High Cortisol Question

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Grailhunter
Regular Member


Date Joined Nov 2008
Total Posts : 159
   Posted 12/17/2008 3:39 PM (GMT -7)   
I got my test back from the Doctor and it was showing high Cortisol. He wants me to go to a endocrinologist to run more test. No insurance, so I guess I am supposed to rob a bank or something for a specialist and those kinds of test.

I realize stress can cause high cortisol, but I was under the impression that most Fibromyalgia patients had low cortisol.

Every single thing I take, pain meds, Klonopin, Baclofen muscle relaxer, Valerian to help me sleep, should be slowing down the Hypothalmic Pituitary Axis.

Every time in the past that I have been treated that the real problem was depression and put on anti-depressents that speed up the HPA, I felt like I was going to explode.

Anybody else had Cortisol test, and could you tell me what it came down to, high or low or normal.

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 12/17/2008 9:38 PM (GMT -7)   
Hi Grailhunter,
 
I can help you with this question!  Fibomites have high cortisol levels, respectively.  The HPA axis (and I'm so glad you're familiar with it), is the root of our pain and high cortisol levels.  
 
The Hypothalmus and Pituitary gland send wacky signals to the Adrenal glands. The adrenals then send out way too much cortisol.  It's a vicious circle that can't be rectified.  That's why we seem to have anxiety issues, depression, fast heart rates, sweating, etc.  All that cortisol!
 
That's why you felt like you were going to explode when taking anti-Ds.  It's also why taking prednisone or anti inflammatories make us feel worse.  We already have enough natural anti inflammatories in our blood system - this being the cortisol.  When you add even more cortisol - the synthetic kind, the result is an overload.  Pain and stimulation of the peripheral nervous system is what we end up feeling.
 
Researchers don't know why the HPA axis messes up. But it has become very clear that this is where our problems are stemming from.  Now they just have to figure out the rest of the puzzle!
 
I have to take prednisone for my lupus or I'll die (to put it plainly!). It's a catch 22 because the more pred I'm on the worse it makes my Fibro.  So it's a very delicate balancing act.
 
So that's my schpeel! I'm interested to hear what you think of this. I learned all this HPA axis stuff in a 2008 edition of "Fibromyalgia and Chronic Myofascial Pain Syndrome - A Survival Guide".  Written by doctors.  All very legit.  Super interesting actually. 
 
 
 
 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Grailhunter
Regular Member


Date Joined Nov 2008
Total Posts : 159
   Posted 12/18/2008 11:47 AM (GMT -7)   
Sounds like a big fat catch 22 and vicious circle. High Cortisol damages the Hypothalmus. Hypothalmus controls Pituitary. Pituitary controls adrenals. Adrenals kick out more cortisol, not just doing more damage to the Hypothalmus, but fatigueing the adrenals, which would make them fluctuate wildly on their own.

Did the book you read have any best approuch ideas to stabilizing, or at least partialy repairing as much of that cycle as possible?

On my own personal experience for this, I can say that I currently have more brain fog and dizziness type feelings now then I have ever had and I have not been on any anti-depressents for several years. I preaty much lost my ability to focus at all for months about a year and a half ago when I was sitting house bound for almost 2 years.

The best focus and sense of balance and lack of anxiety I have had was after being put on 100 milligrams of Elavil and 20 milligrams of Paxil for a year straight. But it was not while I was on the drugs that I felt mentaly good. It was after coming off them, from being on them a extended period of time. While I was on them for that year, I would sleep 12 hours a night, sit on the porch with my head swimming the first 20 minutes in the morning, be very fatigued out and unfocused most of the day, and yet stressed at the same time, come into focus in the evenings, take my pills and wash and rinse the next day. After about a year, I came off the Elavil first, then the Paxil, then finaly the Klonopin and my focus and memory and balance were all good for months. My days would cycle back and forth between feeling normal energy and total fatigue.

So, it looks to me like the Elavil and Paxil worked to whatever extent to repair the Hypothalmus, but the side effects of the year of repair work were so bad it was hard to tell if it was good or bad. The only reason I went on that level of drugs was I was on the verge of a second major depression breakdown. But after I came off of them, and the side effects were gone, mentaly I felt near normal for quite awhile, and my pain level was down both while on the drugs, and for quite sometime after coming off.

The big downside of the whole deal was that the repair work that had been done lasted a few months, and then within about 2 months of slow slide, I was in worse shape then when I started.

So, as far as the brain is concerned, it looks repairable to me, but the current types of drugs they use, in dosages that would actualy get the job done make us feel a whole lot worse fatigue wise, and are cranking up the fatigued adrenals even more, a long time before the Hypothalmus is getting to whatever degree, functioning better.

