So frustrated!!!!!

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garnetstar
Regular Member


Date Joined Oct 2008
Total Posts : 27
   Posted 12/17/2008 10:13 PM (GMT -7)   
Okay, so I have been diagnosed with FM for about 2 months, and recently (like the past week or so) I have been feeling like I'm getting NO sleep. My doctor put me on Elavil when I was first diagnosed, and I had gotten the dosage up to about 20 mg, but had to lower it when it made me crazy! I think when they lowered my dosage it threw me into a bad sleep pattern, and ever since then I've been sleeping 7-9 hours at least, but feeling like I've barely slept 1 hour! I was looking up information about FM and sleep on the internet, and they said that the main thing for people to do is make sure that they wake up and go to sleep at the same time time every day. Well, I work retail, and right now I could work a 7AM to 3:30PM shift, or a 2PM-11PM shift, every week my schedule is different. Like on Sunday I have to close at 11PM, and on Monday I have to work at 7AM! How the heck can I go to sleep or wake up at the same time everyday!? It's basically asking too much of my managers to work the same shift everyday, and frankly, I'm lucky to even have a job right now. I just had to go home early (again) because I felt so nauseous, dizzy, tired, and in pain that I felt like I was going to fall down. I'm tired of telling people at work how I'm feeling, they either tell me to calm down, think positive, or look at me like I'm a hypochondriac. I'm going to go to the doctor on Friday; does anyone have any recommendations for medicine or anything? I'm seriously at my breaking point. I can barely function, and I can't keep on going on like this. Thanks for listening... :-)

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40572
   Posted 12/17/2008 10:24 PM (GMT -7)   
I take ambien to sleep with. And adderall to stay awake during the day. You might want to ask your doctor about these two medications. They work well for me. I don't have trouble sleeping actually. I have trouble getting a restful sleep.

I hope that this helps some.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


donnaeil
Veteran Member


Date Joined Jun 2006
Total Posts : 1156
   Posted 12/18/2008 12:06 AM (GMT -7)   
You should have a sleep study also. It might point to another diagnosis like sleep apnea.

Donnaeil

Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 12/18/2008 8:02 AM (GMT -7)   
That schedule would have my body messed up too. I do stay on a sleep schedule. I guess it wouldn't help to explain this to your boss. I don't know how healthy people switch shifts all the time.
 
Ambien or something might help.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 12/18/2008 8:51 AM (GMT -7)   

I don't know how people who keep changing shifts do it either. I worked in a hospital for four years and it's mandated that everyone work two weeks of days, two weeks of evenings, and two weeks of nights. Those were sheer unaldulterated h---. Some folk who'd been there longer than I had made some deals so they only worked nights. At that, at least, they had a regular schedule rather than the flipping around. As far as evenings and days went, of course the senior management staff got to pick the juicy day shifts, and for me, I didn't mind evenings at all, as I had a good sitter for my kids that actually took them places after school, fishing, swimming, tobogganing, etc. So that worked well, but then every month or six weeks those stretches of nights came around. They were awful. I became physically ill. I never could get the hang of sleeping during the day. Do you think there might be someone who would want to trade off, either way? I admire you for keeping your job. I have several other chronic health probs besides the Fibro, and eventually could not keep the happy face, make believe, everything is grade thing going any longer. I went on disability, at least for now. Good luck and take care of you. 

You may have personal concerns about this but as the amyltriptilene is so strong and definitely did not work with shiftwork, I take 5 mgs. Valium at bedtime. My sleep seems to be improving.


Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.


garnetstar
Regular Member


Date Joined Oct 2008
Total Posts : 27
   Posted 12/18/2008 10:41 AM (GMT -7)   
Thanks everyone for your advice! I will definitely ask my doc about Ambien, and a sleep study. My brother and uncle have sleep apnea, and maybe I do too. Thanks for all the ideas!

finallypainfree
New Member


Date Joined Dec 2008
Total Posts : 10
   Posted 12/19/2008 10:17 AM (GMT -7)   
After having fibro for over 25 yrs, sleep is the only symptom I can not find any relief for. I'm lucky if I get 5 hrs. The Ambien worked for the 1st week then back to the same ole..Ugh!
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