Help with a new symptom

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aux433
Regular Member


Date Joined Oct 2008
Total Posts : 24
   Posted 12/5/2008 10:47 AM (GMT -7)   
Hi All,
i've had fibro for several years and have most of the symptoms mentioned on the site. I developed fibro after a severe bout of Tolosa-Hunt Syndrome (basically a brain inflammation).
 
I have very little sensation in my hands. My fingers are numb or tingle. To know how something feels, I have to touch it to my face.
 
I'm used to dealing with all the pain and complexity of fibro. I hate it!!
After a career as a hosital executive, I'm now completely disabled and survive on social security and work disabilty.
 
Now suddenly I have severe pain in my arms. When I lay down to sleep, my arms go numb. After a short period of sleep (maybe 2 hours) I wake up with excruciating pain in both arms from my shoulders to my wrists. Hot, burning excruciating pain.
 
This is new to me....does anyone else have this problem? If so, what do you do for it?
 
 

SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 12/5/2008 12:14 PM (GMT -7)   
hi and welcome!

have you ever been tested for carpal tunnel? this sounds so much like my c.t. symptoms. my dr. was suspicious that i had it for a long time, but i wasn't "officially" diagnosed until i saw a neurologist who did this funky needle test on my nerves. if you have any history of extended regular motion like computer usage/lifting/working on a cash register or adding machine, etc, you could definitely have developed c.t.

my symptoms come and go-they get worse when i spend a lot of time on the computer or oddly enough if i try to read a large, heavy hardcover book lying down (strain on the wrists maybe?). what usually works for me is taking an anti inflammatory of some kind and using special wrist supports while typing and while sleeping. you can get a couple of different types of these supports at the drug store-i like the full handed ones when i type, and the smaller ones that just go around the wrists while i sleep. i guess these are supposed to help keep you from making any jerky motions with your wrists and hands, which keeps inflammation down. i know that sometimes i go through periods where if i don't wear my supports, i will wake up crying out from the burning shooting pain.

i don't know if fibro can mimic these carpal tunnel symptoms, or if people with fibro are more prone to developing carpal tunnel, or if it these symptoms can be caused by something else altogether. i did want to mention my experience, though, in case it helped. maybe you should mention having the needle test done to your dr?

i am very sorry that you're having these awful pains and hope you feel better soon!

{gentle hugs}
~danielle

aux433
Regular Member


Date Joined Oct 2008
Total Posts : 24
   Posted 12/5/2008 7:15 PM (GMT -7)   

Thank you so much SleepyBug! It never occured to me that it could be cp. I can't tell if the pain starts from the wrist/hand or shoulder/neck.

My it hurts so bad!! I will try the antiflammatory today and get some wrist supports. Hopefully that will help. If nothing else, it will be additional info for my doctors.

Thank you so much


SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 12/5/2008 9:12 PM (GMT -7)   
you are very welcome! the arm pain is absolutely awful with c.t. which is what made me think you might be going through that also. if you have a very bad case, there are surgery options but those can have side effects, which is why i've stuck with the ibuprophen and wrist supports. i hope the wrist supports and pain killers give you some relief, too!

i hope you feel better soon and welcome again:)

~danielle

Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted Yesterday 7:37 AM (GMT -7)   
Aux, my left arm goes numb if I sleep on right side. I was dxd with thoracic outlet syndrome years before fibro it comes from the spine. Have you went to a neuro??? I went to PT and it helped. Now both of my shoulders and shoulder blades are a mess from fibro and causes lots of pain.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


aux433
Regular Member


Date Joined Oct 2008
Total Posts : 24
   Posted Yesterday 9:32 PM (GMT -7)   

Thank you Marlee, I did have some thoracic outlet problems following a car accident 15 years ago. Haven't had any problem in years, but maybe i did something to cause it to "re-activate"? I still have notes from the pt on what exercises to do. I'll start those and see if it will help. Thank you.

Sometimes I spend a lot of time time trying to understand and figure everything out. I can intellectualize that this process cannot be understood or controlled, but I still try to "fix it".


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted Today 8:05 AM (GMT -7)   
Aux, I've not done the exercises for thoracic outlet since having fibro. I know one was standing facing a wall and kinda doing pushups with your arms. My upper arms are nothing but a mass of knots so I don't know how that would work now.
 
I don't think any of us stop trying to find things that help us, I know I don't.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin

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