Maybe the exception to that is Cymbalta. I haven't tried it. I have a prescription for it sitting at the Pharmacy. Its supposed to do what Elavil did without the nasty side effects. I keep thinking about going and getting that prescription, but OMG is it expensive without insurance.

Basicaly, I am in that position that allot of people get into where the last thing I want at this point is to feel even worse, and if I go and pay out almost 250 dollars for a anti-depressent that makes me feel worse, or messes up my sleep even more, I am going to be a very unhappy camper.

Grailhunter
Regular Member


Date Joined Nov 2008
Total Posts : 159
   Posted 12/18/2008 1:59 PM (GMT -7)   
Ginny

I was wondering if you had ever looked at enzyme therapy for Lupus. I have never researched it for Lupus, but I know they have used it on Cystic Fibrosis with allot of success on slowing down lung fibrosis on this disease. And that was years and years ago they were using enzyme therapy and I know since then they have come out with much more powerful enzymes for eating away at scar tissue.

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 12/18/2008 4:38 PM (GMT -7)   
Hey there!
 
Well, you and I are on the same path here. That book I read mentioned that there wasn't much that could be done for the HPA axis.  They did mention adding GABA (neurontin)to the pill regime. So I tried it and it's working.  The drug suppresses the peripheral nervous system which is what gives us all our pain.  I've noticed a marked improvement with my pain since ramping up the dose to 600mg every night.  That is still a very low dose.  You can go as high as 2700mg/daily.  Neurontin is also used as an anti-seizure med, which might be why it's so effective.  It might be working on the part the of the brain that the glands are in. 
 
I'm also on Zoloft.  The "poodle" SSRI.  I was on the "pitbull" Paxil many years ago and couldn't tolerate it.  Made my depression even worse.  Zoloft seems to be a good alternative for me.  So far! 
 
It's the vicious cycle you talk about with the HPA axis. If we could figure out a way to fix that miscommunication, we might have a cure for Fibro. We can only pray about it!
 
Cheers,
Ginny
 
Oh, I haven't tried enzyme therapy for my Lupus.  Never heard about it actually.  I've been very fortunate that the meds I'm on, have made the disease very quiet.  My biggest problem these days is my Fibro.  If it's not one it's the other! 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Grailhunter
Regular Member


Date Joined Nov 2008
Total Posts : 159
   Posted 12/18/2008 7:18 PM (GMT -7)   
Neurontin huh. I never thought of taking it at night. I have a full bottle in my closet. I took it once during the day and I was so dizzy I could barely stand up. Probably because my Doctor has me on Percocet, Klonopin, Baclofen already. One opiod and two that work on Gaba. When I stuck Neurontin on top of that it was a wild and scarey ride.

But at night, who cares about dizziness as long as its cleared by morning. I told my Doctor yesterday we have to figure something else out. I have become tolerant to the Percocet and refuse to raise the dosage. I am cutting it instead. I have Baclofen tolerance and trying to cut that down. I have been on Klonopin for 6 years and it takes 2 mgs just to chill out a little.

The only time I have been on no drugs in six years is the 3 months following the year I was on the 100 mgs of Elavil and 20 milligrams of Paxil and 3 mgs of Klonopin and getting knocked out cold. I cold turkeyed the Elavil, felt a little strange for a couple of days, then allot better, then cold turkeyed the paxil 2 weeks latter, felt a little strange for a couple of days, then cold turkeyed 3 mgs of Klonopin and had absolutely no withdrawel symptoms at all. I slept really well without the drugs, 90 percent of the pain stayed gone, no feelings stress, anxiety, brain fog. The only symptoms I still had was like I had reverted back to how this was many years ago when it was predominantly CFS. Part of the day I could run up steps and part of the day I could barely lift my legs to drag myself up steps. Which I preaty much attributed to direct adrenal fatigue. The brain was partialy repaired, but the adrenals were still weak.

I take so much now for GABA its unreal. But my body is so used to what I take its a overload. A Percocet for pain twice a day(not GABA) and a Baclofen. (GABA) twice a day for spasms and that just usualy dulls it along with my brain. The sleeping routine is almost a joke. Percocet, Baclofen(GABA), Klonopin, (GABA) sensitizer, Valerian (GABA increaser) to kill the pain and actualy be able to focus well enough to watch some TV. Then the same dose 4 hours latter to go to sleep. Then waking up every 1 to 2 hours all night long to take more Valerian to go back to sleep.

