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Regular Member

Date Joined Dec 2008
Total Posts : 174
   Posted 12/29/2008 1:10 PM (GMT -6)   
Hi everyone....I'm new and Looking for a support line for myself.I'm a 40 yr old female with heart disease,diabetes,fibro, and CFS(alltho the last 2 have barely been dx)I had a heart attack at 38 due to two 100% blockages in my upper arteries.During the first heart cath, the doc hit a nevre in my groin and it has been downhill ever since.Started with horrible groin pain and now it is all over my body.That was two yrs ago and the horror of countless doctors,specialist,tests and trips to the er began.In that time,I've not found a doctor that can or will help,just scores and scores of drugs that have never helped,and being ping-ponged from one doc to another,with the exception of a few sympathetic er docs who have given me a smattering of opiates here and there.Now,due to economic problems,my husbands job will no longer pay for our insurance,so we will have to drop it in order to survive,It would cost over $1000 a month to keep it.I try to keep a good attitude most of the time, through the pain,but today I sit here with tears streaming down my face because I feel so overwhelmed by it all.My family has been amazing,but its so un-fair for them.Two yrs ago I was a landscaper and a private gardener,could work for hrs in the sun or cold doing what I loved, and now I can barely walk around my house.Ya'll have walked this road much longer than I,and I don't know how you do it,but thank God you are here.All the hope in the world....Wyld                                                                                                                      

Forum Moderator

Date Joined Apr 2005
Total Posts : 17059
   Posted 12/29/2008 1:31 PM (GMT -6)   
Hi, Wyld, and welcome!  I'm so sorry you are going through this journey.  It sure isn't fun but you can get control of fibro.  That's the secret to living a full and enjoyable life with fibro.  You have to take control of it and live your life.  You may not be able to do all that you wanted to, but you can do a lot of things!  You just find ways around the fibromyalgia and accomplish what you want to.
Be sure to check out the Fibro 101 thread...the second thread on the forum.  There are links to good info about fibromyalgia.  There is a list of symptoms that may help you out and some good gentle stretching exercises there too.
I take ibuprofen (with food) and Tylenol for pain and I also take malic acid/magnesium for pain and fatigue.  These really have helped me but they don't help everyone.  There is a link all about this in the Fibro 101 thread.  Read about it and see what you think!
Moist heat is great for fibro.  Hot showers and Bed Buddies that give off moist heat feel so good when those muscles are really aching.  You also need to keep moving with fibromyalgia.  If you sit or lay too long, you will be stiff as a board and in more pain.  The stretching exercises in Fibro 101 do help keep the muscles flexible and walking and water aerobics are good too.  
I'm so glad that you found us!  We have a great group here that have good ideas to help you live a good life with fibromyalgia.  Read back posts and ask questions.  Our members are always glad to help one another.  Hope to hear more from  you soon!
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Regular Member

Date Joined Dec 2008
Total Posts : 174
   Posted 12/29/2008 1:46 PM (GMT -6)   
Sherrine,thank you for the welcome.I really need a place to talk to people who are in the same boat as I.I went in the living room a minute ago and yelled as loud as I could,you know the primal scream thing,(waiting for the cops to show up soon lol)and my dogs just stared for a minute and then jumped all over me wagging and such and through the tears i just laughed my a** off.Thank God for the unconditional love of a pet,they really don't mind if your nuts.....Wyld

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 12/29/2008 4:26 PM (GMT -6)   
Hi Wyld and welcome to our family. I've always wanted to do that but I figure all it would do is give me a sore throat on top of everything else. I'm so glad you found us cause you never have to be alone with this DD again. Read as much as you can, ask questions and vent when you need to, we understand.
I'm sorry about the ins that doesn't help the stress level at all and stress makes fibro worse. I hope others might be able to help with suggestions that don't have ins. I know some gets their meds free.
Sometimes the journey to get a dx is long and hard but once you know what you are fighting you can learn to live with it the best you can. Most of us, like you, were hard working people before fibro.
Many of us have beloved pets that give us so much comfort. I have a four month old bichon frise that is quite the handful right now but when she lays her little head next to mine on the same throw pillow I get all warm and fuzzy. She looks like a little white angel when she is sleeping. When she is awake she can turn into Kujo but knowing from experience that will pass soon enough.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
Co Q 10, Super B Complex, Extra B12, Multi vitamin

Veteran Member

Date Joined Nov 2008
Total Posts : 1097
   Posted 12/29/2008 6:14 PM (GMT -6)   
hi wyld,

welcome! i am so glad you've found us-this is a great place for information and to just let it all out. there are so many fabulous, helpful people here :-)

it sure does sound like you've had a really hard time of things-i am so sorry you've had to go through all of that. i know how difficult the insurance thing can be (we can't afford it, either) is there any way you could qualify for medicaid?

i hope things start to go better for you soon and again i am so glad you've found this little family:)


Regular Member

Date Joined Dec 2008
Total Posts : 176
   Posted 12/30/2008 3:52 AM (GMT -6)   

Hello, Wyld, and welcome!!!!!

Well, you said one thing that wasn't entirely true... yes, a lot of these people in this forum might have been walking this path much longer than you... but I have not.. I was only diagnosed with Fibro since the beginning of this month!! (Had it a little longer than that and didn't know what the heck it was!) To tell you the truth, I have struggled all my life with mental problems, NOT medical... but now I have both (what fun! lol) But I am also in the same boat with you, and I am glad you found us here! :-)

I am sorry about your bouncing around from doctor to doctor and all your mishaps with your health... must be soo so frustrating!! But that is what WE are here for... To love and support you and reassure you that everything will be okay!

Fibromyalgia, Bipolar Disorder, Hallucinations, OCD, Chemical/Noise/Light Sensitivity, Irrational fears

Regular Member

Date Joined Dec 2008
Total Posts : 174
   Posted 12/30/2008 8:52 PM (GMT -6)   
JCgurl....Thank you for the welcome and I should have thought more before I spoke.I didn't even think that I might not be the only newbie here.You poor child,having to go through all that for so long. I went through another rough patch last night,had to go the er and was treated like a piece of garbage by the doctor there.He also verbally attacked my son,so this afternoon ,my mother and i went and spoke to the hospital administrator and filed a complaint.It made me feel much better and the administrator was very nice and he said the doctor would be spoke to.I'm sure this has happened to others,but these doctors need to get their head out of their a** and quit treating people who come in with fibro pain like drug addicts.It's inexscusable.I have never turned a doctor in for being treated shabby,and there have been others,but this one was more than I could take.Grrrrrr.. skull .Anywho..Thanks again for the support,even though I just got here,the caring and warmth given by this community has already helped me loads.Bless you all......Wyld :-)     Heart Disease Diabetes Fibro Nerve damage                                                                                                                                                                                                                                                           

Regular Member

Date Joined Nov 2008
Total Posts : 263
   Posted 12/30/2008 10:15 PM (GMT -6)   
Hi wyld!
Welcome! I have found a lot of support on this site and I hope you do too.
Your story sounds remarkably like mine, and after a year of suffering I finally have the right medications and I feel like a new woman!
I hope the same happens for you. Take care,
I have Fibromyalgia, and nothing else!
I take Lyrica 225 mg/day and Tramadol (150mg time-released)

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