jerry hit each other on the head and their eyes go back and forth really fast. That's how it feels. It happens other times too and I dont really know what causes it.

nannen
New Member


Date Joined Sep 2008
Total Posts : 16
   Posted 12/12/2008 8:24 PM (GMT -7)   
Telula- I agree. What a wonderful way to describe this situation! Thank you for your input.

tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 12/13/2008 4:29 AM (GMT -7)   
Yes, more so these past few weeks. I take a couple muscle relaxers to sleep. I thought they were the culprit. May-be, may-be not.

Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.

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