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patsie
Regular Member


Date Joined Dec 2008
Total Posts : 478
   Posted 12/9/2008 2:07 PM (GMT -7)   
Hello,

I found this site while goggling for some of my fibromyalgia issues.

Last year I was diagnosed with this "plague" but am certain I suffered for some time w/o knowing what the dickens was happening to me.

I take no meds at this stage not because I am brave because I am so allergic to medications. Soooo I cope day to day as best I can. I now understand flares and am in a big one. I tried so hard to walk my pup this morning and just felt so very bad afterwards. Life is difficult as you all know but I try so very hard to count my blessings and take things a day at a time.

Anyway folks, I very much look forward to sharing and getting all of your help I can.

Patsie

Terrie B
Regular Member


Date Joined Mar 2007
Total Posts : 90
   Posted 12/9/2008 2:10 PM (GMT -7)   
Patsie~
I'm sorry that you are having such a bad flare right now! I hope that it passes quickly. Fibro is monster, isn't it? I'm glad that you found this site. It is so helpful! I look forward to getting to know you and hearing your story! Welcome!
 
 
                                         Terrie


SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 12/9/2008 2:17 PM (GMT -7)   
hi patsie,

welcome! i'm so glad you found us. you'll find tons of information here (check the fibro 101 thread) and lots of helpful, friendly people:)

i don't take any medications either so i understand where you're coming from there. there are a lot of vitamin/mineral options out there that i'm just starting to explore.

i'm sorry you're in a bad flare right now-hope you get to feeling better soon and look forward to getting to know you:)

{hugs}
~danielle

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 12/9/2008 3:37 PM (GMT -7)   
Hi Patsie,
 
Welcome to our forum!  I look forward to getting to know you better,
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 12/9/2008 3:39 PM (GMT -7)   
Welcome, Patsie, to the fibromyalgia forum!  I'm sorry to have to meet you this way but I'm so glad you found us and have joined in.  You couldn't be in a better place!  We have wonderful people with great ideas to help you live a full and einjoyable life with fibro.
 
I see that Danielle has directed you to the Fibro 101 thread...the second thread on the forum.  There are links in there to all sorts of good info about fibromyalgia.  You will find symptoms, good stretching exercises that really do help, and also a link to malic acid/magnesium supplements.  I started taking these last year and they have helped me with pain and fatigue.  They don't help everyone though.  But, read about them and see what you think!
 
Try hot showers and moist heat.  They really do help.  Some have Bed Buddies that you heat in the microwave and give off moist heat.  You can also make one with a tube sock that you fill 2/3's full of long grain rice (not instant) and then tie a knot on the end.  You can microwave this and it will give off moist heat like the Bed Buddy does.
 
Don't hesitate to ask questions.  That's why we are here!  We like helping each other and, as a bonus, we really to care about each other, too!  So join in.  We will help  you and have a few laughs in the process.  Hope to hear more from  you soon!
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 12/9/2008 3:46 PM (GMT -7)   
listen to sherrine! i took the advice of those here and made my own sock buddy and it is heavenly! (though my husband does say it makes our bedroom smell like a chinese resturaunt..)

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 12/9/2008 3:58 PM (GMT -7)   
Welcome!
Co-Moderator Crohn's Forum.


patsie
Regular Member


Date Joined Dec 2008
Total Posts : 478
   Posted 12/9/2008 4:02 PM (GMT -7)   
Hello Sherrine,

How do I thank you for such a great note. This disorder has left me feeling quite lonely at times so this group may really help with that. I hope to offer my help and support to others as well.

I want to check the malic acid right away. I have such a bad time with cramping and have tried just magnesium with little improvement. I am trying hard to find as many natural ways to fight this as I can.

Again thank you for the uplifting message.

Patsie

Meggie
Regular Member


Date Joined Jul 2008
Total Posts : 408
   Posted 12/9/2008 6:05 PM (GMT -7)   

Welcome Patsie,

I was lonely until I found this forum too.  The people here have been an absolute blessing to me.  I have been given wonderful advice and a lot of support.  I hope you find this as well.

Meggie


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40573
   Posted 12/9/2008 6:24 PM (GMT -7)   
Hello Patsie,

You have found a good forum. I think that you will truly be glad that you came here.

You have been given a lot of information and advice already so I just wanted to welcome you to the forum.

I hope that you are feeling better soon.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


mamanan
Veteran Member


Date Joined Jun 2008
Total Posts : 846
   Posted 12/9/2008 6:59 PM (GMT -7)   
Hi Patsie, and welcome. Finding this forum has certainly helped me knowing I'm not alone, and making sense of this DD. I'm so glad that you foudn us. I am one of hte lucky ones that hte malic acid/ magnesium has helped. I did have some diarrhea the first week, but then it passed. I forgot to take my supplements about 3 weeks ago, adn I coudln't believe once again how much of a struggle it was to get through the day! I am finally starting to feel better. So of course I overdid it today. Anyway, it might be an option for you. Looking forward to gettign to know you.
Waiting for appointment with rheumy (March 2009) to get an official dx. waiting, waiting, waiting....
Taking malic acid/magnesium combo, what a life saver! and amitriptyline


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 12/9/2008 10:55 PM (GMT -7)   
Hi Patsie and welcome to the family!! The folks here have helped me to live a good life even with this darn disorder. So many suggestions, ideas and love from people who truly understand what we are feeling. That's better than any medicine.

