Hi, i'm new here

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Akram
Veteran Member


Date Joined Feb 2005
Total Posts : 616
   Posted 12/21/2008 9:40 AM (GMT -7)   
Hello,

I came over from the depression forum, because I thought I might have fibromyalgia, but after reading in www.efibro.com it seems doctors look for history of chronic, widespread pain. I have pain but I never considered it a big issue. like slight back-pain, the usual migrans..

So now I'm starting to think I might not have Fibromyalgia.. even thought I seem to have trouble keeping myself up for more than 6-7 hours, I keep wanting to sleep and if I let myself I can sleep upto 18 hours a day..

If I don't have fibromyalgia what else should I think about? Yes I can pretend I'm normal thats what my family keeps saying but I really feel abnormal ><
                                                     To be or not to Be


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17095
   Posted 12/21/2008 10:36 AM (GMT -7)   
Hi, Akram, and welcome!  Check out the Fibro 101 thread...the second thread on the forum.  You will find links to good info about fibromyalgia...including a list of symptoms.  We usually don't have all of the symptoms but many on this forum have over half of them.  This link might give you some idea as to whether or not fibromyalgia is causing the pain.  There is also a link called "What Else Could It Be?"  You see, fibromyalgia mimics other illnesses so we usually have to go through a lot of blood work and tests to rule out the other illnesses.  If all tests come back normal and we have discomfort when the doctor does a tenderpoint test, then the diagnosis of fibromyalgia is given.
 
Read that thread and back posts.  You will get an idea of what fibromyalgia is like.  Don't hesitate to ask questions, either.  Let us know what you think after reading the symptom list. 
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


springfling
Veteran Member


Date Joined Mar 2008
Total Posts : 519
   Posted 12/21/2008 10:49 AM (GMT -7)   

Welcome Akram!

Sherrine gave you great advice. That is how I ended up going to my doctor after years of different symptoms. I kept reading posts on the boards and read the Fibro 101 thread & then everything kind of came together.

I am seeing a Rheumatologist now & have finally gotten some relief for some of the pain. I also could sleep all day. I sometimes take a 6-7 hr. nap and turn around and go to bed at 8:00! I even fall asleep sitting at the computer sometimes.

There are so many symptoms that mimic other illnesses as Sherrine said, so it is good to see your doctor so you can get the testing done to rule out anything else.

I hope you get to feeling better and are able to at least find out what is going on. Keep us informed and hope you stick around!

Hugs!!   Margie


Never regret something that made you smile!

Fibromyalgia*Osteoarthritis*Sleep Apnea*Restless Leg Syndrome * Depression*Fatigue*Allergy/Sinus*Menopause


JCgurl
Regular Member


Date Joined Dec 2008
Total Posts : 176
   Posted 12/21/2008 1:14 PM (GMT -7)   
Hello, Akram!

You mentioned having back pain and migraines, but have you experienced pain in all 4 quadrants of your body? That is probably what the doctor will ask you if you are still considering Fibromyalgia. Just go to your doctor and see what he says... but don't put it off! If you truly feel like something is not right, you should see what's going on!! I went right away when I started to not feel well and get pains regularly, and I'm glad I did because now I know exactly what it is and I can work on getting myself better.

Take Care!
xoxo

Akram
Veteran Member


Date Joined Feb 2005
Total Posts : 616
   Posted 12/21/2008 1:55 PM (GMT -7)   
springfling and jcgurl, thanks for the info, I checked the Fibro 101 thread before I posted anything, I found a link to a site that discusses the symptoms and diagnosis, It seems I have at least half of the symtoms, but I'm not feeling I have the wide-spread pain which seems is crucial for the diagnosis, however I will still discuss this with my doctor and see what he thinks.. my problem is my abnormal sleep issues not the pain, I don't think I have enough pain issues to complain really.. thank god.
                                                     To be or not to Be


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40574
   Posted 12/21/2008 3:19 PM (GMT -7)   
Hi Akram,

I have a high pain tolerance. You might too. Plus you probably haven't experienced a flare. You might want to check out the chronic fatigue forum too. That might be what you have. Most of my pain is in my neck and shoulders. I have it daily, but I have gotten use to it. So it is as if I have no pain until I think about it.

I hope that this has helped you some.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


jewelrylady
Veteran Member


Date Joined Jun 2008
Total Posts : 717
   Posted 12/22/2008 2:58 PM (GMT -7)   
Akram, I finally sought help from a Doctor when my sleep issues were just too overwhelming for me to even be able to work anymore.  The pain was not my main issue.  I was dx'd with Fibro in March of 2004 but also with Chronic Fatigue Syndrome in 2008.  So yes, go see your Doctor & just keep going back until all your symptoms are addressed.  Don't get stuck on the problems with sleep & not having the pain you think you should have.  List your symptoms & take it to your Doctor.  Everytime I would think of something I would add to my list until my appointment & then I went over it all with my Doctor.  It helped me get my answers & helped my Doctor to not have to guess at what I meant.    It is nice to meet you.  Come back often & let us know how you are doing.  Hugs, Denise 

 I have:  Fibromyalgia, CFS, Holt-Oram Syndrome, nasal allergies, depression

Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren.


Akram
Veteran Member


Date Joined Feb 2005
Total Posts : 616
   Posted 12/23/2008 12:24 AM (GMT -7)   
JCgurl, getting by, Jewelrylady thanks for your support, now that I think of it maybe I have some pains that I ignore.. anyway I have a question, since we don't have family doctors here we usually see doctors who are specialized, what specialty do you think covers fibromyalgia?
                                                     To be or not to Be


jewelrylady
Veteran Member


Date Joined Jun 2008
Total Posts : 717
   Posted 12/23/2008 12:36 AM (GMT -7)   
I was dx'd by a Rheumatologist.  They seem to know alot about Fibro.  Don't be discouraged if you go to one who doesn't believe Fibro is real.  Just thank them & find another.  I hope your diagnosis will be easy & your sleep issues addressed.  Hugs, Denise

 I have:  Fibromyalgia, CFS, Holt-Oram Syndrome, nasal allergies, depression

Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren.

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