I have: Fibromyalgia, CFS, Holt-Oram Syndrome, nasal allergies, depression
Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren.
Hi Denise...I live in central NY and this year we had snow before Halloween. It was so cold this year that for the first time in my life, I turned off the lights and waited for the kiddies to go home because I could not deal with opening and closing the door with the freezing air shooting in. It will probably snow until the middle of April. I always am worse this time of year, feeling trapped, cold and unmotivated. I don't sleep well during the night either and fall asleep in the middle of the afternoon. I am weaning off my Lexapro as we speak because while it once gave me energy, it now stupifies me. I would rather cry then feel like this. I also have restless leg so I take a valium (only 5 mg) at night so I don't kick myself to death. Plus, my legs tingle and crawl all day long now, so if I'm not going anywhere, I wear pj bottoms all day because any rough fabric makes then feel horrible. I guess I don't have any answers...just sympathy knowing how you feel.
You should see me run for 'real clothes' when someone shows up at our door unannounced...emabrrassed to have people see me in my pj's!
Post Edited (Sherrine) : 12/13/2008 7:57:34 AM (GMT-7)
Hello all & thank you for your replies.
Hope, I am so impressed that you have gone back to work. I haven't been able to work for about 4 years now. I think I could work part time during the Spring through Fall but come winter I don't think I could work at all. I really understand your using all your strenght to get to work, work the scheduled hours & make it home to drop from fatigue. Then the insomnia hits & it all starts all over. I know how sleeping away your days off cause such depression. We can't seem to catch up on sleep like others without this DD do. You hang in there. We will make it through this winter. Spring always comes & with it a sense of renewal & energy.
donna, I live in my pj's all winter with my fluffy bathrobes & slippers. I am cold & have no energy. I had to give away all my flannel pj's because they felt like sand paper. Anything binding will drive me up the wall, it's like I fixate on it & can't let it go until I change. OK, here's a really weird thing I read several times on different sites & you may already know about it but here goes. Bath soap. I have read that a bar of bath soap put in the end of the bed by your feet helps RLS. I don't have RLS so I don't know but everything I have read says it doesn't matter what brand & no one knows why it works. Quite unusual, hm?
Sherrine, I usually, March - Oct/Nov, take my meds every night at the same time so I have somekind of a semblance of routine, & I usually go to sleep within an hour. But when this sleep thing hits my meds don't work for the most part. I have tried everything I can think of, like just keeping my routine & taking the meds at the usual time even though I am wide awake but that doesn't work. I have tried taking them when I finally feel somewhat tired but then I sleep even lomger then 12 hours, I have tried not taking them at all & been up for 48 hours & unable to sleep, just a zombie. So now I just take them about 12 hours after I have gotten up. Like today I got up at 2:30pm so I will take it then. Sometimes that works, other times not. I don't know why they quit working during this time of year but I guess I need to speak with my Dr. again. I have dealt with this for 4 winters now. Come Oct I am dreaming of Spring.
What I hate the most is I miss out on so much because of this fatigue, sleep, depression & inability to figure it out. I hope Spring comes soon. LOL
Love & hugs, Denise