Fibro and Xyrem

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New Member

Date Joined Mar 2005
Total Posts : 12
   Posted 12/13/2008 7:04 PM (GMT -6)   
Hi, I'm 23 and have had Fibro (fms) four maybe 8 years, Dx for five. I was recently also Dx with Narcolepsy, and prescribed Xyrem (its super regulated and only approved for advertisement to treat Narcolepsy, though dr's can prescribe it for the other things it treats, specifically sleep disorders).

While researching that I found out that Xyrem seems to relieve the pain of Fms, by improving sleep (the delta-wave sleep disruption gets fixed)...the improved sleep relieves the pain.
Xyrem is very strong, very regulated (only one place gives it and you register in a program and get it by super secret mail).

I don't see it being used as the new 'fibromyalgia cure' medicine, its not something like cymbalta (which i am comfortable takign), its primarily to make you awake during the day, and you have to take it in liquid form, in two doses, at night...which would screw up your fibromyalgia sleep if you didn't have the delta-wave sleep disruption.

Anyways, I was wondering if anyone has heard about the uses of Xyrem for FMS, or had a doctor discuss it or suggest it, or maybe someone has been prescribed it?

Also, does anyone know other new medicines that were created for one specific thing, besides depression, that can be used to treat fibromyalgia?

solar powered
Veteran Member

Date Joined Nov 2007
Total Posts : 538
   Posted 12/13/2008 8:52 PM (GMT -6)   
Hi. I've been on xyrem for almost 2 years. My sleep study showed that I had reduced stage 3 delta sleep and no stage 4 sleep which the dr said is very common in fibro patients. I was given xyrem for my fibro under the theory that improved delta sleep(healing sleep) would improve my fatigue and pain. It has done just that. Things aren't perfect but much improved. Myself, I don't have to take the 2 doses to benefit. I usually only take 1 dose per night which is ok with the dr. It is kind of a pain jumping through the hoops to get this med but I personally think it is worth the effort. Lisa
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