Official Diagnosis x2???

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TeNNiSd0C09
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Date Joined Jul 2007
Total Posts : 1303
   Posted 12/24/2008 4:31 PM (GMT -7)   
So, I went to the doctor yesterday. I was SO nervous and scared. It was such a long trip and that caused me to hurt all over...but its a really nice place.. Paper work...then I went into a private room, with, get this, my very own plasma tv and a cushioned bench! lol Normal doctor rooms are so very boring and uncomfortable! So, I watched Spongebob!

The doctor was really nice. He was WAY more into it then ANY of my others. He took all the time in the world and asked every question imaginable. He NEVER seemed to be in a hurry or anything and I LOVED that part. He talked and listened to me talk. He checked everything.(good news:no arthritis!) tongue

He said he believed I have Fibro. (I was dx with Fibro this time last year when I TOLD my doctor about it and he started me on Lyrica) So, did I actually dx myself 3 years ago?! shocked

But, he pretty much told me everything I already knew. But, I must brag on him and say he said it in a simple, made sense kind of way. So, thats good for my dad!

But, he gave me a script for physical therapy, to do more aerobics. He says in the study they did that it actually helped to be more active. Basically pushing through the pain desensitizes your nerves so then even if there is pain, it just feels normal I suppose. So..then, he recommended I get counseling because he says some part of it is stress related and counseling would help to get to the root of that stress. He also said I may want to try anti-inflammatory....

I also got a DVD about the different Amplified Musculoskeletal Pain syndromes and how the intense exercise is "supposed" to help...but it is also supposed to get worse before better...

So, by now your thinking, "wow, that sounds stupid!" ....I understand.

The only thing I didnt agree with was that he said Lyme disease does NOT exist in Alabama. I disagree. He thinks it only in the northeast. I found out yesterday that I know someone personally that has Lyme, and shes a doctor herself! She used to be my doctor, and she a family friend. My dad said that before we do anything he wants me re-tested for Lyme by IGenex just to make sure....

So, I think yesterday made a LOT of progress. I think my parents(more my dad...) are getting involved more now, which is good. And I hope we follow through with the counseling thing. Stress...heres my little list I made: school, grades, homework, friends, parents, world stuff, (the past) self harm, depression, anxiety, everything from the past year and a half...etc..

So...sorry this is so long, I was TOO tired to post last night. But, I feel more excited because I feel like they believe me more now. It just feels more real now. Anyways, I hope everyone(who celebrates) has a wonderful Christmas or Hanukkah and anything else we may be celebrating! tongue

Thanks SO SO SO SO more for everything, my Fibro family! tongue smurf yeah tongue
Lyrica and Paxil (both working quite well might I add!)
   "Cracks in the concrete are just reminders that you fall apart no matter how strong you are"
    "Sometimes it is best to forget what you feel and remember what you deserve"
    "Im going to smile like nothing is wrong, talk like everything is perfect, act like its all a dream, and pretend its not hurting me."


Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 12/24/2008 5:11 PM (GMT -7)   
Hi Tennis,
Im glad you found a good doc and your dad is making sure you follow through on any other suspicions.
I too diagnosed myself, told my doc and she confirmed, she sent me to the pain clinic and they confirmed. Thank God for these ladies who gave me the courage to ask.
Sue

KerriH
Regular Member


Date Joined Mar 2008
Total Posts : 316
   Posted 12/24/2008 5:35 PM (GMT -7)   
I'm so glad your appointment went so well!  Your doctor sounds wonderful and I'm very happy for you.
 
That makes sense that pushing through the pain desensitizes the nerves.  I thought, with me, it just took my mind off of it and, therefore, the pain was pushed into the background.  It's good to know that it also desensitizes the nerves. 
 
Have a wonderful holiday!
 
Kerri
 

Kerri

Fibromyalgia

"Tragedy is a tool for the living to gain wisdom, not a guide by which to live."
Robert F. Kennedy 

 



kelly71
Veteran Member


Date Joined Jun 2008
Total Posts : 726
   Posted 12/24/2008 6:08 PM (GMT -7)   
Christi,
 
Congrats on the self dx, Kid! wink    That brings back memories of myself when just a few years ago I was wondering, "Hmmm, I wonder if I have fibro?  It sure sounds like I do."  I only had to wait about 5 years for the official dx! tongue
 
I know you must feel really good to know that just maybe your parents will believe you now.  Just know that there are a lot of us out there in your shoes (hey, these are some comfy shoes! smilewinkgrin ), so you are never alone.  Seriously, there are days when my fibro family are the only ones who help me through. sad
 
