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SPED
New Member


Date Joined Dec 2008
Total Posts : 5
   Posted 12/10/2008 1:30 PM (GMT -7)   
Does anyone here have sjogren's and fibromyalgia? I was just recently diagnosed with fibromyalgia but had sjogrens symptoms first. Dry eyes and mouth. I also developed a butterfly rash but doc said he didnt think it was lupus because my blood work was normal. He thought it might be rosacea. My eys are still very dry but i can put ointment in at night and run a humidifier that helps. I just started ambian and that seems to be working great for sleep. I am oping to take one step at a time to getting my life back and ejoying the days.
Teresa

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 12/10/2008 3:35 PM (GMT -7)   
Hey Teresa,
 
I have Lupus, Fibro, Raynauds and Sjogrens.  I tested high positive for Sjogrens but I don't have a lot of symptoms like dry mouth or eyes.  I can go for 12 hours easily with my contacts in.  No need for eyedrops.  So I don't know what's up with that!
 
Just because your blood tests are negative for lupus now, doesn't mean you don't have it.  There are lots of people who have false negative blood work.  The fact that you have this rash on your cheeks is something to monitor.  If you can, take a picture of it.
 
Keep a close account of all your symptoms.  Even stuff that might not seem to matter.  I hope this helps!
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

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