I know I could go back on a combination of Amitryptelene, Paxil, Klonopin and I would be out for the night, like it was before. I just don't think I could function at my job doing it. I need something like some place I could do this again, and if I can't function, I can't function. I can sit on the porch and let my head spin if that is what it needs to do, or go lay on the grass, or whatever my brain and body can manage. Then after I have been on it long enough, cut the dosages down and try to retain the gains on it and function better, instead of thinking I am all better and dumping all the meds and watch it fall apart again a few months latter.

Well, hopefully at some point they will figure out a way to fix the HPA. They are making headway on symptom control. My own experience at living like a limp ragged zombie for a year and then going off the meds and finding the brain was repaired well enough it could function well for even 3 months off meds and most of the pain stayed gone along with it indicates to me that it is mainly brain centered and it is theoreticaly fixable.

king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 1/2/2009 6:56 PM (GMT -7)   
Grail what have your symtpoms been?
----------------------------------------------------------------------
33 yr old female/GERD dx 3/07/Migraines with Aura/IBS
SYMPTOMS  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. 
New as of Aug-muscle twitching throughout my bod NONSTOP DAILY EVERYWHERE. 
 TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH T3 -Too many to list -all CLEAR
 Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
LYME-TESTED POS BAND 31 AND IND ON 34 41 IGM THROUGH IG IN PALO ALTO, GIVEN CLINCAL DX ON 11/17-ON DOXY, ZITHRO, FLAGYL
 
 
 
 
 
 


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 1/2/2009 7:36 PM (GMT -7)   
Grailhunter, it's been really good for me.  I can't take it during the day either. I'd be a dizzy, mess!  Even on only 600mg at night, it kicks in 3 hours after I take it.  I have to be home.  The dizziness takes over!  Then I stay dizzy for 12 hours.  But like you said, who cares if you're dizzy while sleeping!  So I take it just after supper and by the morning I'm okay.  600mg has been a good dose to at least take the edge off my pain.  When I don't take it, I sure notice the difference.
 
I'd like to get off the Amitriptyline too.  I've tried it in the past and had some nasty withdrawls, but maybe I should try it again.  I also have a lot of sedating medication to take in the evenings. I'm on a Benzo for seizures which is a tranquilizer. SNORE.ZZZZZ.  I'm out like a light.
 
So have a wonderful GABA overload! LOL.  At least Neurontin is inexpensive stuff.  That's a bonus!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 
Moderator for the Lupus and Fibromyalgia forums


Grailhunter
Regular Member


Date Joined Nov 2008
Total Posts : 159
   Posted 1/2/2009 9:55 PM (GMT -7)   
GABA overload sounds about right. I took 3 days off in a row and have been laying around. These medications really load up on me if I am not moving around everyday and detoxing some back out. No pain though WOOHOO! I think these 3 days off in a row kicking back while I take the same amount of medications I take on days I am moving around and drinking lots of water and detoxing stuff out has showed me where most of this is coming from. DRUGS!

Choice A: Live in a load of chronic pain and stress and anxiety. Choice B: Go around with a head full of cotton trying to figure out where I misplaced my brain.

Well, I gotta stagger outside for a bit and come fall back into the bed. Tomorrow starts my days on at work. Its going to take the whole first day just to detox off the overload from these 3 days.

Edit: Oh, and get to edit your post allot too.
Fibromyalgia, Chronic Fatigue, IBS, Diverticulitis, Costocondritis, Thorasic Degeneration, Mild Hypertrophic Cardiomyopathy, Mild Hilar Lymphodenopathy, Depression, Anxiety. Dyspnea. Disequilibrium.

Klonopin, Percocet, Baclofen, Ibuprofen, Valerian, Greens Plus, Magnesium, Vitamin C, COQ 10, B Complex, Niacinamide, Glucosomine, Condrotin, MSM, L-Carnitine, D-Ribose.


kitkat67
Regular Member


Date Joined Jan 2009
Total Posts : 41
   Posted 1/3/2009 12:08 PM (GMT -7)   
Quote-"Maybe the exception to that is Cymbalta. I haven't tried it. I have a prescription for it sitting at the Pharmacy. Its supposed to do what Elavil did without the nasty side effects. I keep thinking about going and getting that prescription, but OMG is it expensive without insurance.

Basicaly, I am in that position that allot of people get into where the last thing I want at this point is to feel even worse, and if I go and pay out almost 250 dollars for a anti-depressent that makes me feel worse, or messes up my sleep even more, I am going to be a very unhappy camper."
I just wanted to reply to this about Cymbalta and the cost.
The makers of Cymbalta are part of the PPA. They help people that cant otherwise afford prescriptions. You can go to thier website at www. cymbalta.com. It should be on the first page of the website.
Hope this helps!
Kathy

Grailhunter
Regular Member


Date Joined Nov 2008
Total Posts : 159
   Posted 1/3/2009 4:45 PM (GMT -7)   
Thank you Kitkat67 and Ginny. I will reconsider the Cymbalta. I don't know how that is going to effect sleep though. 4 milligrams of Klonopin barely puts me out anymore.

