are you on permanent disability? i ask because both of my parents are on permanent ssi disability, and they can work without losing benefits as long as what they make does not exceed what they gets every month for ssi. also, even if they exceeded the ssi amount, they would only take away a percentage of the ssi, not the whole thing. (unless they were making REALLY good money, obviously) my dad is a musician and makes a few hundred dollars a month from that, and my mom has a part time (about 20 hours a week) job, and they haven't had any problems keeping their ssi at all.
this definitely something you need to look into!
hope you are able to get this straightened out soon..