please help!!!!

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New Member

Date Joined Feb 2007
Total Posts : 6
   Posted 12/26/2008 9:52 PM (GMT -6)   
I was diagnosed with fibro in 2006. I have had better luck than most when it comes to the pain. I was wondering if anyone has ever had any eye pain and lightheadedness with their fibro, I mean it seems to be worse when I am reading or in a very open space, sometimes driving. I have also had alot of neck pain, and it seems that the pain goes right up to the top of my head. I am just wondering if I am completely crazy or what....any responses would be very much appreciated..God Bless

Regular Member

Date Joined Dec 2008
Total Posts : 176
   Posted 12/26/2008 10:27 PM (GMT -6)   
Hello Alexivan.

I was just recently diagnosed with Fibro, and yes, I have had pretty bad pains in my eyes, especially when I blink or close them. It is very frustrating, getting to the point of almost IMPOSSIBLE some days for me to read even because my eyes get so bad!!!!!! (I also suffer often with double vision) I planned on mentioning it to my rhuemotologist, maybe you should also discuss it with your doctor as well. And just know that you are definately not alone and not "crazy"! lol

And I experience AWFUL neck pain almost daily... I have posted a topic on it (where it says "Ouch! My neck!!") where a lot of people gave me good suggestions, take some time to read them as well!!

Take care!!

Veteran Member

Date Joined Jun 2008
Total Posts : 716
   Posted 12/27/2008 3:25 AM (GMT -6)   

Welcome Alexivan, this is a good place to come for answers.  I am glad you have found us.  I don't have much eye pain but mine do cause me alot of problems sometimes.  Burning & watery, blurriness & squinting.  My eyes get tired very fast. 

The lightheadedness I get is mostly due to my low blood pressure but also from Fibro fog.  When I am not sleeping well I find the lightheadedness is more of a problem.   It also seem to make me feel really weak but there again it could be my BP.  Sometimes, it is hard to separate the two.

Oh yes, neck pain & I are on speaking terms.  As a matter of fact, it has moved into my house so we can be together always.  Not by my choice though.  As JCgurl said there is a thread on that just recently with some good pointers in it.  I use a Bed Buddy I got as a gift that I heat in my microwave & then I wear it around my neck, it does help alot.  It's like a big tube sock filled with rice & you can make one fairly easily.  Sometimes my neck pain will shoot up to the top of my head, sometimes my head is so sore I can't touch it.  Oh, the wonderful life of Fibro.  Hugs, Denise

 I have:  Fibromyalgia, CFS, Holt-Oram Syndrome, nasal allergies, depression

Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren.

Veteran Member

Date Joined Oct 2008
Total Posts : 1683
   Posted 12/27/2008 6:49 AM (GMT -6)   
Alexivan, i can sympathise with each of those symptoms. Fibro sucks. it manifests itself in sooo many ways- but you will get through it, and this is a great forum for support and advice
Maz XX
            'He heals the broken hearted and binds up their wounds.' (Psalm 147:3)                  
Panic Disorder, Agoraphobia, CFS, Fibromyalgia, TMJ disorder, Endometriosis, PCOD, Chronic E.N.T infections, Reactive Arthritis, GERD, Sinusitis, IBS,  Allergies, Glandular fever, Migraines, Anemia, Chemical/Noise/Light sensitivity, Trichotilomania, PTSD, Seasonal Mood  Disorder, OCD, Benign Vertigo,  Impaired immune system. Tachycardia, tinnitus, low clotting factor= bruising. Tendonitis, Bursitis.
Meds: Zoloft 150mg. Xanax 4mg. Celebrex. Mobic. Panadeine Forte. Digesic.
Multiple surgeries- I bear the scars of my poor physical health.
Age:28. First diagnosed at 14. Proud Aussie.

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 12/27/2008 12:23 PM (GMT -6)   
Hi Alexivan and welcome. I get eye pain sometimes and my eyeballs are sore to the touch. The pain from our neck muscles goes over the tops of our heads to our foreheads. I had a doc show me the path it takes. I have tender points on each side of my forehead. Like everything else with fibro the lightheadedness comes and goes with me.
When my neck is really bothering me I lay down and put something under my neck for support and it seems to help. It gives the muscles a rest. I also use my TENS unit on the large muscles in my neck. Driving is hard cause we have to move our heads constantly and the starting and stopping puts a strain on them.
Hope your better soon.
luv and hugs
Forum Moderator Fibromyalgia
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New Member

Date Joined Feb 2007
Total Posts : 6
   Posted 12/27/2008 1:07 PM (GMT -6)   
Oh Goodness, I had no idea that there were people out there that had so many health issues together like this!! Thanks everyone for your comments and support. When I asked this question I was really nervous about doing so because had I told you everything that was wrong with me (as a result of the fibro?!) I was so scared that everyone would think that I was just being paranoid or a hypochondriac. I have been accused of that enough! However, as I read through some of the stuff on here, I can see that I am just another victim of the sweet sweet reality of FIBROMYALGIA! I am only 30 years old and was in a terribly abusive (in every sense of the word) relationship for 3 years, which I am informed was probably the reason of my developing fibro to begin with. I was very lucky in receiving a rather quick diagnosis, based upon the fact that I had discovered my oh so very tender points and subsequently ran across what fibro was in a medical book. I demanded answers and upon examination was diagnosed with fibromyalgia. I was also lucky to receive the diagnosis especially because of a previous diagnosis the year before of generalized anxiety disorder...WOW, how doctors NEVER take you seriously after that diagnosis!! Anyway, I digress, and while I am pretty lucky (most days) in not having the all over constant and debilitating pain that others experience, I have rather crappy luck in other departments, and as I see on here, I am in the majority! I was so happy to see that everyone has MANY of the same symptoms that I have experienced or am experiencing. I mean I feel terrible that everyone is going through these things but I am so glad to see that I am indeed not crazy!! Anyway, thanks to everyone for their responses, and I hope and pray that everyone finds some sort of relief, or at least find someway to be more comfortable in their pain. May God Bless each and everyone of you...

Forum Moderator

Date Joined Apr 2005
Total Posts : 17055
   Posted 12/27/2008 1:29 PM (GMT -6)   
Hi, Alexivan, and welcome!  People with fibromyalgia can have a myriad of symptoms.  If you printed out our list, it's over two pages long!  No one has all of them, but we all have many  of the symptoms on the list.
Neck and shoulder pain seems to be almost the hallmark of fibro.  I don't think there are many fibromites that don't have that problem.  My neck is so tight.  At the base of my skull it feels almost bruised and my scalp feels like it was burned by the sun.  I have had the pain go over my head to my forehead, too.  That happened when I was suffering from anxiety...another problem many people with fibro suffer.
Check out the Fibro 101 thread...the second thread on the forum.  There are links to good info about fibro...including the list of symptoms.  There are some good gentle stretching exercises there that help many also.
I take ibuprofen (with food) and Tylenol for pain and I also take malic acid/magnesium supplements for pain and fatigue.  These don't help everyone but they have helped some and you could be one of the lucky ones.  There is a link all about them and how they work in your body on the Fibro 101 thread.  Read all about it and see what you think.
I'm so glad you found us!  We are here to help you.  Read posts and ask questions.  Our members have good ideas to help you live a full and enjoyable life with fibro.  Hope to hear more from you soon.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

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