You know, when I made that post last night I was so out of it all day it was unreal. I was absolutely sure it was drug buildup in the blood. 20 minutes after that post, 75 percent of it totaly cleared up, and I was in pain, and I was clearer this morning then usual. I did absolutely nothing different. Makes absolutely no sense whatsoever. Its almost like a light switch turning off and on. The symptoms are almost like feeling anywhere from a little drunk sometimes, to totaly plastered, and then for no apparent reason, its almost gone, and then for no apparent reason, it comes back.

Way back when, before I had to turn to usng medications, I would be this way every morning for about an hour. Now it hits me to some degree all day, and some days I feel like my brain is functioning on a pint of jack daniels in me all day. The weird part of it is that the pain cycles are tied to it. When I am totaly out of it, I feel no pain. When I am even partialy clear, I am in pain, usualy the chest pain from the ribs and sternum. And although I swore last night it was drugs, what made no sense was that just about the time it magicaly cleared up on me, I took my night time medications and it, the drunk brain and balance thing didn't come back, but the pain meds didn't work either. So I took the Klonopin, gave up for the night and let it put me to sleep.

I would say the symptoms at their worst are probably exactly what it would feel like if you took a significant night time dose of a benzodiazepene, like Klonopin, a 5 milligram Opiate, like tramadol, vicodin, or percocet, a muscle relaxer and neurontin all at the same time. The problem is this never completely wears off. Not even when I was taking nothing at all. Just walking around will make me feel this way.

This actualy started on me, except for the morning thing, after they originaly put me on Amitriptelene, Paxil and Klonopin. After I had been on them for a year I went to work at a exhausting job and cold turkeyed the Amitriptelene, then the Paxil, then the Klonopin over a period of about 3 weeks and the symptoms of this disapeared.

One time they gave me Talwin and just one dose, and I took nothing else, and it knocked me out for 14 hours straight and when I woke up I had most of the symptoms listed on the overdose list, was barely able to focus, labored breathing, slurred speech, staggering, and had to have my daughter drive me to the emergency room.

Kinda makes me wonder if I don't possibly have obstructive, or central Apnea or both. If its central Apnea, that might explain the difference in how I wake up some mornings semi clear, and other mornings in a staggering fog on the same doses of medications at the same times. I take a pile of stuff that should be knocking me out for the night, and still I wake up 3 to 5 times a night for no reason, I am wiped out and go right back to sleep. I have even caught myself snoring in my throat, while I am laying there totaly awake. And the fact I used to feel like this in the mornings for an hour or so when I was not on any drugs. I have a APAP that cost me a grand and I can't sleep with the thing. But I did not get a sleep study with it, I just went to the sleep Doctor and he looked in my throat and said its preaty tight and wrote a prescription for a auto adjusting machine. I tried useing it, but I can't get into deep sleep on it.

This whole thing just makes me want to go GRRRRRRRRRRRRRRRRRRR!!!!!
Fibromyalgia, Chronic Fatigue, IBS, Diverticulitis, Costocondritis, Thorasic Degeneration, Mild Hypertrophic Cardiomyopathy, Mild Hilar Lymphodenopathy, Depression, Anxiety. Dyspnea. Disequilibrium.

Klonopin, Percocet, Baclofen, Ibuprofen, Valerian, Greens Plus, Magnesium, Vitamin C, COQ 10, B Complex, Niacinamide, Glucosomine, Condrotin, MSM, L-Carnitine, D-Ribose.

Post Edited (Grailhunter) : 1/3/2009 5:05:24 PM (GMT-7)


pyttap
New Member


Date Joined Feb 2009
Total Posts : 1
   Posted 2/19/2009 3:01 PM (GMT -7)   
I have a myriad of symptoms. Fibromyalgia and Sjogren's, depression, normal thyroid levels but thyroid hormone T3 improves well being. My question is.... when your body is under that much stress and everything seems to be out of whack......is it too much cortisol or too little? The past 15 months, not long after my third child was born..........constant fatigue & achiness, infections, sinus & allergies problems, shortness of breath, absolutely no energy. DR gave me prednisone packet and antibiotics before Christmas. They worked for almost a month. Then allergies, flu, sinus infection again. Any ideas?