Hugs,
Chutzie
Co-Mod Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, collapsed disk, dermatitis herpetiformus, osteo arthritis in spine and other locations.
***************

The only difference between genius and stupidity is that genius has it's limits. Albert Einstein: (1879-1955)


jewelrylady
Veteran Member


Date Joined Jun 2008
Total Posts : 717
   Posted 12/10/2008 2:01 AM (GMT -7)   
Hello patsie, I am new here too.  I have found that it is a very warm & loving site.  I am sorry you are having such a hard time of it right now.  There is so much wonderful information here.  I believe knowledge is power, learn all you can, keep a positive attitude & live as well as you can.  I hope to get to know you better.  Hugs, Denise

 I have:  Fibromyalgia, CFS, Holt-Oram Syndrome, nasal allergies, depression

Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren.


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 12/10/2008 8:17 AM (GMT -7)   
Hi Patsie and welcome to the family. As you can see we are here for each other. I felt alone with fibro also til I found this forum, now I know I'm never alone with it.
 
I hope this flare ends soon. I think the stress of the holidays affects many of us. Stress + fibro = pain.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 12/10/2008 9:06 AM (GMT -7)   

Hi Patsie and welcome-

The plague descended on me late last March. I take Tylenol 4,000 mg daily and Darvocet for back up. That is even starting to give me an upset stomach. I am allergic and sensitive to almost all meds too. I had no choice to take an anti-depressant as I got depression with it also and it was severe. I started Zoloft and by some miracle I did not have any reactions and it makes me feel normal. Whatever normal is in a fibro body!  smhair  

I hope this flare eases up for you soon- what kind of dog do you have?

GamJill  


 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
 
Zoloft, Tylenol 4000 mg., Darvocet  


patsie
Regular Member


Date Joined Dec 2008
Total Posts : 478
   Posted 12/10/2008 9:19 AM (GMT -7)   
Hi GamJill,

Well interesting to read about the depression b/c that is another issue I am dealing with. Just came home from the health food store and got a malic magnesia prep that I have heard really helps; crossing fingers....

I have a standard poodle. He is black but turning silver, he is my best buddie and so smart. He really knows when I am having it bad and puts his big head on my knee and looks up with those doe eyes. He keeps me going. I had a white standard that lived to 15 1/2 and never had a better dog. This guy is just over a year.

Thanks for the mail. Write me again.

Patsie

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 12/10/2008 1:03 PM (GMT -7)   
I don't know how old you are but women under 50 should be getting 600 mg of calcium with D and over 50 you need 1,200 mg! Now the reason I'm telling you this is that you mentioned cramping.  I suffered with cramping but then I started taking 1,200 mg a day of Citracal with D and the cramping has stopped.  It's been two years!  If you do not have enough calcium in your system, you can get cramping.  I use Cirtracal because it's the easiest to be absorbed. 
 
Lack of potassium can cause cramping, too.  Some potassium-rich foods are potatoes (my favorites smilewinkgrin ), tea, and bananas.  Hope this helps!
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 12/11/2008 7:52 AM (GMT -7)   

Hi Patsie-

It's amazing how animals can sense immediately when something is wrong with you- I have a yellow lab granddog and watch him when my oldest son and his family go out of town. He is the sweetest, dearest (tough when he has to be) dog. He was over during Thanksgiving week and I had a few tears sitting at the kitchen table figuring out my finances- he noticed in a heart beat and ran and grabbed his ball and tried to give it to me and was getting all upset. Bless his heart, if that didn't pull me right out of it!

So I know what you mean. Only a year old- ahhhh. And to lose a pet- it's like losing a family member. Marlee, one of our moderators just lost her dog and she was 15 also I believe. 

Good luck with the malic/mag. I am going to start the calcium with D like Sherrine mentioned.

GamJill 


 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
 
Zoloft, Tylenol 4000 mg., Darvocet  


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 12/11/2008 10:15 AM (GMT -7)   
Brandy was almost 15 GamJill. She was pretty much the perfect dog Patsie and it was like losing a family member, which she was.
Now we have another Bichon that is three months old, Krissy, and I'm so in love again. I was gone all afternoon yesterday and I started missing her, not my DH that was home with her, but her. devil
 
We had said that after Brandy was gone we would never get another dog but it was so empty in this house I couldn't stand it. I have laughed so much in the weeks since we got her, you can't help but laugh at a puppy.
 
luv and hugs
Marlee
 
 
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


patsie
Regular Member


Date Joined Dec 2008
Total Posts : 478
   Posted 12/11/2008 1:55 PM (GMT -7)   
Hi Marlee,

Oh my we said the same thing when our dog died. He was truly a family member as you say. He died November, Thanksgiving weekend of '05. It took us until the start of '08 to start over and it is the "bestest" thing I ever did. Thought another could not capture my heart, well it's gone totally.

Loved hearing about your pups.

Patsie
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