Fibro, Chronic Fatigue, & Disability

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springfling
Veteran Member


Date Joined Mar 2008
Total Posts : 519
   Posted 12/18/2008 9:22 AM (GMT -7)   
Hi everyone!
 
I have been having trouble with fatigue for approx. 1 1/2 years now, but lately it has been worse. I can hardly keep my eyes open driving to and from work. My husband finds me sleeping at the computer all the time. I go thru this all day no matter how much sleep I've had.
 
I have also been experiencing some new symptoms. Nightsweats. (I am going thru Menopause and get hot flashes frequently, but these are different, I wake up every morning soaked) Also, if I talk for long, I get hoarse. I've always had pain in different areas, but now my back has been killing me.
 
I am only working 1 day a week now & answering calls at home 2 other days. (slow time at work) I can hardly do this. It is getting harder and harder to get out of bed in the morning. Usually takes an hour after meds before I can even walk because my feet and knees have gotten so bad.
 
My mom thinks I should file for disability, but dh thinks I would not qualify. I don't know anymore, but I am starting to think I might try anyway. Nothing is getting better, just worse and if things keep going like they are, I won't be working.
 
Sorry to make this so long, I actually just wanted your opinions on Chronic fatigue. I've never been diagnosed, but some of my symptoms seem to fit. How do they diagnose it and does my symptoms sound like it?
 
Hugs!!   Margie

Never regret something that made you smile!

Fibromyalgia*Osteoarthritis*Sleep Apnea*Restless Leg Syndrome * Depression*Fatigue*Allergy/Sinus*Menopause


jewelrylady
Veteran Member


Date Joined Jun 2008
Total Posts : 717
   Posted 12/18/2008 3:56 PM (GMT -7)   
Hi Margie, I was just dx'd a few months ago with CFS.  You do sound alot like me.  My voice changes, I get hoarse, I can't sing, my voice gets weak.  I have alot of trouble pulling myself out of bed.  Winter is the worst.  It take a good hour or two for me to feel good enough to do anything.  I was given a few suggestions awhile back by members here, some meds I am going to try as soon as I can get into the Dr.    Adderall & Ambien.  Others can tell you more because they have more experience with it.  I have always said it is like swinging on a pendulam.  Swing one way it's insomnia, the other it is total fatigue.  I spend my time trying to balance in the middle somewhere, to catch the ring in the middle to slow me down.  I reach as I swing by but can't seem to catch it or to make it stay in there if I can get my fingers on it.  Take care of yourself, Denise 

 I have:  Fibromyalgia, CFS, Holt-Oram Syndrome, nasal allergies, depression

Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren.


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 12/19/2008 6:48 AM (GMT -7)   
Hi Margie-
 
It takes me 2 hours "every" morning to get going. My body does not work any sooner than that. I fatigue easily and rest my body at least twice a day. If I even go into the grocery store for a few things, sometimes that is all I can manage for the day. Lately with getting ready for the holidays I have had to push myself and I am paying for it. I am so tired!
 
I have applied for Soc. Sec. also and have been denied twice and now getting a lawyer. My body will never be the same and I know for a fact that I will never be able to work fulltime again, and part time I think would even do me in.
 
I take Zoloft for depression and that gives me a little energy and I have to have my coffee in the morning and a half cup to a cup at suppertime or I would not make it through the evening.
 
I can't offer any advice re: CFS, just what I go through with the fibro. sad
 
GamJill
 
 
 
 
 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
 
Zoloft, Tylenol 4000 mg., Darvocet  


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 12/19/2008 7:40 AM (GMT -7)   
Margie I get a sore throat when I talk for any length of time. I had my doc look at my throat a while back cause I was getting a sore throat so often but he didn't see anything. I think mine is cause my throat is so dry all the time. He did tell me that if I had any hoarseness to have it checked out by a ENT. I was on the phone for quite awhile last night before I went to bed and got a sore throat from talking. I haven't tried any of the sprays for dry mouth to see if that helps. This weekend would be a good time to try it.
 
One of my DILs wants me to apply for disability. She works for a law firm and has handled many cases for people with fibro.
 
I feel totally wore out from getting ready for Christmas and it shouldn't be like this. Every event shouldn't feel like a marathon.
 
Enjoying this pretty weather Margie???
 
luv and hugs
Marlee
 
 
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


springfling
Veteran Member


Date Joined Mar 2008
Total Posts : 519
   Posted 12/19/2008 8:44 AM (GMT -7)   
Thanks everyone for your input! My throat is dry all the time too. Maybe it is from my CPAP, my throat is very dry when I take it off in the morning. Guess I will mention it to my Rheumy next time I'm in and see what he thinks.
 
Yes, Marlee, I am enjoying this beautiful weather. The ice on our windows and cars this morning is so pretty. When we lost power last night it was really beautiful because I couldn't see a thing, but the noise of the sleet and rain hitting the house sounded wonderful!
 
Our new puppy is enjoying it more though. Every time she goes out the potty door, she makes sure to bring big chunks of ice and snow to show mommy. This is the only day I have to go into work, so I bet I enjoy it more when I go out later. Thanks for asking!!!!
 
I hope you are enjoying this glorious weather as much as I am!!

Never regret something that made you smile!

Fibromyalgia*Osteoarthritis*Sleep Apnea*Restless Leg Syndrome * Depression*Fatigue*Allergy/Sinus*Menopause

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