BTW-no Lyme in Alabama?  OK, maybe it usually occurs in the NW (BTW-I had a friend who had it and she was from SOUTHERN CA), but that doesn't mean it couldn't happen in the south.  When I was younger, all they worried about was Rocky Mountain Spotted Fever.  What I don't get is that the Rocky Mountains are in the west, yet the people in the south get it.  I guess that's one of life's mysteries, huh? wink
 
Anyway, I'm so happy that you're doing well.  Merry Christmas, Happy Hanukkah, Happy Kwanzaa, or all 3 if you want! tongue
FINALLY dxd with fibro on 06/13/08
Vicodin, Neurontin, Ibuprofen for pain-which doesn't help, BTW
Zoloft & methadone (NOT for pain) for sanity-which doesn't help, BTW
Klonopin for anxiety (Guess what?  Doesn't help!)
Chantix (quit smoking 08/29/08)
 
"I'll take the Chivas instead"
-Kelly Clarkson


TeNNiSd0C09
Veteran Member


Date Joined Jul 2007
Total Posts : 1303
   Posted 12/24/2008 8:06 PM (GMT -7)   
Thanks. I feel really relieved just knowing that I have you all, that I have read and researched so much that I am well educated on the subject, and knowing that I have finally found a doctor who didnt just look at me as a mystery. He didnt have to ponder, he knew exactly what was wrong with me(if the Lyme thing is negative) But, it made me feel good to know that he had seen others with the very same thing, so he KNOWS that Im not making it up!

I feel confident now that I can fight it. Im going to work through the pain and prove to myself that I can beat it. I've decided that I have to because its not who I want to be. Since quitting sports and starting Lyrica I have gained SO much weight. I have gained at least 20 since starting Lyrica. And I can totally tell a difference. And I gained another 20-30 lbs. before that when I quit sports.

That makes me very upset. I could never imagine myself weighing what I do. I have always been little and running around and VERY strong(thats what happens when you grow up with ALL guys!) ;)

So, Im not used to this. My New Years Resolution is to fight back. To fight Fibro..and to fight my weight. To fight my depression. And my anxiety. To win back my life and live it the way I see fit for me. Thats my goal.... I want a fresh start when I start going to college! Thanks for everything. It truly means the world to me! I couldnt have done it without you guys! I wish everyone a VERY Merry (insert holiday)! =] =] =] =] =] =] =] =] =] =]

P.S. Cant wait to open my gifts! (even tho I went and bought them, and wrapped them earlier!) lol =]
Lyrica and Paxil (both working quite well might I add!)
   "Cracks in the concrete are just reminders that you fall apart no matter how strong you are"
    "Sometimes it is best to forget what you feel and remember what you deserve"
    "Im going to smile like nothing is wrong, talk like everything is perfect, act like its all a dream, and pretend its not hurting me."


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40590
   Posted 12/24/2008 8:59 PM (GMT -7)   

Hi Christi,

I like that about the nerve desensitizing.  I know that the more that I do, the easier things become.  It is just getting going that is the problem.

I am glad that you had such a good visit with your doctor and that your parents got involved.  Now they know what you are going through.  Or at least have an idea.

So you picked out your gifts and wrapped them?  Are you going to act suprised when you open them? turn

Christi, I hope that you have a wonderful Christmas tomorrow.  We had our Christmas on Saturday with the grandkids.  And my granddaughter had to sit next to me.  Reminded me of you and your grandmother.  I got her the littlest pet shop and she loved it.  I will get her the whole collection eventually.  Her birthday is in February so she will get more then.

Take care my friend.

Hugs,Karen


  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


TeNNiSd0C09
Veteran Member


Date Joined Jul 2007
Total Posts : 1303
   Posted 12/24/2008 9:25 PM (GMT -7)   
Awww....thats SO sweet about your granddaughter. It does sound like me and my Grandma. I will be thinking ALOT of her tomorrow.

Oh yes! I will act very surprised! lol My dad had me help him wrap all our "Santa" gifts earlier....I liked certain papers, so I told him which ones to use if he was wrapping one of my gifts! haha...

Ya know, I spent about 10 hours with my dad yesterday..seems like we have been spending more and more time together. My mom and I just dont click like I do with my dad. We laugh alot...he laughs at me, rather! lol But, I think he enjoys being with me....He and my mom dont really get along so....

