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strikerx98
New Member


Date Joined Apr 2008
Total Posts : 16
   Posted 12/26/2008 10:26 AM (GMT -7)   
I have Fibro, arthritis and arnold chiari (surgery in 2000 but symptoms coming back). I take Darvocet, Ambien, zoloft, pravochol (sp?), elavil. I took vicodin, oxycodone and some pain patch all with no pain help.

Thanks,
Connie
 
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Post Edited By Moderator (Marlee2) : 12/26/2008 11:14:34 AM (GMT-7)


Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 12/26/2008 11:49 AM (GMT -7)   
Connie,
I've had symptoms of fibro for my entire life that I can remember from age 3 and all I can tell you is that you CAN learn to live with pain and keep going and use the times when pain is lessened as times of relief. I have never been pain free in my life except when I was asleep or unconscious during surgery. I don't know what kind of relief you are seeking but for me learning to cope was the only option. I have passed kidney stones at home, delivered three children naturally (not my choice, fast deliveries) had root canals and broken bones and at all times pain meds only made me not care about the pain, didn't remove it. For me, herbal options did nothing. Wish I could be more helpful.
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 12/26/2008 1:07 PM (GMT -7)   
I Can't believe I just lost my post. I was just getting into how pain management works for me and presto, or Vista, it disappeared. Anywho, I was saying I take 100mgs. of amyltriptiline at bedtime, and am permitted to take half that ammt. during the day, as it helps with the neuropathic pain, (spinal and TMJ) in my case. As far as the throbbing muscle pain of the long muscles in thighs, tendons, arms, etc, I can manage with Tylenol 3, and muscle relaxers. There are some kinds of days when it seems nothing will work. Moist heat, lots of it, giving myself permission to be idle, rest in bed , reading, writing or watching TV, anything to make myself a little more comfortable, and hopefully take away the focus from pain to anything else. The problem with Tylenol 3 and muscle relaxers, are, that ultimately your supply is exhausted before the holliday season wraps up, so with so few tools in my toolbox to fix me, I'm like I'm stranded an agony island. Waiting for Gilligan to get back to work and fix me up with new supplies. This invaribly happens, and to put it as politely as I can, it sure reinforces the dx. for me. Best of luck, i hope you find a combo that works for you. It takes a fair ammt. of trial and error.
Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40568
   Posted 12/26/2008 2:15 PM (GMT -7)   
Connie,

For some people nothing works. You end up having to live with the pain. If you can keep your mind busy, and your hands, the pain may eventually fade into the background for you. It is a matter of mind over matter. It does work for some. I hope that it can work for you also.

Best wishes,

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


strikerx98
New Member


Date Joined Apr 2008
Total Posts : 16
   Posted 12/26/2008 3:36 PM (GMT -7)   
Thanks guys (and sorry for the illegal post. nono It's just not illegal where I live as long as you have an Rx). Anyway, I've also had 3 kids, brain surgery, root canals, etc.. but sometimes the pain is just soooo bad! The oxycodone worked for a while and although I only took one a day as needed it just stopped working. I even asked my doctor if he switched it to a placebo and he said there was no reason as I never took too much. I use heat pads, TENS machine, PT etc.. Since I've been dealing with this for 20 years I guess I'm just whining because it's getting tiresome. I thought loosing weight would help the energy level but after loosing 50 lbs (30 more to be at ideal weight) but I just feel worse.

So, here's an ok Rx question.. I heard about a cream form of the lydacane (sp?) patch. Anyone get help from that?

Thanks again,
Connie

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 12/26/2008 4:07 PM (GMT -7)   
Hi, Connie, and welcome!  Do you keep moving or do  you sit and lay a lot?  You do need to move to help keep the mucsles from "seizing".  There are times I am limping when I start to walk my dog but then I'm walking with a lot less pain by the time I get back home!  You do need to move and stretch those muscles.
 
If you haven't already, check out the Fibro 101 thread...the second thread on the forum.  There are links to a lot of good info in it that may help you.  The gentle stretching exercises link has help many. 
 
I take ibuprofen (with food) and Tylenol for pain and I also take malic acid/magnesium supplements for pain and fatigue.  These don't help everyone, but they could help you.  There is a link in the Fibro 101 thread all about them.  Read it and see what you think.
 
I'm glad you found us and we will all work together to find comfort.  We have many good ideas to help you live a full and enjoyable life with fibro.  Hope to hear more from you soon.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Grailhunter
Regular Member


Date Joined Nov 2008
Total Posts : 159
   Posted 12/26/2008 6:03 PM (GMT -7)   
Welcome Connie!

As all these pros can tell you, different meds and even naturals work differently for different types of pain. Even in the best case scenario, knowing everything your dealing with and taking what works the best for it and this still may not be enough and your mind has to bridge the difference.

Let me give you a example. I take Baclofen for my muscles and it works some on nerve pain. I have considered trying Gabapentin or Lyrica. They are specific to nerve pain, but the one time I took Gabapentin I was so dizzy I could barely walk. I take Percocet for back pain. It used to work, but now it is not very effective, like your Vicadin did on you and I refuse to increase the dose. So I supplement it with Ibuprofen. I take Klonopin for sleep and anxiety. Its not very effective anymore and I won't raise that dosage, so I supplement with Valerian that increases the Neurotransmitter the Klonopin works with. I take Glucosomine and Condrotin and MSM for my knee and hip. As long as I keep taking it I don't get knee or hip pain. I count my blessings. Now, with all these drugs going in me, my back, ribs and chest still hurt like crazy everyday. The activity that helps the muscles makes the spine hurt more. The more I do, the worse it gets. I was looking through my old medical records from the last time I had insurance and a CT scan said something that my Doctor never mentioned because the CT was for the lungs. It said on the last line, Thorasic degeneration. Strangely enough, back when I was taking Amitriptelene at night and Paxil in the morning, I didn't have spinal pain. So, I am going to try it again and see what happens. I maybe eating Opiods and anti-inflamatories for a problem they can only dull at best, while it dulls my brain at the same time, probably makes me more depressed and pain sensitive.

There is a point to this. The point is basicaly don't give up because a drug that only temporarily numbed you to the point of not caring quit working on you. Work with your Doctor and what you read and get the things going that work the best for you. Life is living it the best we can and that is up to us to achieve, not our Doctors for us. Read, read, and when your done, read some more and take what you learn, put together the pieces for yourself the best you can and live your life. 13 years ago when I was about as far into depression as you can get, and I decided regardless of the degree of misery, I was not going to give up. I was going to beat this thing. Since that point, pain wise, what I can do has actualy gotten quite a bit worse, but nothing has basicaly changed on this one thing. I am going to beat this thing. What I found out along the way is that beating it was not a issue of getting well, although that would be nice. Beating it was a daily, and sometimes by the hour or even minute struggle in my own mind of where I was going to view myself as being in this. An hour of peace and you beat it. Laughing at a funny movie and you beat it. Enjoying the company of loved ones and you beat it.
Fibromyalgia, Chronic Fatigue, IBS, Diverticulitis, Costocondritis, Mild Hypertrophic Cardiomyopathy, Mild Hilar Lymphodenopathy, Depression, Anxiety. Near Constant Dyspnea. Disequilibrium, prolonged standing, walking, progresses late in day.

Klonopin, Percocet, Baclofen, Ibuprofen, Valerian, Greens Plus, Magnesium, Vitamin C, COQ 10, B Complex, Glucosomine, Condrotin, MSM.


donnaeil
Veteran Member


Date Joined Jun 2006
Total Posts : 1156
   Posted 12/26/2008 6:31 PM (GMT -7)   
Hi,

You can ask your doctor about zanaflex, it is working well with many fibro patients. I have the most relief from them.

donnaeil

Orlo
Regular Member


Date Joined Dec 2008
Total Posts : 139
   Posted 12/26/2008 9:57 PM (GMT -7)   
Neurontin works some of the time for me. It takes away the really terrible pain. I'm on 600 mgs. I also agree with moist heat. I made myself a flax seed neck warmer and it's wonderful. Really that's the only thing that's really helped me. Another lady with fibro also said, don't be afraid to take many warm showers a day.
Fibromyalgia: 2008

Effexor 150 mg, Flexril 5 mg, Gabapentin 600 mg

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