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 2/19/2009 3:12 PM (GMT -7)   
Hi, Pyttap, and welcome!  It was after a Prednisone dosepack that I started with my pain.  I really can't answer your question about cortisol.  This would be a great question for your doctor.
 
Be sure to check out the Fibro 101 thread...the second thread on the forum.  There are links to great information about fibromyalgia.  Perhaps some of your questions can be answered there.  There is a list of symptoms, a link to good stretching exercises that really do help, malic acid/magnesium supplements for pain and fatigue that do help some members, and some other goodies.  So be sure to check it out.
 
I'm so glad you found us and joined in.  Read back posts, the Fibro 101 thread, and ask questions.  We will try to answer them to the best of our ability.  You have come to a good place.  We have great members with good ideas to help you live a full and enjoyable life with fibromyalgia.  The bonus is that we really do care about one another.  So, welcome, and I hope to hear more from you soon.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


julieleaps
Regular Member


Date Joined Oct 2008
Total Posts : 257
   Posted 2/19/2009 4:01 PM (GMT -7)   
Ginny and Grail: Interesting discussion...I take 900 mg of Gabapentin each evening, but have not figured out the best time to take it. I also take 50 mg of Tramadol up to 6 times a day. I should be sleepy, don't you think? However, while I do get drowsy, I cannot get to sleep until 2 or 3 a.m. regularly. I wake a few hours later, but not for long, and go right back to sleep until 10 or 11. I'm cloudy all afternoon, and drag myself around until 8 p.m. or so. Then, I'm wide awake! I can think more clearly than I can all day.

Needless to say, I feel like my life is wasting away. Oh, and my pain level seems to fluctuate of it's own accord, with no rhyme or reason relative to the medications I'm taking. I cannot focus, I have no energy, and I wish they would invent quality daytime television.

I also am taking vitamin D: 50,000 iu. weekly, and 1,000 daily for a severe defiency, and Diovan, which I've been taking for about 10 years, for high blood pressure.

I don't think I've had any thyroid testing done. I'm 46 and I feel like I'm 96. My CRP and ESR are both elevated, but no one has conclusively told me why. Other than that, I've tested negative (so far) for Lymes and RA.

I'd welcome any insights you might have.
Still learning how to manage my Fibromylagia, and all the lovely gifts it brings.   
I had severe spinal stenosis, had fusion done on C5-7, and my life has changed. 
 
 


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 2/19/2009 8:51 PM (GMT -7)   
Hi Julie,
 
I take 600 mg of Gabapentin every night.  I find that if I take it around 7pm, I'm really sleepy 3 hours later.  I can't take that stuff during the day. I'd be a dizzy, dopey mess!  It sure does work though.  I missed my dose Tuesday night and I paid for it big time on Wednesday. I find that when my Fibro is flaring, I don't sleep well. Even with the Gabapentin.  Fibro blows.
 
Interesting about your CRP and ESR. Neither are usually found to be elevated in Fibromyalgia. Both are indicators of inflammation.  Fibro isn't an inflammatory disorder.  However, both are always elevated in people with Lupus or RA.  Have your doctors ever mentioned Lupus to you?  What other symptoms do you have?
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, Chinook migraines. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 
Co-Moderator for the Lupus and Fibromyalgia forums


julieleaps
Regular Member


Date Joined Oct 2008
Total Posts : 257
   Posted 2/19/2009 9:43 PM (GMT -7)   
Ginny: Thanks for your reply! My rheumotologist had me tested for RA, and it came back negative. Now, I know you can test negative, and still have RA, but I don't think I do. I have some swelling in my hands, ankles, knees (of all places). My cervical lymph nodes swell and I've had some swelling and tenderness in the lymph node in my left armpit. The nodal swelling seems to come and go. Most of my other symtoms just seem to be fibro-related.

He (my rheumy) also tells me that he does have some fibro patients with swelling, even though it's atypical. Of course, I seem to do everything atypical, because I also have been diagnosed with atypical migraines: my symptoms include some facial numbness, primarily around my chin, and some sharp pain behind the right eye.

More recently, I have been having daily headaches, which may be a side effect to the Tramadol.  Regular hot flashes, too.

Another thing that bothers me is my resting pulse is 90 - 100. My blood pressure, even medicated, is 140/85, again that's at rest. I think I already said that I've gained weight this fall: I'm 5' 7" and now weigh...gulp...215#. (no wonder I'm depressed)

Any light you can shed will be appreciated!


Still learning how to manage my Fibromylagia, and all the lovely gifts it brings.   
I had severe spinal stenosis, had fusion done on C5-7, and my life has changed. 
 
 

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