I am going to "attempt" the desensitizing thing! lol Im going ot work my hardest to get back to where I used to be. Im going to ignore the pain. We are having a family event Saturday in a church gym, basketball time for me! lol I love going there! Last year is when I went and I cried coming home because it killed my legs...but this time its going to be different. Im going to ignore it and keep on doing my best! And stomp my brother at a game! =]

So, Im pretty excited about everything now. I feel more relieved. I cant even believe Im talking like this! lol I have an appt. with my Ortho, I have to tell him about my new doc and what he said. AND I have to talk to another doc about it also, and convince him to let me do the Lyme test....haha, all my doctors are very curious as to what is wrong with me, so once I get a dx I have to go tell all of them! Not to mention, I have to talk to my physical therapist...and see if they can help me with this. Im supposed to show them the DVD the doc let me borrow, to educate me, my family, and my therapists! I think its funny! =]

Well, Im headed to bed....Santa's coming!!!! I am SO EXCITED!!!! Even if I know what Im getting!!!!! =]
Lyrica and Paxil (both working quite well might I add!)
   "Cracks in the concrete are just reminders that you fall apart no matter how strong you are"
    "Sometimes it is best to forget what you feel and remember what you deserve"
    "Im going to smile like nothing is wrong, talk like everything is perfect, act like its all a dream, and pretend its not hurting me."


Grailhunter
Regular Member


Date Joined Nov 2008
Total Posts : 159
   Posted 12/25/2008 11:29 AM (GMT -7)   
Congratulation on the DX!!!!!

The nerve desensitiseing actualy makes allot of sense to me. Each time I have pushed myself back to full time hard work, I am a Plumber which requires all kinds of pulling, lifting, tugging, crawling around under houses, I started getting better after about a month of worse. One time I stuck with it for 3 months before I had to quit because the company was a very crooked, rip off type plumbing company, and my customers always come first and I couldn't do things their way. But at the end of that 3 months I was actualy feeling a major shift in my body to the good, and my mind felt clear and strong and positive. The fatigue shifting back and forth from good energy levels to exhaustion wouldn't leave as fast, but I felt like it was very slowly getting better, following up behind the improvements in pain and mental well being.

After quiting that company, I tried re-starting my Internet company and sat at a desk all day, not getting excercise. In a couple of months I was worse then ever and living on stronger and stronger pain killers.

So its sound medical advice to me. Push through it!
Fibromyalgia, Chronic Fatigue, IBS, Diverticulitis, Costocondritis, Mild Hypertrophic Cardiomyopathy, Mild Hilar Lymphodenopathy, Depression, Anxiety. Near Constant Dyspnea. Disequilibrium, prolonged standing, walking, progresses late in day.

Klonopin, Percocet, Baclofen, Ibuprofen, Valerian, Greens Plus, Magnesium, Vitamin C, COQ 10, B Complex, Glucosomine, Condrotin, MSM.


TeNNiSd0C09
Veteran Member


Date Joined Jul 2007
Total Posts : 1303
   Posted 12/25/2008 4:28 PM (GMT -7)   
I watched the DVD I got and its amazing. There is a girl with a different type of pain than I have, but they made her work like 5 hours all day long and every day there was SO much improvement. By the end of the week she could walk again...and a little while later she had 0 pain and could run again. She started on crutches crying from the pain wind caused against her leg and pain above 10. So, it was kind of shocking, but it totally makes sense to me. Even tho it sounds crazy to cause all that pain, but in the end, it seemed to really make a difference so...
Lyrica and Paxil (both working quite well might I add!)
   "Cracks in the concrete are just reminders that you fall apart no matter how strong you are"
    "Sometimes it is best to forget what you feel and remember what you deserve"
    "Im going to smile like nothing is wrong, talk like everything is perfect, act like its all a dream, and pretend its not hurting me."


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40590
   Posted 12/25/2008 5:00 PM (GMT -7)   
Christi,

Have you ever thought about taking the malic acid? It works for me, well, it helps. And helps a lot. I notice it when I forget to take it. Just thought that I would mention that. The magnesium is so good for your muscles. It feels like it lubricates them.

Just a thought.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


TeNNiSd0C09
Veteran Member


Date Joined Jul 2007
Total Posts : 1303
   Posted 12/25/2008 6:51 PM (GMT -7)   
Yea, I have a bunch of different vitamins and such..one of them makes me feel sick tho, cant figure out which. But, its not that bad, I just take so many different ones that Im just like "whatever" and just stop. I suppose Im not really motivated in that department. I need to be taking like those one-a-day vitamins, I "borrow" them from my mom like once or twice a week! haha I just feel better about myself when I take vitamins, its like Im doing something good for myself and hopefully it is actually helping!

