It's so hard to pace ourselves, especially when in a flare and there is so much to do. Then, you might get a day of relief and try to seize the moment, do too much and pay for it for the next three weeks. I have a hard time saying' no' to my friends also. As we speak, I have a friend in Cincinatti that wants to pick me up (I live in NY) drive to the Outer Banks in NC to visit another friend, then stop in DC on the way back to spend a couple of days thrift shopping. I thanked her but told her I couldn't sit in the car that long...too much pain plus I have RLS. Her reply was..."You can be in pain anywhere so why not spend it with your friends?" I feel guilty. I have another friend who likes to 'power walk through malls'. You have got to be joking!
I like to go to the casino once a week on Old Broad's Day with friends. It's mindless entertainment and we have fun, even though I have to wear ear plugs from all the noise. I like to play bridge with friends and we do that occasionally. In the summer, we have some beautiful places to walk the dogs...I enjoy that but summer is only about three months long here. I LOVE to write, but at the moment that is out of the question. There always seems to be a I love to do this and that BUT....It really bites, doesn't it???
Just do what you can do, what you can do, what you can do...and enjoy the peace and comfort that slip in occasionally without thinking about how much you have to get done. Enjoy it withut guilt!
Hey Danielle...we have a few Indian owned casino's around here...the closest one is about 45 minutes away and to tell you the truth, the ride is beautiful and I enjoy that as much as the gambling. I go once a week with a free comp and about twenty bucks. I think the endorphines get going when you truly believe you might win something and I hardly ever feel in pain when I am there. They have live entertainment in the lounge and the hubby goes to hang out with the band because they let him sing on occassion, and I meet a few friends and we just sit and push the buttons...laugh, eat etc. This casino is a metro plex beyond belief with shops. five star resturants and two five star hotels, A PGA golf course where the likes of Tiger Woods golf... a tennis dome...spas and massage services, some kind of huge mineral pool that is supposed to melt away pain...concerts nightly (I think Kelly Clarkson was there last week) so there are a number of things to do besides gamble. And...because it's on an Indian reservation, everything you buy is tax free!
It's not for everyone but I enjoy the distraction...but holy moly, is it LOUD! (it is so big I have never been through the whole thing)
I have: Fibromyalgia, CFS, Holt-Oram Syndrome, nasal allergies, depression
Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren.