Could this be Fibro?

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redspot321
Regular Member


Date Joined Jan 2006
Total Posts : 303
   Posted 12/17/2008 4:43 PM (GMT -7)   
Please help me. Im a 30yo male with a significant history of Crohns disease. Is this Arthritis or something more serious?
 
Crohns -  diagnosed 2005. Small bowel resection in 2008. Been on and off prednisone since 2005. Most recent use of PRED was October 2008. Approx 2 months ago. Ive taken Humira for 2 months with last dose in October as well. I was taken off Humira due to rash on face, and numbness on face.
 
The only drugs Ive been taking since October is Low Dose Naltrexone, Zoloft, Klonopin. Thats it.
My Crohns is great, but now..........
 
1. Im being tortured!! I am having the WORST pain in my life in my joints. I cant take Pain Killers due to LDN,  I cant take NASIDS due to Crohns.
 
2. This joint pain has effected every joint in my body but only effects 1-2 joints at a time... 
 
3. The pain is ALWAYS worse at the end of the day and through out the night. It is Extremely painful during the night and I cannot sleep at all.
 
4. By the morning the pain is almost gone, then by afternoon it comes back IN A DIFFERENT SET OF JOINTS. This is really freaking me out.
 
5. There does not appear to be redness or swelling but it feels like my knee will explode with pressure.
 
6. Ive had this in my Jaw, hips, knees, ankles, wrists, toes, and fingers.
This is ruining my life. I just lay in pain all day without being able to interact with my family. Im Dead tired!

29 YO Male
 
-CD diagnosed in 2005 illieum
-63cm bowel resection in Feb 08
-Steroid dependant following surgery
Humira Start date 8/1/08


SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 12/17/2008 6:36 PM (GMT -7)   
hi redspot,

first of all, i am very, very sorry to hear that you're feeling so awful :( i do not know much about crohn's or about any of the drugs you're on, so i'm not sure if your joint pain might be related to any of that or not? it sounds like it might be fibro possibly (i have terrible joint pain without any actual swelling or joint damage) but the one thing that sounds very different is that you feel worse at the end of the day. my joints (and everything else) are usually the most painful, achy, and stiff first thing in the morning, which i think is fairly common with fibro.

i also wonder if maybe you have rheumatoid arthritis? or perhaps lupus (or even lyme disease). problem with fibro is that so many other disease mimic that the only way you can really know if fibro's what you've got is to rule out everything else under the sun!

i would also suggest that you check out the fibro 101 thread. there's a fabulous comprehensive list of fibro symptoms on there, and if you look over it and find you've got more symptoms, i would definitely recommend talking to your dr.

hope this helps a little and i also really hope you start feeling better soon.

take care.
~danielle

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40573
   Posted 12/17/2008 6:53 PM (GMT -7)   
Hi Redspot,

Welcome to the fibromyalgia forum. There are a lot of kind and compassionate members on here that should have a lot of suggestions for you.

Like Danielle said, check out fibro101. It is the second thread. You will read all of the different symptoms there and will have more of an idea as to whether you think that you have fibromyalgia or not. I, like Danielle, have most of my pain early in the day. I always seem to feel better when the sun goes down. I think that is psychological with me though.

There are a few of us that take the malic acid, maybe you would be able to try that. It helps a lot. At least for some of us.

I truly hope that you feel better soon. Keep posting.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Hello~Kitty
Veteran Member


Date Joined Jun 2005
Total Posts : 610
   Posted 12/17/2008 10:11 PM (GMT -7)   
Hey redspot. Besides the pain your having now, how did the LDN work for you ?? It's so interesting how a med like that can work for pain. I'm being weaned of narcotics right now because they do nothing but make me have worse pain so I need something esle to try when I'm done with the suboxone treatment. And NSAIDs upset my stomach alot too and tylenol makes me vomit like crazy. Thanks.

-hellokitty
I have Migraines, Pancreatic Divisum, Severe lower back pain, Fibromyalgia, Asthma from Chronic Bronchitis
Meds: Suboxone 8mg 3xday, Cymbalta 60mg @ night,
Zanaflex 2-4 mg @ night as needed, Treximet as needed,
Ventolin Albuterol Inhaler as needed which seems to be everyday.
Been on Diability since I was 22 for Migraines and chronic Pancreatitas(started the processes when I was 19, I'm 25 now) but am working to get off of it ASAP,I want to be a nurse and work at a Impatient rehab with people with addictions of all kinds


jewelrylady
Veteran Member


Date Joined Jun 2008
Total Posts : 717
   Posted 12/18/2008 1:13 AM (GMT -7)   
redspot, I am not going to be much help but wanted to say hi & I hope you find the answers you are looking for.  The people here are great & knowledgable.   It sounds like it could be Fibro, I have all the joint pain & it switches from place to place.  My neck & shoulder pain is a constant.  The pain at night & how it worsens at night sounds more like my daughter, Misty.  She has RA & Lupus so you definitely need to check these out & have them eliminated.  Hugs, Denise

 I have:  Fibromyalgia, CFS, Holt-Oram Syndrome, nasal allergies, depression

Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren.


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 12/18/2008 7:26 AM (GMT -7)   
Redspot you need to have all the other things that is listed in the "what else could it be" in the fibro 101 thread before you can get a dx of fibro.
 
You joints can hurt with fibro but it is mostly in the muscles, ligaments and tendons leading to the joints. I do get worse as the day wears on and the more I do.
 
Good luck finding the cause.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin

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