I will start taking a multi vitamin soon. Im making it my mission to become a healthier person. I feel like maybe if I become healthier physically and mentally maybe I will feel a bit better. After that doc appt. I am just so motivated to do everything I can. Its worth a try at least....

Well, I have to dance for a while on my game to work off my Christmas dinner, then Im off to bed with Luci!

With Love,
Christi =]
Lyrica and Paxil (both working quite well might I add!)
   "Cracks in the concrete are just reminders that you fall apart no matter how strong you are"
    "Sometimes it is best to forget what you feel and remember what you deserve"
    "Im going to smile like nothing is wrong, talk like everything is perfect, act like its all a dream, and pretend its not hurting me."


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40590
   Posted 12/25/2008 6:57 PM (GMT -7)   
Have a good dance and a good night Christi. It is nice to have a puppy to snuggle with. My dogs are much older, but they still snuggle.

Luv and hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


TeNNiSd0C09
Veteran Member


Date Joined Jul 2007
Total Posts : 1303
   Posted 12/25/2008 8:05 PM (GMT -7)   
Snuggling is good. Altho, she has a habit of taking over the whole bed! She crawls up next to my face and puts her face on mine, which is SO sweet and I LOVE it...but annoying when your trying to sleep! She is such a bed hog! But I love her to death! She is really sweet. And she is a really good puppy. And VERY playful when shes not asleep!

I danced/burned off (what the game said) about 500 calories today! If I went out jogging, (according to the game) I would have went 8.4 miles! Now, thats what I call amazing! haha, I love it. It burns calories and gives my legs and heart a great workout! Not to mention, its not easy! lol Some of the songs are really hard and fast so Im jumping around on the dance pad like a crazy chicken with my head!

Im headed to bed in a peaceful manner. I feel very blessed for everything I recieved today. And it was nice to be with family. I almost dont want today to end, but I dont have school all next week so at least I have some time to rest! Thanks so much for everything!

With Love, Christi =]
Lyrica and Paxil (both working quite well might I add!)
   "Cracks in the concrete are just reminders that you fall apart no matter how strong you are"
    "Sometimes it is best to forget what you feel and remember what you deserve"
    "Im going to smile like nothing is wrong, talk like everything is perfect, act like its all a dream, and pretend its not hurting me."


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 12/26/2008 1:18 PM (GMT -7)   
Christi, I'm so glad you had a wonderful Christmas and have found a wonderful doctor!  I can't wait to see how the extra exercise will help you.  I know I try to do as much as possible...even when I don't feel like it.  The more I sit, the more I hurt and become weak.  So, keep up the great work!
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


TeNNiSd0C09
Veteran Member


Date Joined Jul 2007
Total Posts : 1303
   Posted 12/26/2008 6:26 PM (GMT -7)   
Oh I am! Thanks Sherrine! I have been doing alot of dancing and taking my puppy for extra long walks, that benefits the both of us! I been trying to just think to myself "Im normal and I can at least try to do everything I can to be healthy, in return, hopefully that will help me to feel a bit better."

Oh, and I got a fish today! lol "Its" name is Gilbert(Gill for short!) So, I have gotten alot on my plate, but Im handling things surprisingly well! Im going to go play basketball tomorrow and boy am I looking forward to it!!

And, I have another doc appt. Wednesday morning..my dad is insisting on getting a Lyme test done by iGenex before I start anymore therapy or worry about finding counseling or anything. I've never seen him this persistent...I think it hit him when he was with me Tuesday hearing what all I said to the doctor and the doctor actually KNOWING what I was talking about. I think it made it real for my dad, not just some mystery thing I have.

So, right now everything has been postponed until I get the test done by that lab... lets see what happens...

With Lots of Love, Christi =]
Lyrica and Paxil (both working quite well might I add!)
   "Cracks in the concrete are just reminders that you fall apart no matter how strong you are"
    "Sometimes it is best to forget what you feel and remember what you deserve"
    "Im going to smile like nothing is wrong, talk like everything is perfect, act like its all a dream, and pretend its not hurting me."


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 12/27/2008 11:20 AM (GMT -7)   
I think you are right about  your dad.  He may have thought you were exaggerating like some teens do.  But, he now knows you have really been suffering and  you weren't fooling around for attention!  That is terrific!  You need adults on your side.
 
I, too, was much closer to my father.  We hung out a lot and I was by his side whenever he was doing anything around the house.  I would also help cater parties that he and Mom had.  When I was helping him, he called me "Tom" and when I was helping Mom with food preparation, he called me "Hazel".  He passed on in 1986 and I miss him so much.
 
So, enjoy your times with your Dad.  They are to be cherished.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

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